A comparison of two models of follow-up care for adult survivors of childhood cancer

Quality of life among survivors of adolescent and young adult cancer in Canada: A Young Adults With Cancer in Their Prime (YACPRIME) study

“…In contrast, there has been considerable focus on identifying the optimal models of follow-up for survivors of childhood cancer to minimize the experience of late and long-term effects and to optimize QoL. 33 Findings from the current study highlight the significant impact of cancer on QoL for AYAs that persists long after treatment has ended and thus the urgent need for ongoing, specialized survivorship care. Advocacy efforts for the ongoing needs of AYA cancer survivors, including specialized follow-up care, are critically needed.…”

“…Traditional methods of survivorship care among AYA patients focus on the transfer of care to the community. In contrast, there has been considerable focus on identifying the optimal models of follow‐up for survivors of childhood cancer to minimize the experience of late and long‐term effects and to optimize QoL 33 . Findings from the current study highlight the significant impact of cancer on QoL for AYAs that persists long after treatment has ended and thus the urgent need for ongoing, specialized survivorship care.…”

Development and Validation of Models to Predict Poor Health-Related Quality of Life Among Adult Survivors of Childhood Cancer

“…Given that nearly 100% of cancer survivors develop a CHC by 50 years of age, 6 there is an urgent need to minimize the effects of subsequent CHCs on HRQOL. Ideally, survivors of childhood cancer should receive lifelong, cancer-specific follow-up care, 29 , 30 , 31 including the ongoing surveillance and prevention of recurrent and new cancers and of other CHCs. 32 However, less than 50% of survivors of childhood cancer attend long-term follow-up clinics, 33 , 34 and survivors demonstrate poor knowledge of their unique risks for treatment-related late effects, particularly among young adults.…”

Long term follow-up care in childhood cancer survivors. Initial experience in H. Inf. Univer. del niño Jesus

“…Un modelo basado en atención primaria y otro en el hospital. Dentro de la atención hospitalaria, el seguimiento puede realizarse en el centro de referencia en el que el paciente recibió el tratamiento, o realizar el seguimiento en centros o unidades especializados en largos supervivientes (Long Term Follow-up Clinic) (6). Por último, algunos centros han decidido implementar un modelo híbrido de atención hospitalaria: donde un oncólogo especializado en largos supervivientes y un psicólogo se integran en un programa específico dentro de un centro oncológico de referencia.…”