A brief patient-reported outcome instrument for primary care: German translation and validation of the Measure Yourself Medical Outcome Profile (MYMOP)

Hermann, Katja; Herrmann, Kathrin; Joos, Stefanie

doi:10.1186/s12955-014-0112-5

Cited by 21 publications

(14 citation statements)

References 23 publications

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“…To focus on specific bothersome or disabling motor symptoms we employed the Measure Yourself Medical Outcome Profile (MYMOP) [16,17]. This instrument has not been used in patients with ALS before but has been suggested as an individualized patient-reported outcome measure in primary care physical therapy [18].…”

Section: Methodsmentioning

confidence: 99%

Patient-Reported Outcome of Physical Therapy in Amyotrophic Lateral Sclerosis: Observational Online Study

Meyer¹,

Spittel²,

Steinfurth³

et al. 2018

JMIR Rehabil Assist Technol

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BackgroundPhysical therapy is an essential component of multidisciplinary treatment in amyotrophic lateral sclerosis (ALS). However, the meaning of physical therapy beside preservation of muscular strength and functional maintenance is not fully understood.ObjectiveThe purpose of this study was to examine patients’ perception of physical therapy during symptom progression using an internet assessment approach.MethodsA prospective, longitudinal, observational study was performed. Recruitment took place in an ALS center in Berlin, Germany. Online self-assessment was established on a case management platform over 6 months. Participants self-assessed the progression of the disease with the ALS Functional Rating Scale-Revised (ALSFRS-R) and tracked the efficacy of targeted physical therapy using Measure Yourself Medical Outcome Profile (MYMOP). We used the net promoter score (NPS) to inquire into recommendation levels of physical therapy.ResultsForty-five participants with ALS were included in the study. Twenty-seven (60.0%) started the online assessment. The mean duration of physical therapy sessions per week was 142.7 minutes (SD 60.4) with a mean frequency of 2.9 (SD 1.2) per week. As defined by MYMOP input, the most concerning symptoms were reported in the legs (62.2%), arms (31.1%), and less frequently in the torso (6.7%). As expected for a progressive disease, there was a functional decline of 3 points in the ALSFRS-R at the end of the observation period (n=20). Furthermore, the MYMOP showed a significant loss of 0.8 in the composite score, 0.9 in the activity score and 0.8 in the targeted symptom. In spite of functional decline, the recommendation for physical therapy jumped from a baseline value of 20 NPS points to a very high 50 points at the end of study (P=.05).ConclusionsPhysical therapy is perceived as an important treatment method by patients with ALS. Despite functional deterioration, patients are satisfied with physical therapy and recommend this intervention. The results also underline how the meaning of physical therapy changes throughout the disease. Physical therapy in ALS has to be regarded as a supportive and palliative health care intervention beyond functional outcome parameters.

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Section: Methodsmentioning

confidence: 99%

Patient-Reported Outcome of Physical Therapy in Amyotrophic Lateral Sclerosis: Observational Online Study

Meyer¹,

Spittel²,

Steinfurth³

et al. 2018

JMIR Rehabil Assist Technol

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“…A MYMOP Profile Score can be calculated as the mean of the ratings for severity of main symptoms, general wellbeing and restriction of activity. The German version of the MYMOP (MYMOP-D) has been validated within this study [17]. …”

Section: Methodsmentioning

confidence: 99%

Complementary and alternative medicine (CAM) as part of primary health care in Germany–comparison of patients consulting general practitioners and CAM practitioners: a cross-sectional study

Krug

Herrmann

Joos³

2016

BMC Complement Altern Med

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BackgroundIn Germany, complementary and alternative medicine (CAM) in primary health care is offered by general practitioners (GPs) and by natural health practitioners, so called ‘Heilpraktiker’ (HPs). Considering the steadily growing number of unregulated HPs, the aim of the study was to assess characteristics of patients consulting HPs in comparison to patients consulting GPs.MethodsIn a cross-sectional study, patients of randomly selected GPs and HPs were asked to complete a questionnaire about their health care status, health care behavior, and symptoms rated on the Measure Yourself Medical Outcome Profile (MYMOP-D). Patient groups were compared based on health care provider (HP, GP with high use of CAM (CAM-GP), and GP with no/little use of CAM (nCAM-GP)) using Kruskal-Wallis tests and analyses of variance (ANOVA).ResultsAltogether, 567 patients (91 of 11 HPs, 223 of 15 CAM-GPs, 253 of 19 nCAM-GPs) filled in the questionnaire. Patients of HPs had a higher education level and were more often female. The most common reason for encounter among all three groups were musculoskeletal problems (30.2–31.1 %). Patients seeing HPs reported more psychological (4.4 % vs. 17.8 %), but less respiratory problems (19.9 % vs. 7.8 %), and longer symptom duration (>5 years: 21.1 % vs. 40.7 %), than patients of nCAM-GPs.ConclusionsThe high percentage of patients with psychological illness and chronic health problems consulting HPs demonstrates the urgent need for action with regard to CAM therapy in primary care and regulation of natural health practitioners. Appropriate measures with regard to quality and patient safety should be taken given the growing numbers of HPs and the absence of a regulatory body.Electronic supplementary materialThe online version of this article (doi:10.1186/s12906-016-1402-8) contains supplementary material, which is available to authorized users.

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“…There are short QoL measures in use e.g. [32, 33]. Even the widely used SF-36 has scales with two and three items [11].…”

Section: Resultsmentioning

confidence: 99%

A new questionnaire for measuring quality of life - the Stark QoL

Hardt

2015

Health Qual Life Outcomes

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ObjectiveThe Stark questionnaire measures health-related quality of life (QoL) using pictures almost exclusively. It is supplemented by a minimum of words. It comprises a mental and a physical health component.MethodsA German sample of n = 500 subjects, age and gender stratified, filled out the Stark Qol questionnaire along with various other questionnaires via internet.ResultsThe physical component shows good reliability (Cronbach's alpha = McDonalds Omega = greatest lower bound = .93), the mental component can be improved (Cronbach's alpha = .63, McDonalds Omega = .72, greatest lower bound = .77). Confirmatory factor analysis shows a good fit (Bentlers CFI = .97). Construct validity was proven.ConclusionThe Stark QoL is a promising new development in measuring QoL, it is a short and easy to apply questionnaire. Additionally, it is particularly promising for international research.Electronic supplementary materialThe online version of this article (doi:10.1186/s12955-015-0367-5) contains supplementary material, which is available to authorized users.

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A brief patient-reported outcome instrument for primary care: German translation and validation of the Measure Yourself Medical Outcome Profile (MYMOP)

Cited by 21 publications

References 23 publications

Patient-Reported Outcome of Physical Therapy in Amyotrophic Lateral Sclerosis: Observational Online Study

Patient-Reported Outcome of Physical Therapy in Amyotrophic Lateral Sclerosis: Observational Online Study

Complementary and alternative medicine (CAM) as part of primary health care in Germany–comparison of patients consulting general practitioners and CAM practitioners: a cross-sectional study

A new questionnaire for measuring quality of life - the Stark QoL

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