A Community-Based Participatory Research Study of HIV and HPV Vulnerabilities and Prevention in Two Pacific Islander Communities: Ethical Challenges and Solutions

DiStefano, Anthony S.; Peters, Ruth; Tanjasiri, Sora Park; Quitugua, Lourdes; Dimaculangan, Jeany; Hui, Brian; Barrera-Ng, Angelica; Vunileva, Isileli; Tui‘one, Vanessa; Takahashi, Lois M.

doi:10.1525/jer.2013.8.1.68

Cited by 15 publications

(28 citation statements)

References 39 publications

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“…Analysis of the methodologies of the selected papers indicated that most of the researchers (ten out of fourteen) adopted a qualitative approach (Dela Cruz et al, 2016;Devries et al, 2010;DiStefano et al, 2012;2013;Henderson et al, 2018;Hodge, 2014;Itty et al, 2014;Nonzee et al, 2018;Soon et al, 2015); three were based on quantitative analysis (Dwojak et al, 2015;Gabster et al, 2019;Tom et al, 2016); and one had a mixed-methods approach (Hodge et al, 2011).…”

Section: Resultsmentioning

confidence: 99%

Awareness of Human Papillomavirus (HPV) Infection among Indigenous Males in North America and Oceania

Bedi¹,

Strachan²,

Zehbe³

2020

Preprint

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We surveyed peer-reviewed literature on the awareness of human papillomavirus (HPV) infection among Indigenous males in North America and Oceania. Using keywords HPV plus male, men or boy, and ethnical filters such as Indigenous, Aboriginal or First Nations, we retrieved 47 articles based on titles of which we kept 14 after reading the abstracts. Reported HPV awareness was generally low in Indigenous males in North America with no peer-reviewed data from Oceania. The lower understanding by males compared to females was largely attributable to misconceptions about HPV-related diseases, their transmission, and prevention. Lack of awareness and concern toward the risk of contracting HPV infection in Indigenous males suggests an impediment in disseminating health information about this cancer-causing virus. Culturally sensitive education, with emphasis on Indigenous males, is needed to improve this group’s HPV knowledge. Researchers should also engage meaningfully with Indigenous communities by building rapport to achieve a positive change in attitude.

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Section: Resultsmentioning

confidence: 99%

Awareness of Human Papillomavirus (HPV) Infection among Indigenous Males in North America and Oceania

Bedi¹,

Strachan²,

Zehbe³

2020

Preprint

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show abstract

“…However, conducting CBPR requires building the capacity of both community stakeholders and academic researchers (Crosby et al 2013;Goytia et al 2013;Kwon et al 2012). Though several CBPR engagement and training models have been published (Allen et al 2013;Baquet et al 2013;Cole et al 2013;Crosby et al 2013;Goytia et al 2013;Healey, Reed & Huber 2013;Martin del Campo et al 2013;Rideout et al 2013;Smith, Kaufman & Dearlove 2013;Young-Lorion et al 2013), few have focused on work with Pacific Islander communities (DiStefano et al 2013;Kaholokula et al 2014;Kwan et al 2012Kwan et al , 2014Palmer 2014).…”

Section: Discussionmentioning

confidence: 99%

Development and evaluation of a community-engaged research training program: Building capacity of Marshallese stakeholders and academic researchers to conduct health research

et al. 2019

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Pacific Islanders are a growing, yet understudied population who suffer from high rates of chronic diseases such as obesity and diabetes. Given the historical trauma experienced by Pacific Islanders, community-based participatory research (CBPR) is an appropriate way to conduct research focused on reducing the health disparities observed in this population. This paper presents the process of engaging the Marshallese community to design, conduct, and evaluate a community-engaged research training program. The goal of the program was to build the capacity of both academic researchers and community stakeholders to conduct CBPR for the purpose of addressing health disparities identified and prioritized by the Marshallese community. The program included both didactic training and experiential mentored research components delivered over a period of two years. Eleven Marshallese community stakeholders and eleven academic researchers participated in the program. Results indicated that the program successfully increased participants’ knowledge regarding the CBPR process. Groups of participants have completed exploratory research projects based on the topics identified by the community. The evaluation adds important insights to the current CBPR training literature and can inform future CBPR trainings. Keywordscommunity-based participatory research, community-engaged research, Pacific Islanders, minority health, health disparities, interprofessional training

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“…In studies of culturally congruent HIV interventions, the absence of an equivalent comparison group (without a cultural component), as well as the absence of evaluation of the effect of racial pride on behavioral outcomes can obscure the specific importance of culture in HIV prevention among African-American MSM and MSMW (Maulsby et al, 2013; Williams et al, 2009). Findings by DiStefano et al (2013) suggests that racial pride is protective against HIV risk behaviors among Pacific Islander communities, but this association has yet to be quantitatively demonstrated among African-Americans. Therefore, the objective of our study is to assess the pathways by which racial pride is associated with condom use self-efficacy, intentions, and behaviors among post-incarcerated African-American MSMW using baseline data from our intervention, Men in Life Environments ( MILE ) (Harawa et al, 2016).…”

Section: Culture In Hiv Interventionmentioning

confidence: 99%

Racial Pride and Condom Use in Post-Incarcerated African-American Men Who Have Sex With Men and Women: Test of a Conceptual Model for the Men in Life Environments Intervention

Frank

Harawa

et al. 2016

Arch Sex Behav

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African-American men who have sex with men and women (MSMW) are among those most heavily impacted by HIV in the United States, and those who have histories of incarceration are at further risk of infection. The Men in Life Environments (MILE) HIV prevention intervention was developed to provide culturally appropriate skills-based education and support for African-American MSMW with recent histories of incarceration. The MILE's conceptual framework was informed by three theories: Theory of Reasoned Action and Planned Behavior, Critical Thinking and Cultural Affirmation Model, and Empowerment Theory. The theory-based framework posits that improving racial pride is crucial in building self-efficacy and intentions that in turn promote health-protective behaviors. Therefore, our study aimed to assess whether baseline associations between racial pride and condom use self-efficacy, intentions, and behaviors among African-American MSMW with histories of incarceration align with our conceptual model. We report data on 212 participants recruited from Los Angeles County Sheriff's Department Men's Central Jail and the local community. Using structural equation modeling, we tested two separate models: one with female sexual partners and one with male sexual partners, while stratifying by participant's HIV status. Only among HIV-negativeparticipants was greater racial pride associated with less condomless intercourse with men. In this group, greater self-efficacy and intentions—but not racial pride—predicted less condomless intercourse with women. Our findings suggest that racial pride is an important factor to address in HIV prevention interventions for post-incarcerated African-American MSMW.

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A Community-Based Participatory Research Study of HIV and HPV Vulnerabilities and Prevention in Two Pacific Islander Communities: Ethical Challenges and Solutions

Cited by 15 publications

References 39 publications

Awareness of Human Papillomavirus (HPV) Infection among Indigenous Males in North America and Oceania

Awareness of Human Papillomavirus (HPV) Infection among Indigenous Males in North America and Oceania

Development and evaluation of a community-engaged research training program: Building capacity of Marshallese stakeholders and academic researchers to conduct health research

Racial Pride and Condom Use in Post-Incarcerated African-American Men Who Have Sex With Men and Women: Test of a Conceptual Model for the Men in Life Environments Intervention

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