A follow‐up study of change in quality of life among persons with dementia residing in a long‐term care facility

Gonzales-Salvador, Teresa; Chin, Jeffery; Baker, Alva; Black, Betty S.; Rabins, Peter V.

doi:10.1002/gps.796

Cited by 102 publications

(148 citation statements)

References 20 publications

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“…Studies with care home residents have reported no change in mean PwD QoL scores at 20 weeks, 17 but a significant decline in PwD mean scores at 2 years. 18 Findings from community-dwelling samples with mild-to-moderate dementia have been similarly variable. In one study, PwD self-ratings remained stable over the follow-up period, while caregiver ratings declined with increasing impairment.…”

Section: Introductionmentioning

confidence: 99%

Quality of life in mild dementia: patterns of change in self and caregiver ratings over time

Dourado

Sousa

Santos

et al. 2016

Rev. Bras. Psiquiatr.

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Objectives: To determine changes over time in self and caregiver ratings of quality of life (QoL) in people with dementia (PwD) and to identify factors associated with changes in QoL ratings. Methods: In this longitudinal study, 69 people with mild Alzheimer's disease and their caregivers were assessed at baseline and after 1 year. We examined the association of QoL ratings with the following variables at the two time points: awareness of disease, cognitive status, mood, functionality, neuropsychiatric symptoms, and caregiver burden. Multivariate regression analyses were conducted to examine the contribution of co-factors. Results: At baseline, PwD self-ratings of QoL were associated with caregiver ratings of PwD QoL (p = 0.001). Caregiver ratings were associated with PwD mood (p = 0.001) and self-rated QoL (p = 0.001). After 1 year, caregiver ratings of PwD QoL changed significantly (p = 0.049, d = -0.27), whereas PwD selfratings did not (p = 0.89, d = 0.09). PwD awareness of disease changed significantly (p = 0.001) at 1 year, having declined in 25.4% and improved in 12.3% of participants. PwD QoL self-ratings were associated with caregiver ratings (p = 0.001). Caregiver ratings of PwD QoL after 1 year were associated with PwD mood (p = 0.029), self-reported QoL (p = 0.001), and awareness of disease (p = 0.033). Conclusions:The association between self and caregiver ratings of PwD QoL was maintained over 1 year. The primary factors accounting for the change in caregiver ratings were PwD mood and awareness of disease. QoL and cognitive impairment seem to be relatively independent in mild dementia.

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Section: Introductionmentioning

confidence: 99%

Quality of life in mild dementia: patterns of change in self and caregiver ratings over time

Dourado

Sousa

Santos

et al. 2016

Rev. Bras. Psiquiatr.

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“…The majority of these studies have found, when considering samples as a whole, that mean QoL scores remain relatively stable over time [2][3][4][5][6][7][8][9][10][11][12][13][14], although some research conducted in residential settings has reported a decrease [15][16][17].…”

Section: Introductionmentioning

confidence: 99%

Self-Perceived Quality of Life Among Patients with Alzheimer’s Disease: Two Longitudinal Models of Analysis

Conde-Sala

Turró‐Garriga

Portellano-Ortiz

et al. 2016

JAD

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Abstract.The objective was to analyze the factors that influence self-perceived quality of life (QoL) in patients with Alzheimer's disease (AD), contrasting two different longitudinal models. A total of 127 patients were followed up over 24 months. The instruments applied were: Quality of Life in Alzheimer's Disease scale (QoL-AD), Geriatric Depression Scale-15, Anosognosia Questionnaire-Dementia, Disability Assessment in Dementia, Neuropsychiatric Inventory, and the Mini-Mental State Examination. Two models for grouping patients were tested: 1) Baseline score on the QoL-AD (QoLBaseline), and 2) Difference in QoL-AD score between baseline and follow-up (QoL-Change). Generalized estimating equations were used to analyze longitudinal data, and multinomial regression analyses were performed. Over the follow-up period the QoL-Baseline model showed greater variability between groups (Wald χ 2 = 172.3, p < 0.001) than did the QoLChange model (Wald χ 2 = 1.7, p = 0.427). In the QoL-Baseline model the predictive factors were greater depression (odds ratio [OR] = 1.20; 95% CI: 1.00-1.45) and lower functional ability (OR = 0.92; 95% CI: 0.85-0.99) for the Low QoL group (< 33 QoL-AD), and less depression (OR = 0.68; 95% CI: 0.52-0.88), more anosognosia (OR = 1.07; 95% CI: 1.01-1.13), and fewer neuropsychiatric symptoms (OR = 0.95; 95% CI: 0.91-0.99) for the High-QoL group (>37 QoL-AD). The model based on baseline scores (QoL-Baseline) was better than the QoL-Change model in terms of identifying trajectories and predictors of QoL in AD.

