A community survey of children with severe intellectual disability and their families: psychological adjustment, carer distress and the effect of respite care

Hoare, Peter; Harris, Meredith; Jackson, Patrick G.; Kerley, S.

doi:10.1046/j.1365-2788.1998.00134.x

Cited by 106 publications

(106 citation statements)

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“…Socio-economic status were reported not to be related to parental depression in families with children with intellectual disability (26,35). In our study employed mothers had significantly higher state anxiety, trait anxiety, and depression scores in the autism group whereas occupation showed no significance in the mental retardation group.…”

Section: Discussioncontrasting

confidence: 65%

Comparison of Psychopathology in the Mothers of Autistic and Mentally Retarded Children

et al. 2002

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The aim of this study was to evaluate anxiety, depression, alexithymia, and general psychological symptoms in the mothers of autistic children in comparison with those in the mothers of mentally retarded children. Forty mothers of autistic children and 38 mothers of mentally retarded children were included in the study. After a clinical interview, psychometric tests were performed for depression, anxiety, alexithymia, and Symptom Distress Check List (SCL-90) for general psychological symptoms. Non-depression rates was 27.5% in the mothers of autistic children whereas the rate was 55.3% in the mothers of mentally retarded children. There was no difference regarding anxiety and alexithymia between the two groups. The psychopathology in the mothers of autistic children was more frequent than in those of mentally retarded children in all sub-scales of SCL-90 (somatization obsessive-compulsive, interpersonal sensitivity, depression, anxiety, anger-hostility, phobic anxiety, paranoid thought, psychotism, and extra scale). The mothers of autistic children experienced more psychological distress than those of mentally retarded children. Our findings indicates that the assessment of autistic and mentally retarded children should include psychological assessment of their mothers.

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Section: Discussioncontrasting

confidence: 65%

Comparison of Psychopathology in the Mothers of Autistic and Mentally Retarded Children

et al. 2002

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“…reported that the availability of support from friends and family facilitated positive perceptions, since families felt that they had external resources they could depend on to cope with their situation. and other researchers (Hoare et al, 1998;Horton & Wallander, 2001;Plant & Saunders, 2007) found that those families with more social support showed lower levels of distress than those with less social support.…”

Section: A Pattern Of Communication That Emphasises and Encourages Opmentioning

confidence: 81%

Resilience in families of children with developmental disabilities.

Greeff¹,

Nolting²

2013

Families, Systems, & Health

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DeclarationBy submitting this dissertation electronically, I declare that the entirety of the work contained therein is my own, original work, that I am the owner of the copyright thereof (unless to the extent explicitly otherwise stated) and that I have not previously in its entirety or in part submitted it for obtaining any qualification. First and foremost, I would like to thank the families that agreed to participate in this study.Without their input this study would not have been possible.Thank you also to Mr Davis, the principal of the Dorothea School in Cloetesville, for his help in identifying families meeting the selection criteria and for facilitating my contact with these families.A big thank you to my supervisor, Professor Abraham Greeff, for his ongoing patience, support and encouragement, not to mention all his valuable input regarding the research design, the implementation thereof and ultimately, the writing of this document.Thank you to Professor Martin Kidd for conducting the statistical analyses of the data, and for patiently explaining away any uncertainties.To my siblings and all my friends, thank you for the emotional and practical support provided.And last, but definitely not least, a big thank you to my wonderful parents. Thank you for your continuing and unconditional love and support, and for believing in me even when I didn't. I couldn't have done it without you! iv SUMMARY Family resilience refers to the family's ability to overcome adversity using inherent and/or acquired strengths and resources. The aim of this study was to identify factors contributing to the successful adaptation, or resilience, of families following the birth or diagnosis of a child with a developmental disability. The study is based on the theoretical frameworks of family resilience proposed by and Walsh (2003) Quantitative data was analysed through analyses of variance, Pearson product-moment correlations and a multiple regression analysis. The qualitative data was analysed using thematic content analysis. These analyses revealed that an acceptance of the situation, positive patterns of family communication, commitment and support within the family unit, and a positive attitude with regard to new experiences and challenges facilitate family adaptation and resilience, while negative patterns of communication within the family were found to be inversely related to family adaptation. An inverse association was also found between age of the child with a disability and family adaptation. These findings suggest some possible avenues of intervention by which the adaptation of families with a child with a developmental disability in South Africa can be facilitated or supported. v OPSOMMING Gesinsveerkragtigheid verwys na die gesin se vermoë om terugslae en teenspoed te oorkom deur die gebruik van bestaande en aangeleerde sterktes en hulpbronne. Die doel van die huidige studie was om kwaliteite te identifiseer wat tot die aanpassing, en dus veerkragtigheid, van gesinne met 'n kind met 'n ontwikkelingsgestremdheid bydra...

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“…Psychological help is received mostly due to the effects of the mental disability on the parents. Previous researches proved that parents that have a disabled child undergo social suppression and experience hopelessness, future worries and higher depression and feel regret more intensely (Hoare et al 1998). Therefore, we may say that children of the parents that received psychological help had lower self concept.…”

Section: Discussionmentioning

confidence: 99%

Hafif Derecede Zihinsel Yetersizliği Olan Çocuklarda Beden Eğitimi ve Sporun Benlik Algısı Üzerindeki Etkisi

ÇOKLUK¹

2015

ISSCS

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The primary purpose of this study was to evaluate the effects of a 10-week research-based Special Physical Education Program (SPEP) on the self-concept levels of students with mild mental disabilities (MMR) aged between 8 and 16 from the perspectives of Special Education and Physical Education by taking their socio-demographic characteristics into consideration.The sample of the research was comprise of 145 students with MR (57 in control and 88 in experimental group) who lived in the city center of Antakya Province and within the city borders, attended to special education centers. The participants were selected by the school psychologists out of the students whose IQs ranged between 50 and 70. The research was designed in a pre test-post-test control group model. Socio demographic forms and PierreHarris Self-Concept Scale were used in order to collect quantitative data in the present research.The study results demonstrated that after participating SPEP, control group had improved total and sub-scale scores in Pierre-Harris Self-Concept Scale. Before SPEP, levels of anxiety among female participants were higher than their male counterparts. After a 10 week SPEP intervention, boys improved their perception of success (p<0.01), while girls increased their scores on Behavioral Adjustment(p<0.05) compare to the other gender.

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A community survey of children with severe intellectual disability and their families: psychological adjustment, carer distress and the effect of respite care

Cited by 106 publications

References 10 publications

Comparison of Psychopathology in the Mothers of Autistic and Mentally Retarded Children

Comparison of Psychopathology in the Mothers of Autistic and Mentally Retarded Children

Resilience in families of children with developmental disabilities.

Hafif Derecede Zihinsel Yetersizliği Olan Çocuklarda Beden Eğitimi ve Sporun Benlik Algısı Üzerindeki Etkisi

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