“…Among 34 studies, there were 28 numbers of unique PROMs identified. Thirteen measures were unique generic profile PROMs, among the most common were KIDSCREEN [ 29 , 43 , 44 , 48 , 51 ], Strengths and Difficulties Questionnaire (SDQ) [ 21 , 38 , 40 , 42 , 49 ], KINDL-R [ 45 – 47 ], [ 58 , 59 ], Pediatric Quality of Life Enjoyment and Satisfaction (PQ-LES-Q) [ 30 , 54 – 56 ], and the Pediatric Quality of Life Inventory (PedsQl) 4.0 [ 33 , 34 , 41 ]. There were two generic preference-based PROMs, the Euroqol (EQ-5D 3L and 5L), Health Utilities Index (HUI2/3) and thirteen measures were disease-specific, most of which were used in depression such as beck depression inventory (BDI) and child depression inventory (CDI) (Additional file 2 : S2).…”