A blended learning curriculum for training peer researchers to conduct community-based participatory research

Eaton, Andrew; Ibáñez-Carrasco, Francisco; Craig, Shelley L.; Carusone, Soo Chan; Montess, Michael; Wells, Alex; Ginocchio, Galo F.

doi:10.1080/14767333.2018.1462143

Cited by 22 publications

(28 citation statements)

References 14 publications

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“…The first author has taken action on these considerations through further work with four peer researchers studied here, and additional peers on two subsequent studies. The first is a pilot peer intervention concerning medication adherence and substance use for people living with HIV who are being discharged from hospital (Eaton et al 2018). The second is a pilot randomized, controlled trial to determine feasible group therapy for people with HIV-Associated Neurocognitive Disorder (clinicaltrials.gov #NCT03483740).…”

Section: Implications For Action Researchmentioning

confidence: 99%

Peer researchers in post-professional healthcare: A glimpse at motivations and partial objectivity as opportunities for action researchers

et al. 2018

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Peer researchers are members of a population under study who have a decision-making role or staff position on a research team. Peer researchers are increasingly required for funding proposals to succeed in Canadian HIV/AIDS research, and are strongly recommended for community-based participatory research in other fields. There is a need to better understand peer researchers’ motivations and their impact, both positive and negative, on studies they take part in. The emerging theory of post-professionalism informed a bounded system case study approach, whereby four peer researchers from an HIV, social work, and brain health study were conveniently sampled, then interviewed concerning their experiences and insider-outsider positioning. Personal interest and community leadership were key motivations behind their involvement; language barriers and managing multiple roles were key challenges. Participants identified a risk inherent in the performative interval, considering whether their contributions were a projection of self rather than a representation of participant contributions. Tension between social location and the insider positioning expected of peer researchers requires that academic researchers recognize the personal and social investments that peers make to a study. This paper presents considerations for how healthcare researchers can better engage as peers with peer researchers.

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Section: Implications For Action Researchmentioning

confidence: 99%

Peer researchers in post-professional healthcare: A glimpse at motivations and partial objectivity as opportunities for action researchers

et al. 2018

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“…For this reason, we and others who have developed CBPR training programs believe it is important to train teams, not just individuals, in CBPR [20,21,22,23]. Given our own and others’ findings on the impact of the degree of collaboration, almost all existing trainings provide both didactic and experiential training on partnership and collaboration [20,21,22,23,24,25,26,27,28,29,30,31,32,33,34,35,36,37,38,39]. Based on this study, we found that team members were able to use the training time to build or reconfigure their partnership.…”

Section: Discussionmentioning

confidence: 99%

Development and Evaluation of a Training Program for Community-Based Participatory Research in Breast Cancer

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Poole²,

Sarantis³

et al. 2019

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This paper describes the development and feasibility of the Community Based Research Infrastructure to Better Science (CRIBS) training. The goal of this training program was to help new or existing community-academic teams to build strong partnerships and successfully develop together fundable research projects focused on breast cancer environmental causes and disparities. A comprehensive mixed-methods participatory approach was utilized to assess the training. Twenty-two community-academic teams applied for the training program; twelve teams were enrolled. All teams completed the training and subsequently submitted research applications for funding. All components of the training received high ratings and positive qualitative comments. Self-rated competency in all of the learning domains increased during the training. Four (33%) of teams were successful in their first attempt to garner research funding, and six (50%) were eventually successful. The evaluation of CRIBS found it to have successfully achieved all four goals of the training: (1) Twelve new CBPR (community-based participatory research) teams, (2) improved knowledge about CBPR and science, (3) twelve submitted grant proposals in the first year, and (4) six (50%) successfully funded research projects.

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“…The purpose of this initial study was to determine the direction for psychosocial interventions in HIV and cognition, with a focus on social work due to the profession’s history of effective engagement with people living with HIV 23 30. The initial study also sought to understand the impacts of peer service provision and peer research from people affected by HAND themselves 31 32. The results of this study suggested that a cognitive remediation intervention, combining emotional and practical coping skills training in a group setting, may help people living with HAND manage their symptoms and improve their well-being 12…”

Section: Methods: Participants Interventions and Outcomesmentioning

confidence: 99%

Protocol for a pilot randomised controlled trial evaluating feasibility and acceptability of cognitive remediation group therapy compared with mutual aid group therapy for people ageing with HIV-associated neurocognitive disorder (HAND) in Toronto, Canada

et al. 2019

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IntroductionHIV-associated neurocognitive disorder (HAND) may affect 30%–50% of people ageing with HIV. HAND may increase stress and anxiety, and impede coping. Psychosocial group therapy may ameliorate HAND’s symptoms, yet the ideal intervention is unclear. This protocol outlines a pilot randomised controlled trial (RCT)—designed using community-based participatory research—to pilot cognitive remediation group therapy (CRGT) against an active comparator.Methods and analysisThis is a pilot, parallel design, two-arm RCT that will recruit participants diagnosed with the mild neurocognitive disorder form of HAND from a neurobehavioural research unit at a tertiary care hospital in Toronto, Canada. Eligibility criteria include age ≥40 years, known HIV status for 5+ years, English fluency, able to consent and able to attend 8 weeks of group therapy. Eligible participants will be randomised to one of two treatment arms, each consisting of eight-session group interventions delivered once weekly at 3 hours per session. Arm 1 (novel) is CRGT, combining mindfulness-based stress reduction with brain training activities. Arm 2 (active control) is mutual aid group therapy. The primary outcomes are feasibility, measured by proportions of recruitment and completion, and acceptability, determined by a satisfaction questionnaire. The secondary outcome is intervention fidelity, where content analysis will be used to assess facilitator session reports. A between-group analysis will be conducted on exploratory outcomes of stress, anxiety, coping and use of intervention activities that will be collected at three time points.Ethics and disseminationEthical approval was obtained from the Research Ethics Boards of St. Michael’s Hospital and the University of Toronto. Findings will be disseminated through peer-reviewed publications, conference presentations and community reporting. This study could provide insight into design (eg, recruitment, measures) and intervention considerations (eg, structure, content) for a larger trial to lessen the burden of cognitive decline among people ageing with HIV.Trial registration numberNCT03483740

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A blended learning curriculum for training peer researchers to conduct community-based participatory research

Cited by 22 publications

References 14 publications

Peer researchers in post-professional healthcare: A glimpse at motivations and partial objectivity as opportunities for action researchers

Peer researchers in post-professional healthcare: A glimpse at motivations and partial objectivity as opportunities for action researchers

Development and Evaluation of a Training Program for Community-Based Participatory Research in Breast Cancer

Protocol for a pilot randomised controlled trial evaluating feasibility and acceptability of cognitive remediation group therapy compared with mutual aid group therapy for people ageing with HIV-associated neurocognitive disorder (HAND) in Toronto, Canada

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