A design-led inquiry into personhood in dementia

Wallace, Jayne; Wright, Peter; McCarthy, John; Green, David Philip; Thomas, James M.; Olivier, Patrick

doi:10.1145/2468356.2479560

Cited by 24 publications

(10 citation statements)

References 27 publications

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“…For example, in recent projects where we have been working with people with dementia [13,14] (see Figures 1,2 7 & 9) we have immersed ourselves in the clinical and social aspects of the disease as much as has been possible (volunteer work with Alzheimer's Society day care centers, artist placement with clinicians and philosophers of dementia care, time spent with creative dementia groups, reading texts relating to clinical, social and relational aspects of dementia) and have sought to gain an understanding and empathy for different aspects of how life and self are affected. We create probes that are laden with a particular theory or insight, gained firsthand, and explore specific aspects of this.…”

Section: Design Probes For Empathetic Engagementmentioning

confidence: 99%

Making design probes work

Wallace

McCarthy

Wright

et al. 2013

Proceedings of the SIGCHI Conference on Human Factors in Computing Systems

Self Cite

156

107

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Probes have been adopted with great enthusiasm in both Design and HCI. The heterogeneity with which they have been used in practice reflects how the method has proved elusive for many. Originators and commentators of probes have discussed misinterpretations of the method, highlighting the lack of accounts that describe in detail the design of probes and their use with participants. This paper discusses our particular use of Design Probes as directed craft objects that are both tools for design and tools for exploration across a number of projects, spanning a decade, centered on self-identity and personal significance. In offering an example of what a framework for probe design and use might look like, we attempt to address the identified lacuna, providing a synthetic account of probe design and use over an extended period and conceptualizing the relationship between the properties of probes and their use in design projects.

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Section: Design Probes For Empathetic Engagementmentioning

confidence: 99%

Making design probes work

Wallace

McCarthy

Wright

et al. 2013

Proceedings of the SIGCHI Conference on Human Factors in Computing Systems

Self Cite

156

107

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show abstract

“…Third, reflection is often described as providing increased self knowledge, a benefit cited in 15 of the papers we reviewed [1,13,25,26,31,52,55,56,57,58,59,63,72,97,103]. Such knowledge is often cited as motivation for work in both health and, moreover, in personal informatics.…”

Section: Reflection and Self Knowledgementioning

confidence: 99%

“…First, related literature on reminiscence [8,45] and privacy [4] continually focusing on negative life events and using them to justify current behavior [99].While the pieces we reviewed that discussed reminiscence at times seemed to conflated it with reflection [e.g., 42,97], the authors of this paper suggest the two as distinct processes. Reminiscence focuses on the recall of a specific event or events in one's past.…”

Section: The Dark Side Of Reflectionmentioning

confidence: 99%

Reviewing reflection

Baumer

Khovanskaya

Matthews

et al. 2014

Proceedings of the 2014 Conference on Designing Interactive Systems

195

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Designers have demonstrated an increased interest in designing for reflection. However, that work currently occurs under a variety of diverse auspices. To help organize and investigate this literature, this paper present a review of research on systems designed to support reflection. Key findings include that most work in this area does not actually define the concept of reflection. We also find that most evaluations do not focus on reflection per se rather but on some other outcome arguably linked to reflection. Our review also describes the relationship between reflection and persuasion evidenced implicitly by both rhetorical motivations for and implementation details of system design. After discussing the significance of our findings, we conclude with a series of recommendations for improving research on and design for reflection.

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“…The project sought to develop a richer understanding of the experience of personhood in dementia and the potential for design to enrich that experience [42].…”

Section: Case Study 3: Making As Co-design With Peoplementioning

confidence: 99%

“…Here, making refers to hobby-based creative activities, rather than expert handcraft [1] or do-ityourself (DIY; [30]) repair, reuse, or customization of existing artifacts [30]. Examples of making also include the creation of digital portraits in the process of recovery from experiences of domestic violence [4], the completion of design probes to foreground experiences of personhood when living with Dementia [42], and the creation of textiles incorporating wearable computing to motivate and mentor at-risk children [18]. This work draws on creative arts practices and involves participants engaging in creative tasks, either to make new art objects or modify existing ones, with the aim of informing and better understanding technology design.…”

Section: Introductionmentioning

confidence: 99%

Making wellbeing

Marshall

Thieme

Wallace

et al. 2014

Proceedings of the 2014 Conference on Designing Interactive Systems

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We consider the role of making in current HCI design practices and how it may affect the wellbeing of those who participate in these processes. Through an exploration of psychological concepts of wellbeing and their connection to making experiences, we suggest that making can facilitate and support both hedonic and eudemonic facets of wellbeing. We illustrate this in the context of three case studies that engaged people in creative making activities as part of user-centered design processes. Based on our experiences, we argue that researchers ought to be mindful of the potential impact our design processes have on our participants and provide considerations for those designing for and with participants where wellbeing is a concern.

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A design-led inquiry into personhood in dementia

Cited by 24 publications

References 27 publications

Making design probes work

Making design probes work

Reviewing reflection

Making wellbeing

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