A family living with Alzheimer’s disease: The communicative challenges

Jones, Danielle

doi:10.1177/1471301213502213

Cited by 41 publications

(39 citation statements)

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“…Even when accompanied to the clinic, patients with FMD only rarely sought their companions' assistance in answering questions; conversely, patients with dementia relied to a very large extent on their companions' assistance in answering. Patients with ND struggled to answer specific questions in much detail (if at all), had difficulties responding to compound questions, frequently responded "I don't know" when unable to recall information, and generally had difficulties sustaining the interaction -their memory failure impacting significantly on their ability to communicate with the neurologist during the outpatient clinic encounter [51][52][53][54]. Patients with FMD on the other hand interacted much more confidently with the neurologists, could provide numerous extended and specific examples of memory difficulties, give detailed answers going beyond the parameters of the question and they could handle and recall all parts of compound questions.…”

Section: Discussion -Summarymentioning

confidence: 99%

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Towards diagnostic conversational profiles of patients presenting with dementia or functional memory disorders to memory clinics

Elsey

Drew

Jones

et al. 2015

Patient Education and Counseling

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YesObjective\ud \ud This study explores whether the profile of patients’ interactional behaviour in memory clinic conversations with a doctor can contribute to the clinical differentiation between functional memory disorders (FMD) and memory problems related to neurodegenerative diseases.\ud \ud Methods\ud \ud Conversation Analysis of video recordings of neurologists’ interactions with patients attending a specialist memory clinic. “Gold standard” diagnoses were made independently of CA findings by a multi-disciplinary team based on clinical assessment, neuropsychological testing and brain imaging.\ud \ud Results\ud \ud Two discrete conversational profiles for patients with memory complaints emerged, including (i) who attends the clinic (i.e., whether or not patients are accompanied), and (ii) patients’ responses to neurologists’ questions about memory problems, such as difficulties with compound questions and providing specific and elaborated examples and frequent “I don’t know” responses.\ud \ud Conclusion\ud \ud Specific communicative difficulties are characteristic of the interaction patterns of patients with a neurodegenerative pathology. Those difficulties are manifest in memory clinic interactions with neurologists, thereby helping to differentiate patients with dementia from those with FMD.\ud \ud Practical implications\ud \ud Our findings demonstrate that conversational profiles based on patients’ contributions to memory clinic encounters have diagnostic potential to assist the screening and referral process from primary care, and the diagnostic service in secondary care

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Section: Discussion -Summarymentioning

confidence: 99%

“…The prevalence of head-turning indicates recall difficulties and conversational problems in general. ND patients frequently defer questions to their companions to fill in their memory gaps [46,51,52].…”

Section: Figurementioning

confidence: 99%

Towards diagnostic conversational profiles of patients presenting with dementia or functional memory disorders to memory clinics

Elsey

Drew

Jones

et al. 2015

Patient Education and Counseling

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“…However, cognitive impairment, communication difficulties, the organisation and context of the ward, all of which hindered access to this source of knowledge. As shown in other contexts of care, 135 the communication difficulties experienced by patients with dementia were interactional in the sense that they 'arise, in part, from their cognitive deficits', but were also 'occasioned by, or contingent on, the other's contributions in interaction'. The hospital routines and environments generated a modality of interaction that challenged the communication abilities patients with dementia may have had.…”

Section: Discussion Of Observational Study Findingsmentioning

confidence: 99%

Towards improved decision support in the assessment and management of pain for people with dementia in hospital: a systematic meta-review and observational study

Closs

Dowding

Allcock³

et al. 2016

Health Serv Deliv Res

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Health Services and Delivery ResearchISSN 2050-4349 (Print) ISSN 2050-4357 (Online) This journal is a member of and subscribes to the principles of the Committee on Publication Ethics (COPE) (www.publicationethics.org/).Editorial contact: nihredit@southampton.ac.ukThe full HS&DR archive is freely available to view online at www.journalslibrary.nihr.ac.uk/hsdr. Print-on-demand copies can be purchased from the report pages of the NIHR Journals Library website: www.journalslibrary.nihr.ac.uk Criteria for inclusion in the Health Services and Delivery Research journalReports are published in Health Services and Delivery Research (HS&DR) if (1) they have resulted from work for the HS&DR programme or programmes which preceded the HS&DR programme, and (2) they are of a sufficiently high scientific quality as assessed by the reviewers and editors. HS&DR programmeThe Health Services and Delivery Research (HS&DR) programme, part of the National Institute for Health Research (NIHR), was established to fund a broad range of research. It combines the strengths and contributions of two previous NIHR research programmes: the Health Services Research (HSR) programme and the Service Delivery and Organisation (SDO) programme, which were merged in January 2012.The HS&DR programme aims to produce rigorous and relevant evidence on the quality, access and organisation of health services including costs and outcomes, as well as research on implementation. The programme will enhance the strategic focus on research that matters to the NHS and is keen to support ambitious evaluative research to improve health services.For more information about the HS&DR programme please visit the website: http://www.nets.nihr.ac.uk/programmes/hsdr This reportThe research reported in this issue of the journal was funded by the HS&DR programme or one of its preceding programmes as project number 11/2000/05. The contractual start date was in October 2012. The final report began editorial review in October 2015 and was accepted for publication in March 2016. The authors have been wholly responsible for all data collection, analysis and interpretation, and for writing up their work. The HS&DR editors and production house have tried to ensure the accuracy of the authors' report and would like to thank the reviewers for their constructive comments on the final report document. However, they do not accept liability for damages or losses arising from material published in this report.This report presents independent research funded by the National Institute for Health Research (NIHR). The views and opinions expressed by authors in this publication are those of the authors and do not necessarily reflect those of the NHS, the NIHR, NETSCC, the HS&DR programme or the Department of Health. If there are verbatim quotations included in this publication the views and opinions expressed by the interviewees are those of the interviewees and do not necessarily reflect those of the authors, those of the NHS, the NIHR, NETSCC, the HS&DR programme or the Department of Heal...

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“…Užsienio šalyse Alzheimerio ligos paveiktų asmenų ir juos globojančių artimųjų gyvenimo kokybei skiriama nemažai dėmesio (Butcher et al 2001;Vellone et al 2012;Jones 2015;Raccichini et al 2015). Lietuvoje šiuo aspektu publikacijų mažiau (tarp jų -Žydžiūnaitės, Virbalie- Dėl specializuotos pagalbos trūkumo Alzheimerio liga sergantiems asmenims jų globa tiek Lietuvoje, tiek užsienio šalyse dažnai organizuojama namuose.…”

Section: įVadasunclassified

Šeimos narių patirtis globojant Alzheimerio liga sergančius artimuosius

Gevorgianienė¹,

Pilkytė²

2016

STEPP

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A family living with Alzheimer’s disease: The communicative challenges

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Cited by 41 publications

References 58 publications

Towards diagnostic conversational profiles of patients presenting with dementia or functional memory disorders to memory clinics

Towards diagnostic conversational profiles of patients presenting with dementia or functional memory disorders to memory clinics

Towards improved decision support in the assessment and management of pain for people with dementia in hospital: a systematic meta-review and observational study

Šeimos narių patirtis globojant Alzheimerio liga sergančius artimuosius

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