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“…Flere studier viser at personer med demens kan ha god livskvalitet uavhengig av grad av demens (10,16,27,40,45 (46,47). Det kan føre til feilvurderinger.…”

Section: Metodeunclassified

“…Dette kan blant annet skyldes at pasienter med demens, saerlig av moderat til alvorlig grad, har problemer med abstrakt tenkning, hukommelse og språkforståelse. På grunn av disse problemene er det også vanskelig å vurdere livskvalitet hos denne gruppen (9,26 blant personer med demens (10,16,27), mens andre studier finner at det er en sammenheng (6,11,28). I de ulike studiene ser man en tendens til at det oftere er sammenheng mellom funksjonsnivå og livskvalitet hos personer med demens når en annen enn pasienten gir informasjon.…”

Section: Introduksjonunclassified

Livskvalitet, depressive symptomer og funksjonssvikt hos personer med demens

Mjørud¹,

Engedal²,

Barca³

et al. 2011

Sykepleien

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English summary sammEndrag Quality of life, depressive symptoms and impairment in people with dementiaBackground: It is uncertain whether the association between quality of life, the symptoms of depression and impairment of daily living activities is as strong in people with dementia, as in those without dementia.Objective: To investigate the association between quality of life, the symptoms of depression, impairment of daily living activities and dementia.Methods: Information about 223 nursing home patients with dementia was collected through interviews with the primary caregivers. Quality of life was examined using the Quality of Life in Late Stage Dementia (QUA-LID) scale; symptoms of depression were examined using the Cornell scale; impairment of daily living activities was examined using Lawton's Physical Self-Maintenance Scale (PSMS); and the degree of dementia was examined using the Clinical Dementia Rating scale. Results: Correlation analysisshowed that reduce quality of life was significantly associated with depressive symptoms, functional impairment and dementia. A stepwise linear regression analysis showed that four of Cornell's five sub scales: the mood, behavioural, retardation and cyclic subscales were significantly associated with QUALID. The physical sub scale was not associated with quality of life in the regression analysis because retardation and physical sub scales correlated highly. Impairment of activities of daily living and degree of dementia are significantly associated to reduced quality of life. Conclusion:Quality of life in people with dementia is associated with symptoms of depression, especially the core symptoms of depression and level of impairment of activities of daily living.Key words: quality of life, symptoms of depression, impairment of activities in daily living, dementia.Bakgrunn: Det er usikkert om sammenhengen mellom livskvalitet, depressive symptomer og funksjonssvikt er like sterk hos personer med demens som hos dem uten demens.Hensikt: Å undersøke sammenhengen mellom livskvalitet, depressive symptomer, funksjonssvikt og grad av demens. Metode:Opplysninger om 223 pasienter med demens i sykehjem ble innhentet gjennom intervju av pasientenes primaerpleiere. Livskvalitet ble kartlagt med Quality of life in late stage dementia scale (QUALID), symptomer på depresjon med Cornell skala, funksjonsevne med Lawtons ADL skala og grad av demens med Klinisk demensvurdering.Resultater: Korrelasjonsanalyser viste at livskvalitet var signifikant assosiert til depressive symptomer, grad av demens og tap av funksjonsevne. Spearman's korrelasjon varierte mellom 0,37 og 0,53. En trinnvis lineaer regresjonsanalyse viste at fire av fem subskalaer i Cornell skalaen, affekt-, adferds-, retardasjon -og syklisk subskala var signifikant assosiert med QUALID-skåren. Den fysiske sub skalaen var det ikke fordi sub skalaene retardasjon og fysisk korrelerte sterkt. Tap av funksjonsevne og grad av demens var også signifikant relatert til redusert livskvalitet.Konklusjon: Livskvalitet hos personer med ...

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A follow‐up study of change in quality of life among persons with dementia residing in a long‐term care facility

Cited by 102 publications

References 20 publications

Quality of life in mild dementia: patterns of change in self and caregiver ratings over time

Quality of life in mild dementia: patterns of change in self and caregiver ratings over time

Self-Perceived Quality of Life Among Patients with Alzheimer’s Disease: Two Longitudinal Models of Analysis

Livskvalitet, depressive symptomer og funksjonssvikt hos personer med demens

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