Optimal health of people with multiple sclerosis (MS) can be promoted by patients' sharing of health information gained through periodic self-monitoring with their health-care providers. The purpose of this study was to develop a valid and reliable self-administered scale to obtain information about MS patients' health status and the impact of the disease on their daily lives. We named this scale "Monitoring My Multiple Sclerosis" (MMMS) Analysis of variance demonstrated that the total scale and the Physical subscale, but not the Relationships subscale, showed significantly worse functioning for patients with either moderate or severe disability as measured by the PDDS than for patients with mild disability (P < .001). The Cognitive/Mental subscale showed significantly worse functioning for patients with moderate disability than for patients with mild disability (P < .05). However, the Energy subscale showed significantly worse functioning among moderately disabled patients than among severely disabled patients (P < .01). Independent t tests demonstrated that patients classified as having secondary progressive multiple sclerosis had significantly worse scores on the total MMMS (P < .05) and the Physical subscale (P < .001) than those classified as having relapsing-remitting multiple sclerosis. The MMMS demonstrated satisfactory reliability and validity and is recommended for use by MS patients and their health-care providers as a mechanism to promote the sharing of health information, to the benefit of both patients and providers. Int J MS Care. 2011;13:137-145..
Multiple sclerosis (MS) is a chronic and progressive inflammatory autoimmune disease of the central nervous system (CNS), with onset usually occurring during young adulthood. 1 The disease is initially characterized by relapsing-remitting symptoms in most patients and may later take a progressive course. 2,3 The symptoms and signs of MS reflect the CNS area of neural impairment. 1 Neural impairment in the cerebrum affects cognition; cerebellum impairment affects balance and produces tremors; brainstem impairment is associated with diplopia, vertigo, and impaired speech and swallowing; and spinal cord impairment causes weakness, stiffness, painful spasms, bladder dysfunction, sexual dysfunction, and constipation. These symptoms are reflected in accumulating disabilities experienced by the person with MS that affect physical, social, and cognitive/mental functioning.Currently there is no cure for MS, although there are many partially effective treatments and interventions that focus on symptom management. Because of the great variability in symptoms and disabling conditions experienced by MS patients, ongoing monitoring of physical, social, and cognitive/mental functioning is important to determine both appropriate counseling and treatment and the effectiveness of such interventions. Self-monitoring by MS patients who then share health-related information with their health-care providers holds promise for controlling or alleviating symptoms, resulting in ...