A consideration of the social dimensions and implications of neuroimaging research in global health, as related to the theory-ladened and theory-generating aspects of technology

Pickersgill, Martyn

doi:10.1016/j.neuroimage.2021.118086

Cited by 4 publications

(3 citation statements)

References 33 publications

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“…A perception that mental ill-health can be recognised and potentially comprehended is suggestive of the potential acceptability of MMH research. However, where this is grounded exclusively in the concerns and categorisations of practitioners in the Global North, this might not align with pre-existing community perspectives of the nature of ill-health and distress in Malawi – and misaligned perspectives may compromise the autonomy of potential research participants ( Pickersgill, 2021 ).…”

Section: Resultsmentioning

confidence: 99%

Maternal mental health research in Malawi: Community and healthcare provider perspectives on acceptability and ethicality

Ndambo¹,

Pickersgill²,

Bunn³

et al. 2023

SSM - Mental Health

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Section: Resultsmentioning

confidence: 99%

Maternal mental health research in Malawi: Community and healthcare provider perspectives on acceptability and ethicality

Ndambo¹,

Pickersgill²,

Bunn³

et al. 2023

SSM - Mental Health

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“…However, a diagnosis may also be perceived as a limiting label, devalue pre-existing understandings of the experience, and increase stigmatisation for the individual and the family. More generally, psychiatric diagnosis can act as a vehicle for conceptions of self and society that emphasise cultural norms within HICs, and require careful consideration when used in the majority world [ 28 , 29 ]—not least given concerns about biomedicalisation in global mental health [ 30 ]. Work conducted in some LMICs about the impact of a diagnosis of psychosis suggests that paced, individualised, and collaborative approaches are most valued [ 31 ].…”

Section: Methodsmentioning

confidence: 99%

Psychosis Recovery Orientation in Malawi by Improving Services and Engagement (PROMISE) protocol

Lawrie,

Hanlon,

Manda-Taylor

et al. 2023

PLoS ONE

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Malawi has a population of around 20 million people and is one of the world’s most economically deprived nations. Severe mental illness (largely comprising psychoses and severe mood disorders) is managed by a very small number of staff in four tertiary facilities, aided by clinical officers and nurses in general hospitals and clinics. Given these constraints, psychosis is largely undetected and untreated, with a median duration of untreated psychosis (DUP) of around six years. Our aim is to work with people with lived experience (PWLE), caregivers, local communities and health leaders to develop acceptable and sustainable psychosis detection and management systems to increase psychosis awareness, reduce DUP, and to improve the health and lives of people with psychosis in Malawi. We will use the UK Medical Research Council guidance for developing and evaluating complex interventions, including qualitative work to explore diverse perspectives around psychosis detection, management, and outcomes, augmented by co-design with PWLE, and underpinned by a Theory of Change. Planned deliverables include a readily usable management blueprint encompassing education and community supports, with an integrated care pathway that includes Primary Health Centre clinics and District Mental Health Teams. PWLE and caregivers will be closely involved throughout to ensure that the interventions are shaped by the communities concerned. The effect of the interventions will be assessed with a quasi-experimental sequential implementation in three regions, in terms of DUP reduction, symptom remission, functional recovery and PWLE / caregiver impact, with quality of life as the primary outcome. As the study team is focused on long-term impact, we recognise the importance of having embedded, robust evaluation of the programme as a whole. We will therefore evaluate implementation processes and outcomes, and cost-effectiveness, to demonstrate the value of this approach to the Ministry of Health, and to encourage longer-term adoption across Malawi.

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“…Thus, the governance of ethical issues related to BCIs in these regions should be adapted to their unique contexts. It is commonly recommended to engage local communities and researchers while fostering collaboration with other regions (Pickersgill, 2021;Shen et al, 2021). Furthermore, R&D and production companies should receive subsidies to develop BCI products, allowing them to forgo economic benefits while remaining profitable.…”

Section: Pg For Read-out Bcismentioning

confidence: 99%

The functional differentiation of brain–computer interfaces (BCIs) and its ethical implications

Sun,

2023

Humanit Soc Sci Commun

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The growth of research and applications of brain–computer interfaces (BCIs) has spurred extensive discussion about their ethical implications. However, most existing research has primarily examined ethical issues related to BCIs from a general perspective, with little attention paid to the specific functions of the technology. This has resulted in a mismatch between governance and ethical issues, due to the lack of differentiation between write-in and read-out BCIs. By providing detailed descriptions of the functions and technical approaches of both write-in and read-out BCIs, we argue that ethical governance of BCIs should follow the principle of precise governance and develop refined governance strategies for different functional types of BCIs.

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A consideration of the social dimensions and implications of neuroimaging research in global health, as related to the theory-ladened and theory-generating aspects of technology

Cited by 4 publications

References 33 publications

Maternal mental health research in Malawi: Community and healthcare provider perspectives on acceptability and ethicality

Maternal mental health research in Malawi: Community and healthcare provider perspectives on acceptability and ethicality

Psychosis Recovery Orientation in Malawi by Improving Services and Engagement (PROMISE) protocol

The functional differentiation of brain–computer interfaces (BCIs) and its ethical implications

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