A disease-specific psychosocial questionnaire for Parkinson?s disease caregivers

Spliethoff-Kamminga, N. G. A.; Zwinderman, Aeilko H.; Springer, M. P.; Roos, Raymund A.C.

doi:10.1007/s00415-003-0165-6

Cited by 23 publications

(21 citation statements)

References 27 publications

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“…The caregiving role by relatives of bipolar patients is very demanding, frequently distressing and harmful to health and quality of life [13]. Caring for a family member with Parkinson's disease is a long, stressful process that imposes heavy demands on emotional and physical resources and thus influences quality of life [14].…”

Section: Introductionmentioning

confidence: 99%

Quality of life among caregivers of patients with eating disorders

et al. 2011

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Section: Introductionmentioning

confidence: 99%

Quality of life among caregivers of patients with eating disorders

et al. 2011

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“…As a result, some researchers create their own cut-off points, leading to inconsistencies and misleading conclusions. Some consider diseasespecific instruments more effective (Spliethoff-Kamminga et al, 2003) as they consider objective burden to vary between long term conditions (Bayen et al, 2015).…”

Section: Discussionmentioning

confidence: 99%

“…BELA-A-k is designed to measure psychosocial problems and need for help in people affected by PD (Spliethoff-Kamminga et al, 2003). It can be applied to both patients and carers and it is a part of PD diagnostic routine in Germany.…”

Section: Disease-specific Measuresmentioning

confidence: 99%

Measuring carer burden in informal carers of patients with long-term conditions

Kudra

Lees

Morrell-Scott

2017

Br J Community Nurs

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Introduction: The aim of this literature review is to identify the most common tools used to measure burden in carers of people with Parkinson's Disease (PD), Heart Failure (HF), Multiple Sclerosis (MS) and Chronic Obstructive Pulmonary Disease (COPD).Method: Databases such as Medline, PsycINFO, CINAHL and Academic SearchComplete were searched. Studies in which carer burden was measured were included.Results: Zarit Burden Inventory and Caregiver Reaction Assessment were most commonly used to measure carer burden, regardless of the chronic condition. A wide range of other instruments were also used. Conclusion: Even though a range of tools are available, further improvements are necessary in order to enable healthcare professionals to identify carers experiencing high burden.

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“…Parkinson’s caregivers have been recognized to play an important role in supporting patients, particularly in advanced stages of the disease leading a reduction of the rates of institutionalization and number of hospitalizations [10, 11]. However, caring for a family member with PD has been considered as a stressful process that affects negatively physical, psychological and socioeconomic conditions of caregivers [12]. It has been reported that caring a patients with PD is strongly related to poor psychosocial outcomes including high levels of burden, depression, anxiety, mood disturbances and emotional distress [13–15].…”

Section: Introductionmentioning

confidence: 99%

“…More recently several instruments such as the BELA-A-K [12] and the Scale of Quality of Life Care-Givers (SQLC) [22] have been specifically developed for caregivers of people with PD. Although these measures provide clinically important information of physical and psychological factors affecting to the role of caregivers, their feasibility has not formally been reported for English and Spanish speaking population [23].…”

Section: Introductionmentioning

confidence: 99%

Spanish version of the Parkinson’s Disease Questionnaire–Carer (PDQ-Carer)

Ferrer‐Cascales

Cabañero‐Martínez

Sánchez‐SanSegundo

et al. 2016

Health Qual Life Outcomes

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BackgroundParkinson’s caregivers are frequently affected by a range of physical and psychological factors affecting to the quality of life (QoL) of patients and caregivers. However, while there are well-validated QoL instruments for patients, few specific measures has been developed for caregivers of patients with PD. This study examined the psychometric properties of the Spanish version of the Parkinson Disease Questionnaire–Carer (PDQ-Carer) for use in PD caregivers.MethodsThe PDQ-Carer and the Short Form-36 Health Survey (SF-36) were completed by sample of 73 caregivers of patients with PD in Spain (71.8 % females; 63.6 ± 12.3 years old).ResultsPsychometric analysis confirmed the reliability and validity of the Spanish version of the PDQ-Carer. The internal consistency was found to be satisfactory for the four PDQ-Carer domains: Personal and Social Activities, Depression and Anxiety, Self-care and Stress with Cronbach’s alpha values ranging 0.80 to 0.95. The PDQ-Carer was significantly correlated with the eight SF-36 domains (r = -0.31 to -0.59, p < 0.001) supporting the concurrent validity of the instrument.ConclusionsOverall, these results provide preliminary evidence of the utility of the Spanish version of the PDQ-Carer in non-professionals caregivers

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A disease-specific psychosocial questionnaire for Parkinson?s disease caregivers

Abstract: The BELA-A-k is a relevant, reliable and valid measure for assessing psychosocial problems and need for help of PD-caregivers.

Cited by 23 publications

References 27 publications

Quality of life among caregivers of patients with eating disorders

Quality of life among caregivers of patients with eating disorders

Measuring carer burden in informal carers of patients with long-term conditions

Spanish version of the Parkinson’s Disease Questionnaire–Carer (PDQ-Carer)

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