A Comparison of Three Methods of Measuring Dementia-Specific Quality of Life: Perspectives of Residents, Staff, and Observers

Edelman, Perry; Fulton, Bradley R.; Kühn, Daniel; Chang, Chih-Hung

doi:10.1093/geront/45.suppl_1.27

Cited by 152 publications

(154 citation statements)

References 14 publications

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“…The QOL-AD associated most significantly with the Hamilton Depression Rating Scale, Neuropsychiatric Inventory, neuropsychological test that assesses various aspects of orientation, memory, language, praxis, attention, and executive function, and Rating of Awareness Deficits, even though they clear differ between studies 7,12,23 . QOL is weakly correlated with cognition, and in some studies behavioral and psychological disturbances are more strongly associated with QOL than cognition or functional limitations 4,12,23 . The patient's QOL version also revealed associated factors that explain higher variance percentages (48.3%) than the carerpatient QOL ratings (37.5%) 7 .…”

Section: Discussionmentioning

confidence: 96%

Coherence of brain electrical activity: a quality of life indicator in Alzheimer’s disease?Coerência da atividade elétrica cerebral: indicador da qualidade de vida na doença de Alzheimer?

Fonseca

Rezende

Giordano

2015

Arq. Neuro-Psiquiatr.

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Objective To investigate the relationships between quality of life (QOL) and clinical and electroencephalogram (EEG) aspects in patients with Alzheimer’s disease (AD). Method Twenty-eight patients with mild or moderate AD, 31 with Parkinson’s disease (PD), and 27 normal controls (NC) were submitted to: CERAD neuropsychological battery, Hamilton Depression and Anxiety Rating Scales, Functional Activities Questionnaire, QOL scale for patients with AD, and quantitative EEG measures. Results AD and PD patients had similar QOL (31.0 ± 5.8; 31.7 ± 4.8, respectively), worse than that of NC (37.5 ± 6.3). AD patients had lower global interhemispheric theta coherence (0.49 ± 0.04; 0.52 ± 0.05; 0.52 ± 0.05; respectively) than PD and NC. Multiple linear regression for QOL of AD patients revealed that global interhemispheric theta coherence, and Hamilton depression scores were significant factors (coefficients; 58.2 and -0.27, respectively; R2, 0.377). Conclusion Interhemispheric coherence correlates with QOL regardless of cognitive and functional variables and seems to be a neurophysiological indicator of QOL in AD patients.

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Section: Discussionmentioning

confidence: 96%

Coherence of brain electrical activity: a quality of life indicator in Alzheimer’s disease?Coerência da atividade elétrica cerebral: indicador da qualidade de vida na doença de Alzheimer?

Fonseca

Rezende

Giordano

2015

Arq. Neuro-Psiquiatr.

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“…Particular techniques are required to meaningfully communicate and interact with patients with dementia. When health professionals learn the appropriate techniques for communication and interaction, staff wellbeing is enhanced along with the patient's quality of life [8] . For a considerable time, studies have indicated a need for improved dementia education and training for nurses and other health care staff in acute services.…”

Section: Staff Knowledge and Understanding Of Dementia Care In Acute mentioning

confidence: 99%

A multicentre survey of acute hospital nursing staff training in dementia care

Coffey

Tyrrell

Buckley

et al. 2014

Clinical Nursing Studies

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Purpose: This paper reports on results of a study to identify education needs of nurses in acute care environments regarding dementia care in Ireland. Method:As part of a multicentre study of dementia prevalence and in-hospital course, a survey was conducted with nurses (n = 151) in six acute hospitals in the south of Ireland. Data were analysed using descriptive statistics. Findings:Despite the availability of a national dementia education programme across all care services, 83% of acute hospital nursing staff perceived that they had insufficient training in dementia care, reflecting the known poor uptake of offered dementia education in acute hospitals. Over two thirds of nurses felt that education on dementia specific communication strategies was insufficient or unavailable. Nurses also reported insufficient knowledge with regard to pain assessment in patients with dementia, or alternatives to physical or chemical restraint. This lack of knowledge has implications for quality of care and may have consequences for safety of patients with dementia in acute hospitals in Ireland. Conclusion:With the expected growth in prevalence of dementia worldwide, more people with dementia will access acute hospital care. Education and training to improve dementia care needs to be prioritised in acute hospitals at senior level.

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“…Previous studies of QOL of people with dementia have focused predominantly on individuals living in long-term care (Lyketsos et al, 2003) or assisted living facilities (Edelman, Fulton, Kuhn, & Chang, 2005) in urban or semi-urban areas. There is little published research involving non-institutionalized, community-dwelling persons with dementia in rural settings, and it is unknown whether the QOL of patients with dementia in a rural setting will resemble the QOL of patients in an urban environment.…”

Section: Definition Of Quality Of Lifementioning

confidence: 99%

Quality of life in early dementia: Comparison of rural patient and caregiver ratings at baseline and one year

et al. 2011

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This study examined change in patient and caregiver ratings of patient quality of life (QOL) over one year in individuals with dementia living in rural and remote settings. The sample was selected from non-institutionalized patients who were assessed at an interprofessional memory clinic. Measures of QOL, cognitive function, depression, and functional ability were completed by the patient. Caregivers completed measures of patient QOL and behavior, and their own burden and distress. At baseline (clinic day) 119 patients and family caregivers were assessed. Thirty-two families had complete data at clinic day and one-year follow-up. There was no significant change in either patient or caregiver-rated QOL over one year. Significant predictors of patient self-rated QOL were patient symptoms of depressed mood and functional ability at clinic day, and symptoms of depressed mood and clinic day QOL at one year. Significant predictors of caregiver-rated patient QOL were caregiver burden, patient functional ability, and symptom severity at clinic day, and caregiver burden at one year. Patient and caregiver ratings of patient QOL were moderately

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A Comparison of Three Methods of Measuring Dementia-Specific Quality of Life: Perspectives of Residents, Staff, and Observers

Abstract: Each perspective is relatively independent and somewhat unique. Measures that focus on specific aspects of quality of life may be more appropriate to use with assisted living residents than with residents of special care facilities.

Cited by 152 publications

References 14 publications

Coherence of brain electrical activity: a quality of life indicator in Alzheimer’s disease?Coerência da atividade elétrica cerebral: indicador da qualidade de vida na doença de Alzheimer?

Coherence of brain electrical activity: a quality of life indicator in Alzheimer’s disease?Coerência da atividade elétrica cerebral: indicador da qualidade de vida na doença de Alzheimer?

A multicentre survey of acute hospital nursing staff training in dementia care

Quality of life in early dementia: Comparison of rural patient and caregiver ratings at baseline and one year

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