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Zweygarth, Monika; Rs, Summers

doi:10.1023/a:1008734616460

Cited by 3 publications

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Haemophilia care in South Africa: 2004–2007 look back

Mahlangu¹

2009

Haemophilia

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The South African national haemophilia program (NHP) was officially recognized in 2000 and implemented by the National Department of Health (NDOH), haemophilia specialists of the Medical and Scientific Advisory Council (MASAC) and the South African Haemophilia Foundation (SAHF). This study aims to report on progress and challenges of haemophilia care in SA after implementation of the NHP. Haemophilia care data collected by MASAC from all treatment centres (HTCs) from 2004 to 2007 were reviewed and appraised. Data assessment included evaluation of the number and types of professional haemophilia expertise, diagnostic and human resources available, number and types of HTCs, number and types of haemophilia diagnoses, immunological complications of haemophilia, social, medical and surgical interventions, factor usage and reporting on haemophilia mortality. Over 2200 bleeding diathesis patients in SA were cared for by an average of 79 professionals in 17 HTCs. Fifty-nine per cent were haemophilia A, 21% von Willebrand's disease, 12% haemophilia B and the remainder had rare bleeding diathesis and thrombocytopathies. In 2004-2007, the number of haemophilia professionals stayed the same, clinic visits increased, new patients and inhibitor patients also increased. Surgical and medical interventions were unchanged and per capita factor usage increased from 0.65 to 0.95. National mortality rate remained below 10 deaths per year. Haemophilia care in SA is highly organized and effective in the delivery of haemophilia health services. All diagnosed uncomplicated haemophiliacs have access to state funded factor concentrate. Limited human and diagnostic resources remain major challenges.

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Haemophilia care in South Africa: 2004–2007 look back

Mahlangu¹

2009

Haemophilia

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Informatics for Medicines Management Systems in Resource-Limited Settings

Stergachis

Keene

Somani

2012

Pharmacoinformatics and Drug Discovery Technologies

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SummaryImproved access to information is necessary to ensure achievement of the potential benefits of medicines in resource-limited countries. The scaling up of treatment and prevention programs involving medicines in resource-limited regions with high disease burdens requires proper and urgent attention to the development and use of information technologies. Areas of need for medicines management systems informatics include prescribing, dispensing, pharmaceutical care, administration, patient monitoring, education and training, supply chain management, and monitoring and evaluation of program performance. Such information systems should strive to collect and manage data that are standardized, compiled, and made easily accessible for use by key stakeholders, including ministries of health, drug regulators, the pharmaceutical industry, public health programs, academic researchers, donor organizations, the health care delivery sector, and ultimately the public and patients. A framework is described for medicines management systems informatics in resource-limited settings.

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Informatics for Medicines Management Systems in Resource-Limited Settings

Stergachis

Keene

Somani

Supply Chain Management

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Improved access to information is necessary to ensure achievement of the potential benefits of medicines in resource-limited countries. The scaling up of treatment and prevention programs involving medicines in resource-limited regions with high disease burdens requires proper and urgent attention to the development and use of information technologies. Areas of need for medicines management systems informatics include prescribing, dispensing, pharmaceutical care, administration, patient monitoring, education and training, supply chain management, and monitoring and evaluation of program performance. Such information systems should strive to collect and manage data that are a standardized, compiled, and made easily accessible for use by key stakeholders, including ministries of health, medicines regulators, pharmaceutical industry, public health programs, academic researchers, donor organizations, the health care delivery sector, and ultimately the public and patients. A framework is described for medicines management systems informatics in resource-limited settings.

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Cited by 3 publications

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Haemophilia care in South Africa: 2004–2007 look back

Haemophilia care in South Africa: 2004–2007 look back

Informatics for Medicines Management Systems in Resource-Limited Settings

Informatics for Medicines Management Systems in Resource-Limited Settings

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