264 Validation of the Kidney Disease Quality of Life 36 (KDQOL-36) U.S. Spanish and English Versions in Hispanics with Chronic Kidney Disease

Ricardo, Ana C.; Hacker, Eileen Danaher; Lora, Claudia M.; Ackerson, Lynn; DeSalvo, Karen B.; Go, Alan S.; Kusek, John W.; Narva, Andrew S.; Nessel, Lisa; Townsend, Ray; Xie, Dawei; Welliver, Bonnie; Ferrans, Carol Estwing; Lash, James P.

doi:10.1053/j.ajkd.2011.02.267

Cited by 44 publications

(67 citation statements)

References 26 publications

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“…It should be noted that the evidence for this measure was obtained from studies conducted in Taiwanese patients [33], and a combination of Hispanic and non-Hispanic white patients [34]. Furthermore, the measurement properties were not reported by CKD stage.…”

Section: Discussionmentioning

confidence: 99%

Measurement properties of patient-reported outcome measures (PROMs) used in adult patients with chronic kidney disease: A systematic review

et al. 2017

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BackgroundPatient-reported outcome measures (PROMs) can provide valuable information which may assist with the care of patients with chronic kidney disease (CKD). However, given the large number of measures available, it is unclear which PROMs are suitable for use in research or clinical practice. To address this we comprehensively evaluated studies that assessed the measurement properties of PROMs in adults with CKD.MethodsFour databases were searched; reference list and citation searching of included studies was also conducted. The COnsensus-based Standards for the selection of health Measurement INstruments (COSMIN) checklist was used to appraise the methodological quality of the included studies and to inform a best evidence synthesis for each PROM.ResultsThe search strategy retrieved 3,702 titles/abstracts. After 288 duplicates were removed, 3,414 abstracts were screened and 71 full-text articles were retrieved for further review. Of these, 24 full-text articles were excluded as they did not meet the eligibility criteria. Following reference list and citation searching, 19 articles were retrieved bringing the total number of papers included in the final analysis to 66. There was strong evidence supporting internal consistency and moderate evidence supporting construct validity for the Kidney Disease Quality of Life-36 (KDQOL-36) in pre-dialysis patients. In the dialysis population, the KDQOL-Short Form (KDQOL-SF) had strong evidence for internal consistency and structural validity and moderate evidence for test-retest reliability and construct validity while the KDQOL-36 had moderate evidence of internal consistency, test-retest reliability and construct validity. The End Stage Renal Disease-Symptom Checklist Transplantation Module (ESRD-SCLTM) demonstrated strong evidence for internal consistency and moderate evidence for test-retest reliability, structural and construct validity in renal transplant recipients.ConclusionsWe suggest considering the KDQOL-36 for use in pre-dialysis patients; the KDQOL-SF or KDQOL-36 for dialysis patients and the ESRD-SCLTM for use in transplant recipients. However, further research is required to evaluate the measurement error, structural validity, responsiveness and patient acceptability of PROMs used in CKD.

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Section: Discussionmentioning

confidence: 99%

Measurement properties of patient-reported outcome measures (PROMs) used in adult patients with chronic kidney disease: A systematic review

et al. 2017

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“…The scores on each scale range from 0 to 100, with higher scores reflecting better quality of life. Finally, the single‐item overall health rating item allows subjects to rate health on a 0–10 response scale ranging from “worst possible” to “best possible health.” The KDQOL‐SF English version has been validated in Mexican Americans with chronic kidney disease and a Spanish version recently among Mexicans on HD .…”

Section: Methodsmentioning

confidence: 99%

Quality of Life and Depression Among Mexican Americans on Hemodialysis: A Preliminary Report

et al. 2017

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Health-related quality of life (QOL) and depression burden of Mexican Americans with end-stage renal disease (ESRD) are not known. This observational cross-sectional study assessed QOL and depression and examined their inter-relatedness in Mexican Americans with type 2 diabetes and ESRD on maintenance hemodialysis (HD) treatment. Prevalent Mexican Americans on HD (N = 40) completed the Kidney Disease Quality of Life-Short Form (KDQOL-SF) and the Beck Depression Inventory II. The overall median scores for the mental component summary and the physical component summary scales in the KDQOL-SF were 40.9 and 34.0, respectively. The prevalence of severe depression was 40%. The most significant differences between depressed and non-depressed groups were symptom/problem list, cognitive function, and emotional well- being (P < 0.0001 for all). Mexican Americans with depression endure a more dismal QOL compared to non-depressed peers. Significant negative correlations between depression and several QOL scales underscore plausible interactions between the two conditions which warrants further evaluation.

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“…The kidney disease quality of life (KDQOL™-36) instrument, previously validated in populations of undocumented Hispanic patients, 6 was selected as the second survey and was used to obtain HRQoL data from our study population. Responses to the KDQOL-36 were used to calculate scores for 5 unique subscales for each patient: physical health component summary (PCS); mental health component summary (MCS); burden of kidney disease; symptoms of kidney disease; and effects of kidney disease Wisconsin, USA) electronic medical record as they checked into the ED requesting dialysis.…”

Section: Methodsmentioning

confidence: 99%

“…While we drew comparisons from the literature, we did not survey a matched control population. Additionally, using the KDQOL-36 instrument, selected for its validity in surveying ESRD patients, 6 limited the number of previously surveyed populations against which our data could be compared. This meant that while the PCS and MCS scores generated for our population using the KDQOL-36 could be directly compared with scores from other published studies that utilized different versions the KDQOL instrument, 7 the three remaining KDQOL-36 subscales scores for our population could only be interpreted qualitatively.…”

Section: Quality Of Life In Emergent Dialysis -Hogan Et Almentioning

confidence: 99%

Emergent Dialysis and its Impact on Quality of Life in Undocumented Patients with End-Stage Renal Disease

et al. 2017

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Participants: 88 of 101 unfunded patients presenting to the ED during the study period consented to participate, resulting in an 87.1% response rate. 65 of these patients were undocumented immigrants. Main Outcome Measures:Quantitative scores for the 5 subscales of the KDQOL-36 were calculated for the study population. Results:Measures of physical and mental health in our study population were lower than those published for scheduled dialysis patients. 79.5% of our patients lost employment due to their dialysis requirements. At least 71.4% of the study patients were unaware that they required dialysis before immigrating to the United States.Conclusions: Quality of life scores were found to be low among our population of undocumented emergent dialysis patients. Our data also provide some evidence that availability of dialysis at no cost is not a primary driver of illegal immigration of ESRD patients to the United States. Ethn

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264 Validation of the Kidney Disease Quality of Life 36 (KDQOL-36) U.S. Spanish and English Versions in Hispanics with Chronic Kidney Disease

Cited by 44 publications

References 26 publications

Measurement properties of patient-reported outcome measures (PROMs) used in adult patients with chronic kidney disease: A systematic review

Measurement properties of patient-reported outcome measures (PROMs) used in adult patients with chronic kidney disease: A systematic review

Quality of Life and Depression Among Mexican Americans on Hemodialysis: A Preliminary Report

Emergent Dialysis and its Impact on Quality of Life in Undocumented Patients with End-Stage Renal Disease

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