A community living experience: Views of people with intellectual disability with extensive support needs, families, and professionals

A Systematic Approach to Implementing, Evaluating, and Sustaining the Shared Citizenship Paradigm in the Disability Field

“…In this sense, the SCP is impacting disability-related services and support systems on three levels: macro-, meso-, and microsystem [7,8,45,46]. At the macrosystem level, there have been significant changes in public policies that incorporate disability rights, emphasizing (a) inclusion (ensuring that individuals with disabilities are fully integrated into society and have equal access to education, employment, public services, and community participation); (b) equity (distributing resources and opportunities in a way that addresses their specific needs); (c) self-determination (giving them control over their own lives, choices, decisions, and life directions); and (d) empowerment (enabling them to have the knowledge, skills, and resources to advocate for their rights).…”

“…At the microsystem level, people with disabilities are experiencing greater opportunities to live, work, and receive education in inclusive environments. Moreover, they are actively participating and becoming more involved in the development, implementation, and evaluation of their individual support plans, further empowering their decision making and autonomy [7].…”

“…Based on previous experiences [7], the Institute for Community Integration (INICO) at the University of Salamanca actively participates in the project evaluation through a longitudinal study (data are collected before the transition to houses in the community, 9 and 18 months after the move). The evaluation focuses on personal outcomes, such as QOL domain scores, participation measures, and decision-making indicators, comparing them to those of a similar-sized sample that has chosen to remain in their current residential facility.…”

“…Over the last 3-4 decades, the disability field has experienced a number of shifts and witnessed the emergence of new paradigms that have focused on community living and inclusion [7][8][9][10][11][12], personal autonomy [5,13], human and legal rights [14][15][16][17][18][19], and human capacity [20][21][22]. These paradigms have typically emphasized a specific area and conceptual issues (e.g., community living, integrated employment, inclusive education, capacity, or rights) rather than describing a systematic approach to the paradigm's implementation, evaluation, and sustainability.…”

Explorando las necesidades de apoyo en personas adultas con discapacidad intelectual y/o desarrollo de Chile, recomendaciones para fortalecer la inclusión.

“…En las últimas décadas, el concepto de discapacidad ha avanzado desde un modelo médico-rehabilitador, a un modelo social y de derechos humanos y legales (Hernández-Ponce et al, 2019;Šubic y Ferri, 2023). En este contexto se rescata la importancia de la autodeterminación, los derechos y los resultados personales (Thompson et al, 2009), la autonomía personal (ONU, 2002), la vida en comunidad y la inclusión (Esteban et al, 2023). En esta línea y en específico en el ámbito de la discapacidad intelectual, desde la década de los 90 se viene promoviendo el paradigma de los apoyos individuales y comunitarios (Bradley, 1994).…”