A distance‐based living donor kidney education program for Black wait‐list candidates: A feasibility randomized trial

Sieverdes, John C.; Mueller, Martina; Nemeth, Lynne S.; Patel, Sachin; Baliga, Prabhakar K.; Treiber, Frank A.

doi:10.1111/ctr.14426

Cited by 6 publications

(8 citation statements)

References 30 publications

Supporting

Mentioning

Contrasting

Order By: Relevance

“…Although the trial's primary and secondary findings have been published elsewhere, a brief summary is included to support our findings [19]. Program tolerability was found to be high, with 95.8% retention, though fidelity was found to need improvements, with only 78.9% of the videos being completed and with 72.1% video chat adherence.…”

Section: Summary Of Primary and Secondary Findingssupporting

confidence: 52%

“…Phase two used a 1-arm, proof-of-concept trial [18] with successive iterative refinement from focus group feedback. The third phase used a 2-arm randomized feasibility design with survey measures and post-study focus groups [19]. The primary outcomes for the third phase and expanded description of the protocol are published elsewhere [19].…”

Section: Methodsmentioning

confidence: 99%

“…The third phase used a 2-arm randomized feasibility design with survey measures and post-study focus groups [19]. The primary outcomes for the third phase and expanded description of the protocol are published elsewhere [19]. In brief, the primary outcomes focused on (1) program tolerability measured using attrition rates, (2) program fidelity measured by completion rates of video education modules, attendance to the online video chat sessions and (3) change in LDKT attitudinal and knowledge questionnaires.…”

Section: Methodsmentioning

confidence: 99%

“…In brief, the primary outcomes focused on (1) program tolerability measured using attrition rates, (2) program fidelity measured by completion rates of video education modules, attendance to the online video chat sessions and (3) change in LDKT attitudinal and knowledge questionnaires. Secondary outcomes reported transplant center data including the number of screening calls, LDKT evaluations, and completed LDKTs between study arms [19]. This article reports the tertiary acceptability outcomes from the feasibility trial including participant perspectives pertaining to the LOVED app's usability, program topics, group and navigator interactions, positive and negative aspects of the trial and insight into any experiential behavior changes.…”

Section: Methodsmentioning

confidence: 99%

“…The education content was structured using weekly topics to enhance knowledge, dispel myths and build rapport with other group members during the first four weeks (i.e., 3 video education modules (12 total videos) and 4 video chat sessions). The final four weeks' content focused on skill development, practice asking others during video chats sessions and brainstorming individual strategies to initiate discussions with PDs (i.e., 3 video education modules (11 total videos) and 4 video chat sessions) Participants were also encouraged to self-initiate identifying and speaking to PDs [19]. Strategies included direct methods such as asking PDs individually, in groups and indirect methods such as email, social media (e.g., Facebook, Twitter, etc.)…”

Section: Loved Interventionmentioning

confidence: 99%

See 4 more Smart Citations

Acceptability of a Mobile-Health Living Kidney Donor Advocacy Program for Black Wait-Listed Patients

Sieverdes

Nemeth

Mueller

et al. 2021

IJERPH

Self Cite

View full text Add to dashboard Cite

Marked racial disparities exist in rates of living donor kidney transplantation (LDKT). The Living Organ Video Educated Donors (LOVED) program is a distance-based, mobile health program designed to help Black kidney transplant wait-list patients advocate for a living donor. This study reported on the acceptability outcomes to aid in future refinements. Participants were randomized to LOVED (n = 24, mean age = 50.9 SD (9.2) years), male = 50%) and usual care groups (n = 24 (mean age 47.9 SD (10.0), male 50%). Four LOVED groups completed an eight-week intervention that consisted of six online video education modules and eight group video chat sessions led by a Black navigator. Qualitative analysis from post-study focus groups resulted in six themes: (1) video chat sessions provided essential support and encouragement, (2) videos motivated and made participants more knowledgeable, (3) connectivity with tablets was acceptable in most areas, (4) material was culturally sensitive, (5) participation was overall a positive experience and (6) participants were more willing to ask for a kidney now. The video chat sessions were pertinent in participant satisfaction, though technology concerns limited program implementation. Results showed that the LOVED program was acceptable to engage minorities in health behavior changes for living donor advocacy but barriers exist that require future refinement.

show abstract

Section: Summary Of Primary and Secondary Findingssupporting

confidence: 52%

Section: Methodsmentioning

confidence: 99%

Section: Methodsmentioning

confidence: 99%

Section: Methodsmentioning

confidence: 99%

Section: Loved Interventionmentioning

confidence: 99%

See 3 more Smart Citations

Acceptability of a Mobile-Health Living Kidney Donor Advocacy Program for Black Wait-Listed Patients

Sieverdes

Nemeth

Mueller

et al. 2021

IJERPH

Self Cite

View full text Add to dashboard Cite

show abstract

Neighborhood Segregation and Access to Live Donor Kidney Transplantation

Li,

Menon,

Kim

et al. 2024

JAMA Intern Med

View full text Add to dashboard Cite

ImportanceIdentifying the mechanisms of structural racism, such as racial and ethnic segregation, is a crucial first step in addressing the persistent disparities in access to live donor kidney transplantation (LDKT).ObjectiveTo assess whether segregation at the candidate’s residential neighborhood and transplant center neighborhood is associated with access to LDKT.Design, Setting, and ParticipantsIn this cohort study spanning January 1995 to December 2021, participants included non-Hispanic Black or White adult candidates for first-time LDKT reported in the US national transplant registry. The median (IQR) follow-up time for each participant was 1.9 (0.6-3.0) years.Main Outcome and MeasuresSegregation, measured using the Theil H method to calculate segregation tertiles in zip code tabulation areas based on the American Community Survey 5-year estimates, reflects the heterogeneity in neighborhood racial and ethnic composition. To quantify the likelihood of LDKT by neighborhood segregation, cause-specific hazard models were adjusted for individual-level and neighborhood-level factors and included an interaction between segregation tertiles and race.ResultsAmong 162 587 candidates for kidney transplant, the mean (SD) age was 51.6 (13.2) years, 65 141 (40.1%) were female, 80 023 (49.2%) were Black, and 82 564 (50.8%) were White. Among Black candidates, living in a high-segregation neighborhood was associated with 10% (adjusted hazard ratio [AHR], 0.90 [95% CI, 0.84-0.97]) lower access to LDKT relative to residence in low-segregation neighborhoods; no such association was observed among White candidates (P for interaction = .01). Both Black candidates (AHR, 0.94 [95% CI, 0.89-1.00]) and White candidates (AHR, 0.92 [95% CI, 0.88-0.97]) listed at transplant centers in high-segregation neighborhoods had lower access to LDKT relative to their counterparts listed at centers in low-segregation neighborhoods (P for interaction = .64). Within high-segregation transplant center neighborhoods, candidates listed at predominantly minority neighborhoods had 17% lower access to LDKT relative to candidates listed at predominantly White neighborhoods (AHR, 0.83 [95% CI, 0.75-0.92]). Black candidates residing in or listed at transplant centers in predominantly minority neighborhoods had significantly lower likelihood of LDKT relative to White candidates residing in or listed at transplant centers located in predominantly White neighborhoods (65% and 64%, respectively).ConclusionsSegregated residential and transplant center neighborhoods likely serve as a mechanism of structural racism, contributing to persistent racial disparities in access to LDKT. To promote equitable access, studies should assess targeted interventions (eg, community outreach clinics) to improve support for potential candidates and donors and ultimately mitigate the effects of segregation.

show abstract