A Comparative Study on Self Perceived Health and Quality of Life of Parents of Children with Autism Spectrum Disorders and Parents of Non Disabled Children in Croatia

Benjak, Tomislav; Mavrinac, Ivana Pavić Šimetin Gorka Vuletić; Kolarić, Branko

doi:10.5772/17368

Cited by 2 publications

(9 citation statements)

References 33 publications

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“…As shown in Table 3, the largest proportion of included studies focused on ASD and related disorders ( n = 12; Allik et al ., 2006; Mugno et al ., 2007; Lee et al ., 2009; Benjak et al ., 2011; Yamada et al ., 2012; Eapen et al ., 2014; Ji et al ., 2014; Kuhlthau et al ., 2014; Suzumura 2015; Chan and Lai 2016; Killian et al ., 2016; Niinomi et al ., 2016), followed by ADHD ( n = 7; Lange et al ., 2005; Schreyer and Hampel 2009; Xiang et al ., 2009; Hadi et al ., 2013; Kandemir et al ., 2014; Avrech Bar et al ., 2015; Zare et al ., 2017).…”

Section: Results Of Systematic Reviewmentioning

confidence: 99%

“…55.6%) provide information about response/refusal rate in regard to caregivers of mentally-ill children (Foldemo et al ., 2005; Xiang et al ., 2009; Yamada et al ., 2012; Ji et al ., 2014; Kuhlthau et al ., 2014). Among studies that assessed a control group, one provided information about response/refusal rate for both groups (Mugno et al ., 2007), seven only for caregivers of mentally-ill children (Allik et al ., 2006; Lee et al ., 2009; Schreyer and Hampel, 2009; Benjak et al ., 2011; Ginieri-Coccossis et al ., 2012; Anastasiadou et al ., 2016; Jalenques et al ., 2017) and nine for neither group (Lange et al ., 2005; Egemen et al ., 2008; Naitoh et al ., 2012; Hadi et al ., 2013; Kandemir et al ., 2014; Kilicoglu et al ., 2014; Avrech Bar et al ., 2015; Suzumura, 2015; Zare et al ., 2017). Caregivers of mentally-ill children were mostly recruited via (psychiatric) outpatient clinics or other centers specialised on the child's diagnosis.…”

Section: Results Of Systematic Reviewmentioning

confidence: 99%

“…In one study (Jalenques et al 2017), the more prevalent measure (SF-36) was used for the meta-analysis (excluded: WHOQOL-BREF). Another study (Benjak et al 2011) used two QOL-measures (PWI and SF-36), but the means and SD were only available for the PWI, which was subsequently considered for the meta-analysis. One study (Killian et al 2016) could not be considered for the meta-analysis since the effects had a variance of zero.…”

Section: Methods Of Meta-analysismentioning

confidence: 99%

“…As shown in Table 3, the largest proportion of included studies focused on ASD and related disorders (n=12; Eapen et al 2014;Ji et al 2014;Niinomi et al 2016;Kuhlthau et al 2014;Benjak et al 2011;Allik et al 2006;Lee et al 2009;Suzumura 2015;Mugno et al 2007;Yamada et al 2012;Killian et al 2016;Chan & Lai 2016), followed by ADHD (n=7; Hadi et al 2013;Zare et al 2017;Xiang et al 2009;Kandemir et al 2014;Avrech Bar et al 2015;Schreyer & Hampel 2009;Lange et al 2005).…”

Section: Considered Mental Disordersmentioning

confidence: 99%

“…And the percentage of males was mostly over 70% (in 19 studies;Eapen et al 2014;Ji et al 2014;Niinomi et al 2016;Kuhlthau et al 2014;Benjak et al 2011;Allik et al 2006;Lee et al 2009;Suzumura 2015;Mugno et al 2007;Chan & Lai 2016;Xiang et al 2009;Kandemir et al 2014;Avrech Bar et al 2015;Schreyer & Hampel 2009;Lange et al 2005;Jalenques et al 2017;Foldemo et al 2005;Naitoh et al 2012;Yamada et al 2012).…”

Section: Socio-demographic Characteristics Of Childrenmentioning

confidence: 99%

See 4 more Smart Citations

Quality of life of parents of mentally-ill children: a systematic review and meta-analysis

