A Family History Demonstration Project Among Women in an Urban Appalachian Community

Wallace, Jody P.; Baugh, Carol; Cornett, Sandra; Hood, Bonnie; Prows, Cynthia A.; Ryan, Norma; Warren, Nancy Steinberg; Au, Margaret G.; Brown, Morgan; Glandorf, Kathy; Jarrell, Judy L.; Nolan, Timothy L; Sorrell, Jeff; Walters, Jennifer; Myers, Melanie F.

doi:10.1353/cpr.0.0061

Cited by 16 publications

(3 citation statements)

References 9 publications

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“…Although poor relationships with family members and lack of health information may be barriers to collecting FHH information (Wallace et al, 2009), people may also enjoy discussing FHH topics with family members (Petruccio et al, 2008). Reeder et al (2013) found that sharing health information within a family depended on relationship quality, type of information, and stage in the life course.…”

Section: Family Communication Researchmentioning

confidence: 99%

The Context of Collecting Family Health History: Examining Definitions of Family and Family Communication about Health among African American Women

Thompson

Seo

Griffith

et al. 2015

Journal of Health Communication

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Public health initiatives encourage the public to discuss and record family health history (FHH) information, which can inform prevention and screening for a variety of conditions. Most research on FHH discussion and collection, however, has involved predominantly White participants and has not considered lay definitions of family or family communication patterns about health. This qualitative study of 32 African American women, 16 with a history of cancer, analyzed participants’ definitions of family, family communication about health, and collection of FHH information. “Family” was defined by biological relatedness, social ties, interactions, and proximity. Several participants noted using different definitions of family for different purposes (e.g. biomedical vs. social). Health discussions took place between and within generations and were influenced by structural relationships (e.g. sister) and characteristics of family members (e.g. trustworthiness). Participants described managing tensions between sharing health information and protecting privacy, especially related to generational differences in sharing information, fear of familial conflict or gossip, and denial (sometimes described as refusal to “own” or “claim” a disease). Few participants reported that anyone in their family kept formal FHH records. Results suggest FHH initiatives should address family tensions and communication patterns that affect discussion and collection of FHH information.

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Section: Family Communication Researchmentioning

confidence: 99%

The Context of Collecting Family Health History: Examining Definitions of Family and Family Communication about Health among African American Women

Thompson

Seo

Griffith

et al. 2015

Journal of Health Communication

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“…Due to the importance of family history assessment and its lack of systematic documentation, several efforts have been undertaken to develop digital family history tools to improve the documentation and use of family history [9]. Although these tools have mostly been developed as public or patient-facing tools, there is strong evidence to suggest that they may not be accessible to a large portion of the general population with limited health literacy or computer skills, due to high reading grade demands and navigational challenges [10][11][12][13][14].…”

Section: Introductionmentioning

confidence: 99%

Designing and Evaluating a Digital Family Health History Tool for Spanish Speakers

Diez

Cortés

Trevino-Talbot

et al. 2019

IJERPH

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Digital family health history tools have been developed but few have been tested with non-English speakers and evaluated for acceptability and usability. This study describes the cultural and linguistic adaptation and evaluation of a family health history tool (VICKY: VIrtual Counselor for Knowing Your Family History) for Spanish speakers. In-depth interviews were conducted with 56 Spanish-speaking participants; a subset of 30 also participated in a qualitative component to evaluate the acceptability and usability of Spanish VICKY. Overall, agreement in family history assessment was moderate between VICKY and a genetic counselor (weighted kappa range: 0.4695 for stroke—0.6615 for heart disease), although this varied across disease subtypes. Participants felt comfortable using VICKY and noted that VICKY was very likeable and possessed human-like characteristics. They reported that VICKY was very easy to navigate, felt that the instructions were very clear, and thought that the time it took to use the tool was just right. Spanish VICKY may be useful as a tool to collect family health history and was viewed as acceptable and usable. The study results shed light on some cultural differences that may influence interactions with family history tools and inform future research aimed at designing and testing culturally and linguistically diverse digital systems.

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“…Proposed relationships in these conceptual models could be tested using longitudinal data to help evaluate possible causal association of predictors such as sociodemographics and family communication on FHH beliefs and other salient FHH outcomes. These efforts also must be considered in the context of national surveys showing that most Americans overestimate their cancer risk relative to other diseases [65, 83-86]. Thus, it might be optimal to consider a broader health promotion context in which general health information, not cancer-specific, is the goal.…”

Section: Discussionmentioning

confidence: 99%

Factors Influencing Not Perceiving Family Health History Assessments as Important: Opportunities to Improve Dissemination of Evidence-Based Population Screening for Cancer

Allen

Escoffery

Haardörfer

et al. 2018

Public Health Genomics

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Introduction: Public willingness to collect personal family health history (FHH) assessments is integral to implement population screening to identify those at high cancer risk who could benefit most from lifesaving interventions. Yet, surprisingly little consideration has been given to factors associated with the public’s perceived importance of FHH in the context of cancer. Methods: Using data from the 2013 Health Information National Trends survey, we assessed the association of intrapersonal (e.g., cancer worry), sociodemographic (e.g., education), and interpersonal-level factors (e.g., family trust) associated with not perceiving FHH assessment to be very important for personal health. Associations were tested with bivariate analyses and hierarchical logistic regression. Results: Of the 3,007 respondents, 32.7% reported perceiving FHH as not very important to their health. Whites (p < 0.001), males (p = 0.003), and those born in the United States (p = 0.004) were most likely to perceive FHH as not very important. Those who were least worried about cancer and perceived that cancer risk could not be lowered also viewed FHH as not very important (p = 0.002, p = 0.018, respectively). In hierarchical regression analyses, the association of low cancer worry remained significant after accounting for sociodemographic and interpersonal factors. The addition of sociodemographic factors modestly improved the model; the addition of interpersonal factors did not improve the model. Conclusions: A sizable proportion of the public does not perceive FHH to be very important, may be hard to reach, and impede implementation of population screening guidelines for inherited cancers. Campaigns to increase the perceived value of FHH assessment may need to be tailored to demographic subgroups, emphasize cancer prevention, and encourage family communication.

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A Family History Demonstration Project Among Women in an Urban Appalachian Community

Cited by 16 publications

References 9 publications

The Context of Collecting Family Health History: Examining Definitions of Family and Family Communication about Health among African American Women

The Context of Collecting Family Health History: Examining Definitions of Family and Family Communication about Health among African American Women

Designing and Evaluating a Digital Family Health History Tool for Spanish Speakers

Factors Influencing Not Perceiving Family Health History Assessments as Important: Opportunities to Improve Dissemination of Evidence-Based Population Screening for Cancer

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