2017
DOI: 10.1007/s11136-017-1646-x
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A comparison of perceptions of quality of life among adults with spinal cord injury in the United States versus the United Kingdom

Abstract: Purpose To identify which aspects of life are most important to adults with spinal cord injury (SCI) and compare perspectives in the United States and the United Kingdom. Methods We conducted 20 in-depth interviews with adults with SCI (ten in the US and ten in the UK). Verbatim transcriptions were independently analyzed line-by-line by two coders using an inductive approach. Codes were grouped into themes about factors that constitute and affect quality of life (QOL). Results Five overarching themes emerged: … Show more

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Cited by 15 publications
(15 citation statements)
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References 33 publications
(31 reference statements)
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“…[3][4][5][6][7][8][9][10][11][12][13][14][15][16][17] We conducted 20 in-depth interviews with adults with SCI who are full-time wheelchair users, exploring quality of life in the context of SCI, and preferences for different health outcome measures, with findings reported elsewhere. 20 The need for two separate scales emerged from these in-depth interviews. Physical fatigue was defined as reduced physical function due to wear or disease (tiredness and weakness are symptoms of fatigue).…”
Section: Initial Fatigability 82-item Poolmentioning
confidence: 99%
See 1 more Smart Citation
“…[3][4][5][6][7][8][9][10][11][12][13][14][15][16][17] We conducted 20 in-depth interviews with adults with SCI who are full-time wheelchair users, exploring quality of life in the context of SCI, and preferences for different health outcome measures, with findings reported elsewhere. 20 The need for two separate scales emerged from these in-depth interviews. Physical fatigue was defined as reduced physical function due to wear or disease (tiredness and weakness are symptoms of fatigue).…”
Section: Initial Fatigability 82-item Poolmentioning
confidence: 99%
“…23 The hypothesized structure was based on theories proposed by previous studies. 20,24 For the PF scale, we hypothesized five multi-item domains: "Health challenges," "Daily living challenges," "Mental tasks," "Access challenges," and "Seating challenges." The hypothesized structure for the MF scale included four multi-item domains: "Daily living challenges," "Access challenges," "Concentration challenges," and "Health challenges."…”
Section: Categorical Confirmatory Factor Analysis (Cfa)mentioning
confidence: 99%
“…Most previous studies on QoL after GSD surgery have concerned surgical approach [12][13][14][15][16] , patient-related factors 4,7 , or timing of the procedure [17][18][19] . Studies on the impact of cultural differences on QoL of patients with pathologies other than GSD have been performed [20][21][22][23] . In general these studies indicate that the healthcare system and disease perception may have an impact on self-reported outcome, even if surgical management and treatments are similar.…”
Section: Discussionmentioning
confidence: 99%
“…Transcripts were uploaded to Atlas.ti 30 to facilitate management, coding, analysis and interpretation of complex qualitative data, using grounded theory. These transcripts included both the first half of the interview, regarding QOL in the context of SCI, 18 and the second half, regarding survey preferences. Coding was performed in two rounds, each consisting of two coders coding independently.…”
Section: Discussionmentioning
confidence: 99%
“…Methods and findings from the first half of the interviews are discussed elsewhere. 18 The sequence in which the surveys were presented and discussed was varied randomly for each interviewee to control for order effects. 19,20 The interview prompt for the review of the surveys was: "We are going to look at 6 surveys that have been used to assess healthrelated quality of life, and well-being in adults with SCI.…”
Section: Interview Protocolmentioning
confidence: 99%