A feasibility study of home telemedicine for patients with cystic fibrosis awaiting transplantation

Wilkinson, Olive M; Duncan-Skingle, Frances; Pryor, Jennifer; Hodson, Margaret E.

doi:10.1258/jtt.2008.070107

Cited by 45 publications

(54 citation statements)

References 10 publications

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“…Within the home, smartphones can enable self-reporting of symptoms of respiratory exacerbation, to reduce delay to treatment [66,67]. The feasibility of video conferencing alongside remote data collection via 'nonconnected' devices has also been explored [65], as have home-based lung function tests supported by regular telephone engagement with the clinical team [59]. These approaches have been shown to support improved adherence to treatment amongst patients [58].…”

Section: Cf Clinical Care Structure and Technologymentioning

confidence: 99%

Exploring the Potential for Technology to Improve Cystic Fibrosis Care Provision

Rodger

O’Hara

2019

Proc. ACM Hum.-Comput. Interact.

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Health care systems increasingly promote self-management of chronic conditions outside of traditional clinical environments, often through technologies which help to support patient self-care and engagement with medical professionals. We investigate specialist care provision in cystic fibrosis (CF), a life-shortening genetic condition, to understand the experiences of those living with it and of professionals who provide such care. Our work highlights how the motivations for the use of technology in this context are often intrinsically linked to the nature of CF itself and the constraints that the condition imposes on care provision. These include the high burden associated with self-management and clinic attendance; the ever-present risk of infection and a subsequent decline in health; and patients who are often very well-informed and actively engaged in their care. In exploring enablers and barriers to technology in this context, we highlight the importance of considering its integration into the chronic care cycles, practices, and structures of CF care.

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Section: Cf Clinical Care Structure and Technologymentioning

confidence: 99%

Exploring the Potential for Technology to Improve Cystic Fibrosis Care Provision

Rodger

O’Hara

2019

Proc. ACM Hum.-Comput. Interact.

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“…Tele-hospice was able to decrease spiritual and medical burden, improving quality of life and symptom management for veterans and families coping with end of life [114]. Home tele-health consultations are a feasible and acceptable means of facilitating a palliative care consultation reducing the burden on families also in paediatric patients [115,116].…”

Section: Role Of Tele-monitoring In Sleep-related Breathing Disordersmentioning

confidence: 99%

Tele-monitoring of ventilator-dependent patients: a European Respiratory Society Statement

Ambrosino¹,

et al. 2016

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The estimated prevalence of ventilator-dependent individuals in Europe is 6.6 per 100 000 people. The increasing number and costs of these complex patients make present health organisations largely insufficient to face their needs. As a consequence, their burden lays mostly over families. The need to reduce healthcare costs and to increase safety has prompted the development of tele-monitoring for home ventilatory assistance.

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“…We strongly advocate that centres have regular feedback about their patients to allow them to monitor and review them from afar, and identify new equipment problems. With the development of new technology [13] and improved telemedicine options [14,15], even in very vulnerable patients [16], it is possible to download symptom scores, arterial oxygen saturation levels and ventilator performance details on tidal volume, pressure and leaks daily [14,15]. Indeed, there are pilot studies in progress with some ventilators that are able to monitor pulmonary mechanics and adapt settings accordingly.…”

Section: Patient Did Not Like Replacement Ventilatormentioning

confidence: 99%

Analysis of home support and ventilator malfunction in 1,211 ventilator-dependent patients

Chatwin

Heather²,

Hanak³

et al. 2009

Eur Respir J

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Risk management is an important aspect of home ventilation (HV). We examined the nature of calls to a home support helpline to identify patient/equipment problems and strategies to minimise risk for patients, healthcare teams and manufacturers.From 1,211 adult and paediatric patients with neuromuscular disease, chronic obstructive pulmonary disease or chest wall disease receiving HV, all calls to a dedicated respiratory support telephone hotline between January 1, 2006 and June 30, 2006 were analysed.1,199 patients received noninvasive ventilation, 12 tracheostomy ventilation; 149 had two ventilators for 24-h ventilator dependency. There was a mean of 528 daytime calls per month and 14 calls a month at night. Following 188 calls, a home visit was performed; these identified a technical problem that could either be solved in the patient's home in 64% or required replacement or new parts in 22% of cases. In 25 calls in which no mechanical fault was identified, 13 patients were either found to be unwell or required hospital admission.Patients using HV have a substantial requirement for assistance, with most technical problems being resolved simply. Where no fault can be found during an equipment check, the patient themselves may be unwell and should receive early clinical evaluation. The patient may have mistaken clinical deterioration for an equipment problem.

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A feasibility study of home telemedicine for patients with cystic fibrosis awaiting transplantation

Cited by 45 publications

References 10 publications

Exploring the Potential for Technology to Improve Cystic Fibrosis Care Provision

Exploring the Potential for Technology to Improve Cystic Fibrosis Care Provision

Tele-monitoring of ventilator-dependent patients: a European Respiratory Society Statement

Analysis of home support and ventilator malfunction in 1,211 ventilator-dependent patients

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