24. Ensuring Access to Research for Nondominant Language Speakers

Gany, Francesca; Diamond, Lisa; Meislin, Rachel; González, Javier Argos

doi:10.1525/9780520958494-025

Cited by 4 publications

(3 citation statements)

References 0 publications

Supporting

Mentioning

Contrasting

Order By: Relevance

“…Development of a Spanish version of this scale adds to the current state of the science by providing psychometrically valid and reliable, theoretically grounded measures of individual health beliefs related to lung cancer screening. This patient‐reported outcome survey can be used in future research to assess individual health beliefs in the Spanish‐speaking screening‐eligible population and provide a means of identifying potentially modifiable intervention targets for lung cancer screening (Gany et al, 2014; Glickman et al, 2011; Muthukumar et al, 2021; Smith et al, 2018; Squires et al, 2020; Staples et al, 2018). Theoretically based patient‐reported outcome questionnaires provide evidence that health belief model constructs are relevant to Spanish‐speaking at‐risk individuals and can be validly and reliably measured in the context of lung cancer screening participation.…”

Section: Discussionmentioning

confidence: 99%

“…Subscale means for screened and unscreened participants did not statistically differ, providing evidence of factorial invariance for the 4-factor confirmatory factor analysis model (Table 2). (Gany et al, 2014;Glickman et al, 2011;Muthukumar et al, 2021;Smith et al, 2018;Squires et al, 2020;Staples et al, 2018). Theoretically based patient-reported outcome questionnaires provide evidence that health belief model constructs are relevant to Spanish-speaking at-risk individuals and can be validly and reliably measured in the context of lung cancer screening participation.…”

Section: Hypothesis 3 Confirmatory Factor Analysismentioning

confidence: 99%

See 1 more Smart Citation

Development and psychometric evaluation of the Spanish version of the lung cancer screening health belief scale

Carter‐Harris

Schofield

Atkinson

et al. 2022

European J Cancer Care

View full text Add to dashboard Cite

Objective The aim of this study was to describe the translation and psychometric testing of the Lung Cancer Screening Health Belief Scale (LCSHBS) into Spanish. Methods The English version of the LCSHBS was professionally translated in accordance with best practices in the translation of patient‐reported outcome tools. The independent certified professional translator completed a forward translation of the LCSHBS from English to Spanish, followed by a review of the translated questionnaire by a certified Memorial Sloan Kettering Cancer Center Spanish‐English bicultural expert, who reviewed the scale for accuracy. Results Initial testing of the scales is valid and reliable, and supports the Spanish version of the LCSHBS (LCSHBS‐S). Internal consistency reliability of the scales was supported with Cronbach's ranging from 0.81 to 0.96. Construct validity was established with confirmatory factor analysis and testing for differences between individuals who have and have not screened in theoretically proposed directions. These newly translated scales can help investigators expand this research into the large Spanish‐speaking lung screening‐eligible population as they develop and test critical behavioural interventions to increase lung cancer screening in the at‐risk population. Conclusions Development of effective interventions to enhance shared decision‐making about lung cancer screening between patients and providers must first identify factors influencing the individual's screening participation. Future efforts facilitating patient–provider conversations are better informed by understanding the perspective of the individual making the decision.

show abstract

Section: Discussionmentioning

confidence: 99%

Section: Hypothesis 3 Confirmatory Factor Analysismentioning

confidence: 99%

Development and psychometric evaluation of the Spanish version of the lung cancer screening health belief scale

Carter‐Harris

Schofield

Atkinson

et al. 2022

European J Cancer Care

View full text Add to dashboard Cite

show abstract

“…44 This means that, in addition to denying individual minority language speakers the opportunity to participate in research (including access to cutting-edge treatments in clinical trials), their exclusion from research 'presents a barrier to the generalization of clinical research findings'. This means that the reality of a language barrier in healthcare results not only in poorer health outcomes, but also in a more limited access to research, i.e., 'in data that do not adequately reflect, and are thereby not necessarily applicable to, the needs of the broad population'.…”

Section: I Ng U I S Ti C E P I S Tem I C I Nj U S Ti Ce I N H E Amentioning

confidence: 99%

Language barriers and epistemic injustice in healthcare settings

Peled

2018

Bioethics

View full text Add to dashboard Cite

Contemporary realities of global population movement increasingly bring to the fore the challenge of quality and equitable health provision across language barriers. While this linguistic challenge is not unique to immigration contexts and is likewise shared by health systems responding to the needs of aboriginal peoples and other historical linguistic minorities, the expanding multilingual landscape of receiving societies renders this challenge even more critical, owing to limited or even non-existing familiarity of modern and often monolingual health systems with the particular needs of new linguistic minorities. The centrality of language to health beliefs, attitudes, practices, cultural scripts, and conceptual frameworks emphasizes its pivotal role in the healthcare process, and consequently in the adverse effects of treatment that is language-insensitive and unaware. Such an attitude on the part of medical authorities risks considerable epistemic injustice in the form of a (mis)judgement of patients' intelligence, credibility, and rationality based on the language that they speak and the manner in which they speak it, consequently impacting the quality and equity of care provided. This danger, I argue, may be effectively countered by fostering among the participants in the healthcare process a sense of epistemic humility through greater metalinguistic awareness. Outlining a range of operative steps that can be used to facilitate this. I argue that the reality of language barriers in the healthcare process, while not entirely eliminable, may nevertheless be successfully addressed, in order to mitigate the challenge of quality and equitable healthcare provision in multilingual societies.

show abstract

Developing a Culturally Responsive Lifestyle Intervention for Overweight/Obese U.S. Mexicans

et al. 2021

Self Cite

View full text Add to dashboard Cite

Introduction Hispanics are the largest minority group in the United States, constituting 18 % of the population. Mexicans are the largest Hispanic subgroup and are at disproportionate risk for overweight/obesity. Lifestyle interventions targeting dietary change and physical activity have resulted in significant weight loss in several large randomized clinical trials in the general population, but few studies have tailored interventions to Mexican Americans. We conducted a community needs assessment from 2018 to 2020 in accordance with Domenech-Rodriguez and Wieling's Cultural Adaptation Process (CAP) model to inform the development of SANOS (SAlud y Nutrición para todOS) (Health and Nutrition for All), a culturallytailored, community-based diet and lifestyle education and counseling program that addresses overweight/obesity among U.S. Mexicans.Methods Five Spanish-language focus groups were conducted until thematic saturation with 31 overweight/obese Mexicans in New York City about their knowledge, priorities, and preferences regarding diet, exercise, and evidence-based strategies for behavioral change. A grounded theory approach was used to analyze the data. Results Five themes were identified: (1) A strong desire for tangible information related to diet and health, (2) Family as a primary motivator for behavior change, (3) Desire for group-based motivation and accountability to sustain intervention participation, (4) Belief in short-term goal setting to prevent loss of motivation, and (5) Time and workplace-related barriers to intervention adoption. Conclusions Ecological factors such as the effect of acculturation on diet, family members' role in behavior change, and socioenvironmental barriers to healthy dietary practices and physical activity should be considered when adapting evidencebased treatments for Mexican Americans.

show abstract

24. Ensuring Access to Research for Nondominant Language Speakers

Cited by 4 publications

References 0 publications

Development and psychometric evaluation of the Spanish version of the lung cancer screening health belief scale

Development and psychometric evaluation of the Spanish version of the lung cancer screening health belief scale

Language barriers and epistemic injustice in healthcare settings

Developing a Culturally Responsive Lifestyle Intervention for Overweight/Obese U.S. Mexicans

Contact Info

Product

Resources

About