Dey

Castro

Haug

et al. 2018

Epidemiol Psychiatr Sci

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Section: Results Of Systematic Reviewmentioning

confidence: 99%

Section: Results Of Systematic Reviewmentioning

confidence: 99%

Section: Methods Of Meta-analysismentioning

confidence: 99%

Section: Considered Mental Disordersmentioning

confidence: 99%

Section: Socio-demographic Characteristics Of Childrenmentioning

confidence: 99%

See 3 more Smart Citations

Quality of life of parents of mentally-ill children: a systematic review and meta-analysis

Dey

Castro

Haug

et al. 2018

Epidemiol Psychiatr Sci

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Interventions based on early intensive applied behaviour analysis for autistic children: a systematic review and cost-effectiveness analysis

Rodgers

Marshall

Simmonds

et al. 2020

Health Technol Assess

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Background Early intensive applied behaviour analysis-based interventions are intensive interventions for autistic children that are often delivered on a one-to-one basis for 20–50 hours per week. Objectives To evaluate the clinical effectiveness and cost-effectiveness of early intensive applied behaviour analysis-based interventions for autistic children, based on current evidence. Methods A systematic review and individual participant data meta-analysis were conducted to evaluate the clinical effectiveness of an early intensive applied behaviour analysis-based intervention for autistic children. An economic analysis included a review of existing analyses and the development of a new model. Results Twenty studies were included in the clinical review. Individual participant data were retrieved from 15 of these studies. Results favoured the interventions when assessing adaptive behaviour after 2 years compared with treatment as usual/eclectic interventions (mean difference 7.00, 95% confidence interval 1.95 to 12.06). In analyses of cognitive ability (intelligence quotient), results favoured the interventions by approximately 10 points after 1 year (mean difference 9.16, 95% confidence interval 4.38 to 13.93) and 2 years (mean difference 14.13, 95% confidence interval 9.16 to 19.10). Evidence for other outcomes was limited and meta-analyses were generally inconclusive. There was no evidence that the effect of the interventions varied with characteristics of the children, but data were limited. Adopting a £30,000 per quality-adjusted life-year threshold, the results of the cost-effectiveness analysis indicate that early intensive applied behaviour analysis-based interventions would need to generate larger benefits or cost savings to be cost-effective. Adopting a public sector perspective and making pessimistic assumptions about long-term effects, the incremental cost-effectiveness ratio for early intensive applied behaviour analysis-based therapy compared with treatment as usual is £189,122 per quality-adjusted life-year. When optimistic assumptions are made, the incremental cost-effectiveness ratio is £46,768 per quality-adjusted life-year. Scenario analyses indicated that these interventions can potentially be cost-effective if long-term improvements persist into adulthood, or if they have significant impact on educational placement. Care should be taken when interpreting these scenarios owing to the limited data. Limitations All included studies were at risk of bias, there was substantial heterogeneity and effects varied considerably across studies. The effect of intervention on autism symptom severity, language development and school placement remains uncertain because of the limited data. The long-term effects are unclear owing to a lack of follow-up data. Conclusions This review found limited evidence that early intensive applied behaviour analysis-based interventions may improve cognitive ability and adaptive behaviour, but the long-term impact of the interventions remains unknown. The economic analysis is constrained by the limited effectiveness evidence, but suggests that these interventions are unlikely to be cost-effective unless clear long-term benefits, or a substantial change in which schools children attend, can be identified. Future work Further studies into the effectiveness of early intensive applied behaviour analysis-based interventions may be warranted if they include well-defined, alternative interventions as comparators and collect relevant outcomes. Consideration should be given to future studies that not only address whether or not early intensive applied behaviour analysis-based interventions are clinically effective, but also aim to identify which components of early intensive applied behaviour analysis-based interventions might drive effectiveness. Study registration This study is registered as PROSPERO CRD42017068303. Funding This project was funded by the National Institute for Health Research (NIHR) Health Technology Assessment programme and will be published in full in Health Technology Assessment; Vol. 24, No. 35. See the NIHR Journals Library website for further project information.

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A Comparative Study on Self Perceived Health and Quality of Life of Parents of Children with Autism Spectrum Disorders and Parents of Non Disabled Children in Croatia

Cited by 2 publications

References 33 publications

Quality of life of parents of mentally-ill children: a systematic review and meta-analysis

Quality of life of parents of mentally-ill children: a systematic review and meta-analysis

Interventions based on early intensive applied behaviour analysis for autistic children: a systematic review and cost-effectiveness analysis

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