A critical commentary on ‘rapid-onset gender dysphoria’

Ashley, Florence

doi:10.1177/0038026120934693

Cited by 89 publications

(62 citation statements)

References 60 publications

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“…As an example, significant controversy erupted in 2019 when a researcher published a controversial study that presented a medically unsubstantiated term, rapid-onset gender dysphoria , arguing that trans and nonbinary (trans) identity is a social and peer contagion [ 2 ]. In response, several trans-identified community-engaged researchers challenged these findings on Twitter to draw attention to the study’s methodological flaws and its potential harm to trans-people [ 3 - 5 ]. Scientific critiques of this study were later published by researchers in peer-reviewed journals and again shared through social media and web-based news media channels, leading to corrections made to the original article [ 6 , 7 ].…”

Section: Introductionmentioning

confidence: 99%

“…In response, several trans-identified community-engaged researchers challenged these findings on Twitter to draw attention to the study’s methodological flaws and its potential harm to trans-people [ 3 - 5 ]. Scientific critiques of this study were later published by researchers in peer-reviewed journals and again shared through social media and web-based news media channels, leading to corrections made to the original article [ 6 , 7 ]. This is only one striking example demonstrating the transformative potential of community-engaged digital advocacy.…”

Section: Introductionmentioning

confidence: 99%

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Examining TikTok’s Potential for Community-Engaged Digital Knowledge Mobilization With Equity-Seeking Groups

MacKinnon¹,

Kia²,

Lacombe‐Duncan³

2021

J Med Internet Res

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Social media is increasingly being leveraged by researchers to engage in public debates and rapidly disseminate research results to health care providers, health care users, policy makers, educators, and the general public. This paper contributes to the growing literature on the use of social media for digital knowledge mobilization, drawing particular attention to TikTok and its unique potential for collaborative knowledge mobilization with underserved communities who experience barriers to health care and health inequities (eg, equity-seeking groups). Setting the TikTok platform apart from other social media are the unique audiovisual video editing tools, together with an impactful algorithm, that make knowledge dissemination and exchange with large global audiences possible. As an example, we will discuss digital knowledge mobilization with trans and nonbinary (trans) communities, a population that experiences barriers to health care and is engaged in significant peer-to-peer health information sharing on the web. To demonstrate, analytics data from 13 selected TikTok videos on the topic of research on gender-affirming medicine (eg, hormonal therapy and surgeries) are presented to illustrate how knowledge is disseminated within the trans community via TikTok. Considerations for researchers planning to use TikTok for digital knowledge mobilization and other related community engagement with equity-seeking groups are also discussed. These include the limitations of TikTok analytics data for measuring knowledge mobilization, population-specific concerns related to community safety on social media, the spread of disinformation, barriers to internet access, and commercialization and intellectual property issues. This paper concludes that TikTok is an innovative social media platform that presents possibilities for achieving transformative, community-engaged knowledge mobilization among researchers, underserved health care users, and their health care providers, all of whom are necessary to achieve better health care and population health outcomes.

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Section: Introductionmentioning

confidence: 99%

Section: Introductionmentioning

confidence: 99%

Examining TikTok’s Potential for Community-Engaged Digital Knowledge Mobilization With Equity-Seeking Groups

MacKinnon¹,

Kia²,

Lacombe‐Duncan³

2021

J Med Internet Res

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“…In part due to the absence of trans voices leading trans research teams, cisgender researchers doing trans research often fail to consider the ethical and material implications of their study designs, methods, and underlying assumptions. [51,60,66,79,[213][214][215][216][217][218][219][220][221][222][223][224] These researchers, and the informaticists who codify their assumptions, have contributed and continue to contribute to the epidemics of transphobic violence we see today. [1,3,10,12,14,52,55,[225][226][227][228][229] The two-step validation process proposed above meets the needs of patients, clinicians, and researchers, and is preferred by all three groups.…”

Section: Discussionmentioning

confidence: 99%

Transgender Data Collection in the Electronic Health Record (EHR): Current Concepts and Issues

Kronk¹,

Everhart²,

Ashley³

et al. 2021

Preprint

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There are over one million transgender people living in the United States and 33% report negative experiences with a healthcare provider, many of which are connected to data representation in electronic health records (EHRs). We present recommendations and common pitfalls involving sex- and gender-related data collection in EHRs. Our recommendations leverage the needs of patients, medical providers, and researchers to optimize both individual patient experiences and the efficacy and reproducibility of EHR population-based studies. We also briefly discuss adequate additions to the EHR considering name and pronoun usage. We add the disclaimer that these questions are more complex than commonly assumed. We conclude that collaborations between local transgender and gender-diverse persons and medical providers as well as open inclusion of transgender and gender-diverse individuals on terminology and standards boards is crucial to shifting the paradigm in transgender and gender-diverse health.

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“…Recent scholarship on tensions between the feminist and the trans* projects has analysed a specific format that these tensions have acquired in mostly Anglophone settings: the so-called "TERF wars" (Pearce et al, 2020). This scholarship has a strong focus on opposition to trans* rights, and related to that also a strong re-active component, "debunking" concepts that are central to opposition to trans* rights, such as autogynephilia (Serano, 2020), rapid-onset gender dysphoria (Ashley, 2020) and detransition (Hildebrand-Chupp, 2020). In contrast, our thematic issue presents a more forward-looking perspective on the possibility of alliances between the trans project and other social justice projects such as the feminist project and the disability justice project.…”

Section: The Potential and Challenges Of Organising And Mobilisationmentioning

confidence: 99%

Trans* Politics: Current Challenges and Contestations Regarding Bodies, Recognition, and Trans* Organising

Verloo

Vleuten

2020

PaG

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This thematic issue analyses trans* politics, and the problems and policies articulated by societal, political and legal actors in national and international contexts in Europe and Latin America. Trans* issues are at the heart of politics concerning sex and gender, because the sex binary ordering is producing the categories, identities, and related social relationships around which gender inequalities are constructed. Scholarship on trans* politics promises to bring more fundamental knowledge about how the gender binary organisation of our societies is (dis)functional, and is therefore relevant and beneficial for all gender and politics scholarship. Contestations around trans* issues continue developing, between state and non-state actors, transgender people and medical professionals, and also among and between social movements. This thematic issue is our contribution to dimensions of trans* politics that revolve around the issue of sexed and gendered bodies (the making and unmaking of “deviant” bodies, non-binary language about bodies, and voice given in bodily re/assignments), the limits of recognition (undermining of trans* agency, persistent binary thinking, and disconnect with material dimensions of gender justice), and the potential of trans* movements (processes and practices through which political claims are generated in the movement, a more forward looking and pro-active perspective on the possibility of alliances between the feminist and the trans* projects, and between the trans* project and the disability project, and alliances of movement actors with institutional power holders such as international courts).

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A critical commentary on ‘rapid-onset gender dysphoria’

Cited by 89 publications

References 60 publications

Examining TikTok’s Potential for Community-Engaged Digital Knowledge Mobilization With Equity-Seeking Groups

Examining TikTok’s Potential for Community-Engaged Digital Knowledge Mobilization With Equity-Seeking Groups

Transgender Data Collection in the Electronic Health Record (EHR): Current Concepts and Issues

Trans* Politics: Current Challenges and Contestations Regarding Bodies, Recognition, and Trans* Organising

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