A comparison of women and men with spinal cord injury

Shackelford, Monisa; Farley, Thomas M.; Vines, Cheryl L

doi:10.1038/sj.sc.3100510

Cited by 49 publications

(24 citation statements)

References 4 publications

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“…32 This helps situate the data found in this review. As the primary caregivers are most often spouses, and the 80% of individuals with SCI are male, 33 it is not surprising that the majority of informal carers reported in the included studies are female.…”

Section: Description Of Caregiversmentioning

confidence: 96%

Caregiving services in spinal cord injury: a systematic review of the literature

2016

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,5 and the SCIRE Research TeamStudy design: PRISMA guided systematic review. Objectives: To summarize and characterize the literature pertaining to the nature of and factors associated with caregiving services provided to individuals with spinal cord injury (SCI) and identify areas for interventional research to address the needs of care recipients. Data Sources: PUBMED/Medline, CINAHL, PsycINFO, EMBASE, Social Services Abstracts and Social Work Abstracts databases. Methods: Qualitative and quantitative peer-reviewed publications that were written in English were included if they described the nature of caregiving services in SCI, factors influencing the use of and access to caregiving services or described interventions to address caregiving needs of individuals with SCI. Results: Sixteen papers were selected. The level of evidence for included studies ranged from 2 (highest) to 5 (lowest). Eleven studies described the nature of caregiving services, demographics of caregivers and recipients and factors associated with requiring care. Five studies described caregiving interventions. Conclusion: Caregiving services in SCI are predominantly provided by informal caregivers who are female. Quality of care from informal caregivers matches or exceeds quality of formal care. Total hours of care are dependent on the injury level and severity and care needs of the individual. Caregiver training is an important theme and has positive preliminary results on the quality of care provided. Intervention-based research is limited; further research to increase independence in activities of daily living and instrumental activities of daily living would reduce the need for caregiving hours.

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Section: Description Of Caregiversmentioning

confidence: 96%

Caregiving services in spinal cord injury: a systematic review of the literature

2016

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“…The absence of gender focus may be attributed to the assumption of asexuality or infantilism linked to disability, 21,58,71,72 the gender neutrality of health care, 6,72,73 unexamined assumptions of the nondisabled community, 74,75 the predominance of gender similarities over differences, 76,77 the salience of disability over gender 78 or the tendency to see disability as the dominant identity marker. 21,[79][80][81] SCI has multiple ramifications for personal, social, professional and domestic responsibilities and, while gender is not the only, and not even necessarily the most important, social identity, it is 'the most pervasive, visible and codified' .…”

Section: Discussionmentioning

confidence: 99%

Masculinity lost: a systematic review of qualitative research on men with spinal cord injury

Nolan

2013

Spinal Cord

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Study design: Systematic, thematic, narrative review of qualitative literature. Objectives: To systematically review qualitative research that explores the impact of spinal cord injury (SCI) on the gendered experience of men with SCI. Methods: A systematic search of databases and hand search of relevant journals to provide a thematic narrative review of articles, providing sufficient depth of information, relevant participant quotes and phenomenological insight into the gendered experience of men with SCI. Identified studies are summarised and common themes extracted and discussed in relation to relevant literature on masculinity, disability and health. Results: Eight papers, representing four separate studies met the review criteria for relevance and rigour. Three broad, overlapping themes describing the gendered experience of men with SCI were identified: 'lost masculinity', outlining the impact of SCI on traditional masculine identity, 'fighting back', describing the battle to regain and reclaim masculinity and integrate disability into a revised identity and 'beyond hegemony', referring to possibilities beyond adherence to traditional masculine scripts. Conclusion: This review demonstrates a lack of explicit focus on men as gendered beings within the available qualitative literature. The findings are consistent with the limited quantitative data, which indicates that grappling with altered gendered identity is a central feature of life for men with SCI. Masculine identity emerges in this review as vulnerable to the impact of SCI, and given the strong links identified between masculinity, rehabilitation and health, as an aspect of experience that warrants more attention than it has received.

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“…It is recognized that there may be differences in the incidence and the distribution of fractures in chronic SCI based on gender. 24,35 The sample of surgically managed fractures was small, limiting our ability to infer success or failure of surgical intervention. Finally, in the statistical analysis, no adjustments were done to account for multiple testing.…”

Section: Discussionmentioning

confidence: 99%

Surgical compared with nonsurgical management of fractures in male veterans with chronic spinal cord injury

et al. 2015

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Study design: Retrospective review of a clinical database. Objectives: To examine treatment modalities of incident appendicular fractures in men with chronic SCI and mortality outcomes by treatment modality. Setting: United States Veterans Health Administration Healthcare System. Methods: This was an observational study of 1979 incident fractures that occurred over 6 years among 12 162 male veterans with traumatic SCI of at least 2 years duration from the Veterans Health Administration (VA) Spinal Cord Dysfunction Registry. Treatment modalities were classified as surgical or nonsurgical treatment. Mortality outcomes at 1 year following the incident fracture were determined by treatment modality. Results: A total of 1281 male veterans with 1979 incident fractures met inclusion criteria for the study. These fractures included 345 (17.4%) upper-extremity fractures and 1634 (82.6%) lower-extremity fractures. A minority of patients (9.4%) were treated with surgery. Amputations and disarticulations accounted for 19.7% of all surgeries (1.3% of all fractures), and the majority of these were done more than 6 weeks following the incident fracture. There were no significant differences in mortality among men with fractures treated surgically compared with those treated nonsurgically. Conclusions: Currently, the majority of appendicular fractures in male patients with chronic SCI are managed nonsurgically within the VA health-care system. There is no difference in mortality by type of treatment.

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A comparison of women and men with spinal cord injury

Cited by 49 publications

References 4 publications

Caregiving services in spinal cord injury: a systematic review of the literature

Caregiving services in spinal cord injury: a systematic review of the literature

Masculinity lost: a systematic review of qualitative research on men with spinal cord injury

Surgical compared with nonsurgical management of fractures in male veterans with chronic spinal cord injury

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