A call for a US National Institute of Women’s Health and Human Development

Nelson, Lawrence M.

doi:10.3389/fendo.2024.1289592

Cited by 2 publications

(1 citation statement)

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“…The woman-girl-centered approach puts the research horse before the cart. For over ten years, the US National Institutes of Health Intramural Research Program (NIH-IRP) has forcefully advocated the woman-at-the-center approach to collaborative international research on POI [8][9][10][11]. Women with Primary Ovarian Insufficiency (POI) have voiced their needs in an open letter to the POI community.…”

Section: Empowering Women Through Advocacy and Educationmentioning

confidence: 99%

Primary Ovarian Insufficiency: A Case of the Cart before the Horse

Hijane,

Nelson

2024

Adv Med Res

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Overt Primary Ovarian Insufficiency (POI) is a rare disorder characterized by a constellation of other rare conditions, posing significant diagnostic and management challenges. This disorder necessitates a global mechanism for information exchange, streamlined data sharing, dynamic international partnerships, and the integration of artificial intelligence to enhance diagnostic accuracy through next-generation sequencing and specific antibody testing. Empowering women with POI involves providing them with access to the best available evidence at the point of care and facilitating informed decisions throughout their health journey. A key strategy is transcending the traditional biomedical model by adopting a population-based approach that encourages global cross-sectional collaboration. Optimal care for women with POI is achieved through an integrated, multidisciplinary approach that leverages diverse expertise to evaluate evidence and update care practices effectively. Initiatives are also underway to establish a patient advocacy group, emphasizing the importance of early diagnosis in allowing women to adapt family planning or preserve fertility. The overarching vision for POI research and care aims to cultivate proactive international partnerships and data sharing, driven by the needs and experiences of women with Overt POI.

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Section: Empowering Women Through Advocacy and Educationmentioning

confidence: 99%