A Focused Review of Long-Stay Patients and the Ethical Imperative to Provide Inpatient Continuity

Edwards, Jeffrey D.

doi:10.1016/j.spen.2023.101037

Cited by 2 publications

(1 citation statement)

References 111 publications

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“…CNS disorders that arise in childhood resulting in motor and cognitive impairment and medical complexity, where much assistance is required with activities of daily living. The impairment is permanent and can be progressive or static [16,17].…”

Section: Severe Neurologic Impairmentmentioning

confidence: 99%

Protocol on an Integrative review on nomenclature and outcomes in children with complex critical illness in Paediatric Intensive Care - The basis for consensus definition

Cuevas-Asturias,

Tremlett,

Mitchell

et al. 2024

Preprint

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Interests: None Paediatric Critical Care (PCC) supports the recovery of children with severe illness. Nationally, there are 30 PCC units with a total of approximately 400 beds. There is constant demand for these beds with an average five-day length of stay and admissions increasing at a greater rate than age-specific population growth[1, 2]. Prolonged stay patients account for approximately half of all PCC patient bed days[3]. Complex critically ill (CCI) patients need input from multiple different teams alongside support for their family [4, 5]. CCI patients often become prolonged PCC-stay patients too [6]. Internationally, there is variation in the definition of CCI patients [4, 8], this creates service variation and tensions around what resources can be provided and how quickly to support home discharge. Objective: The face of Paediatric Critical Care, in the UK and internationally has changed over the course of the last ten years with a growing cohort of complex critically ill patients. This integrative review aims to look at current nomenclature, definitions, and outcome measures of priority in this undefined patient population. Inclusion criteria: All types of studies looking at complex critically ill children (age<18 years) admitted to any paediatric intensive care unit (PICU). Methods: The review will be registered on Prospero. Medline, Embase, Maternity and Infant care, The Cochrane library, the Cumulative Index to Nursing and Allied Health literature (CINAHL), Web of Science, and NHS evidence will be searched from 2014 to April 2024. Search limits will include all languages, exclude the setting of neonatal intensive care and age>18 years old. Four independent authors will screen citations for eligible studies and perform data extraction. The final search strategy will be developed in Medline and peer-reviewed by a health research librarian not involved in the study. This will be then translated to other databases as appropriate.

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Section: Severe Neurologic Impairmentmentioning

confidence: 99%