90 ‘People say it is dangerous’. psychosocial effects of labelling people with mild hypertension: a qualitative study

Gyuricza, János Valery; Brodersen, John; Bastos, Lucas; d’Oliveira, Ana Flávia Pires Lucas

doi:10.1136/bmjebm-2018-111070.90

Cited by 1 publication

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“…Most of the items were derived directly from transcriptions of words or sentences from the informations verbatim expressions. However, a few were generated based on our analyses of the meaning condensation of the interviews [18]. One example is the item on pride.…”

Section: Discussionmentioning

confidence: 99%

“…The purpose of the indepth semi-structured individual interviews was to gain insight into the consequences of labelling mild hypertension, to describe the consequences of this diagnosis, and to test the COS for content validity in this setting. These interviews were also part of our qualitative study on the psychosocial consequences of labelling hypertension [18]. After that, the informants were exposed to a draft version of the questionnaire, allowing them to reflect and evaluate the instructions and the items' content validity.…”

Section: Discussionmentioning

confidence: 99%

“…The recruitment of informants has previously been described in details [18]. In short, we recruited the informants for interviews ad hoc from public primary healthcare services in São Paulo (known as Unidade Básica de Saúde-UBS), social media and social networks.…”

Section: Interviewsmentioning

confidence: 99%

“…Recently, we conducted a qualitative study assessing the psychosocial consequences of labelling people in Brazil with mild hypertension. We found that the diagnosis of mild hypertension is a significant event that affects daily life, and most of the impact is regarded by patients as having negative psychosocial consequences or causing harm [18].…”

Section: Introductionmentioning

confidence: 96%

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Development of an item pool for a questionnaire on the psychosocial consequences of hypertension labelling

Gyuricza

d’Oliveira

Machado

et al. 2019

J Patient Rep Outcomes

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Background: Hypertension is the most prevalent risk factor for cardiovascular disease globally. Roughly one-third of the adult population has hypertension. However, most people diagnosed with hypertension do not benefit from blood pressure control with pharmacologic interventions: they are overdiagnosed and overtreated and might experience negative psychosocial consequences of being labelled. These consequences are relevant outcomes that need to be assessed and validly measured to identify all benefits and harms related to interventions designed to prevent cardiovascular disease. Objectives: To develop a pool of items with high content validity for a draft version of a condition-specific questionnaire to measure the psychosocial consequences of being labelled with mild hypertension. Methods: We selected relevant items from existing Consequences of Screening (COS) questionnaires. These items belonged to two groups: COS core items and potential condition-specific items. All items were originally in Danish and were translated into Brazilian Portuguese using the dual-panel method. Individual and group interviews were conducted with people with mild hypertension and low risk for cardiovascular disease, and were designed to test the translated items for face and content validity and were also used to generate new relevant items. Structured individual interviews were conducted to categorise all the items into domains. Results: The Brazilian Portuguese dual-panel translation of both groups of items was found to be relevant for adults diagnosed with hypertension. We generated 52 new items to achieve high content validity. The result was a set of 132 items divided into 22 domains in 2 parts. Part I was directed at the general population, whereas part II was directed only at people diagnosed with hypertension and it consisted of 38 items in 8 domains. Twelve items remained as single items. High content validity was achieved with the pool of 132 items divided into 22 domains in 2 parts. Discussion: High content validity was achieved for a condition-specific questionnaire measuring the psychosocial consequences of being labelled with mild hypertension. This instrument encompassed 132 items divided into 22 domains in 2 parts. Thereby, a draft of the Consequneces of Hypertension questionnaire (COH) was developed. The psychometric properties of this questionnaire will be discussed in a diferent paper.

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Section: Discussionmentioning

confidence: 99%

Section: Discussionmentioning

confidence: 99%

Section: Interviewsmentioning

confidence: 99%

Section: Introductionmentioning

confidence: 96%

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