A framework for improving the quality of care for people with psoriasis

Augustin, Matthias; Alvaro-Gracia, J. M.; Bagot, Martine; Hillmann, O.; Kerkhof, P.C.M. van de; Kobelt, Gisela; Maccarone, Mara; Naldi, Luigi; Schellekens, Huub

doi:10.1111/j.1468-3083.2012.04576.x

Cited by 48 publications

(59 citation statements)

References 44 publications

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“…The concept of CLCI is the result of a life-long interaction between the main influencing factors of HRQoL in patients with psoriasis, such as stigmatization, physical and psychological comorbidities as well as coping strategies and external factors [95]. In total, they can result in irreversible patient strain similar to scarring in bone disease and in lost opportunities with respect to personal, social and professional life.…”

Section: Concept Of Clcimentioning

confidence: 99%

“…Implementation strategies have been discussed including the incorporation of treatment guidelines such as the German S3 guidelines. Thus, there is a framework for transforming systematic treatment strategies into daily practice (FIGURE 1) [95]. Targeted treatment, early intervention and the use of treatment goals is a new approach in medicine that has been implemented across several disciplines (e.g., diabetes, pulmonary arterial hypertension and rheumatoid arthritis) over the past 5-10 years [96].…”

Section: Concept Of Clcimentioning

confidence: 99%

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Quality of life in psoriasis patients

Augustin

Radtke

2014

Expert Review of Pharmacoeconomics & Outcomes Research

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Patient-reported outcomes are major components of decision making in clinical research, reimbursement, health policy and health care for psoriasis. The most important construct in patient-reported outcomes is health-related quality of life (HRQoL) which encompasses the individual's well-being with respect to health. HRQoL cannot directly be measured but is assessed in single dimensions, especially physical, emotional, social and functional aspects. For this, disease- and condition-specific instruments are used. Psoriasis is a chronic inflammatory disease affecting the skin as well as other tissues and organ systems. Patients suffer from a large scale of impairments, for example, physical symptoms, stigmatization and embarrassment, psychological strain and disabilities in profession. Improvement of HRQoL is a major objective of disease management. Current knowledge on determinants of HRQoL and the treatments available increase QoL in clinical care.

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Section: Concept Of Clcimentioning

confidence: 99%

Section: Concept Of Clcimentioning

confidence: 99%

Quality of life in psoriasis patients

Augustin

Radtke

2014

Expert Review of Pharmacoeconomics & Outcomes Research

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“…The exact cause of this disease is not fully understood yet (5). It is equally prevalent in men and women (1), affecting 1% -3% of the population worldwide (6), 3% of the American population (2), and 9% of the Iranians population (7). Moderate to severe psoriasis is associated with diseases, such as cardiovascular diseases, metabolic syndrome (1), anger, anxiety, frustration (5), increased risk of mortality (8), diabetes, hypertension, dyslipidemia (9), obesity (3), and reduced quality of life (10).…”

Section: Introductionmentioning

confidence: 99%

“…Therefore, health education for patients is of great importance (18). Self-management education is the cornerstone of treatment (19), and awareness of disease and understanding its severity are very effective in alleviating the patients' pain and suffering (6).…”

Section: Introductionmentioning

confidence: 99%

The Effects of a Self-Care Program on Promoting Self-Care Behaviors in Patients with Psoriasis

Karimipour

Sayadi

Shariati

et al. 2017

Jundishapur J Chronic Dis Care

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Background: Psoriasis is a chronic inflammatory disease with frequent recurrence. The associated complications cause disturbance in patients' quality of life. In addition to treatment procedures, use of self-care behaviors can be considered a cost-effective and applicable method in improving the patients' symptoms. Therefore, the present study aimed to investigate the effectiveness of a self-care program in promoting self-care behaviors of patients with psoriasis. Objectives: The present study aimed to investigate the effectiveness of a self-care program in promoting self-care behaviors among patients with psoriasis. Methods: This quasi experimental, before-after study was carried out on 32 patients. The educational program was implemented face-to-face and in groups (in areas such as medicine, bathing, and clothing). The samples were examined once every 2 weeks for 3 months. Two questionnaires and 1 self-report checklist with a correlation coefficient of 92.5% were used in this study. The validity of the questionnaires was determined using content validity. Data were analyzed using repeated measures ANOVA in SPSS. Results: The patients' demographics were as follows: mean age, 42.37%; males, 16 (55.2%) and females, 13 (44.8%); married, 21 (72.4%), single, 6 (20.7%), and widowed, 2 (6.9%); secondary school education, 13 (44.8%); average disease period, 9.03%; most self-employed and housewives (9, 31%); history of disease, 7 (24.1%); and physician-diagnosed disease, 29 (100%). The results showed that the mean medication adherence rate increased from 7% to 9.72% after the intervention, and comparison of self-care behaviors before and after the intervention showed that the frequency of most behaviors significantly increased. Conclusions:The results showed that training could improve self-care behaviors. Use of simple, low-cost, and available programs for self-care behaviors is effective in reducing the patients' symptoms and improving their conditions.

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“…Studies have shown that psoriasis affects both individuals and society, and is often associated with social stigmatization, discomfort, physical disability and emotional distress [3,4]. Moderate to severe psoriasis accounts for more than 25% of all cases seen in dermatological care [5], and affected patients experience a similar or even greater reduction in health-related quality of life compared to patients with other chronic diseases [6].…”

Section: Introductionmentioning

confidence: 99%

Treatment Satisfaction in Psoriasis: Development and Use of the PsoSat Patient Questionnaire in a Cross-Sectional Study

Radtke¹,

Spehr²,

Reich³

et al. 2016

Dermatology

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Introduction: Evidence supports the potential value of matching patient preferences to treatment recommendations. The aim of the study was to design and validate a questionnaire on treatment satisfaction for clinical decision-making. Methods: We performed a comprehensive literature search identifying measurable indicators. The complete item pool was condensed to a core set by a multidisciplinary expert panel and tested in a multicentre, observational, cross-sectional study. Results: The questionnaire consisted of 8 questions, rated on a 5-point Likert scale. In total, 213 dermatology centres included 2,084 patients. The mean disease duration was 19 years. A majority of patients (82.8%) was moderately to very satisfied. 108 patients (5.8%) felt to be bothered by side effects, and 32.1% ascertained that the current therapy had been conducted for too long without success. Discussion: The PsoSat Questionnaire was shown to be a reliable and valid instrument for measuring therapy-related satisfaction. Further research on its implementation in clinical decision-making is necessary to finally evaluate the benefit of this tool.

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A framework for improving the quality of care for people with psoriasis

Cited by 48 publications

References 44 publications

Quality of life in psoriasis patients

Quality of life in psoriasis patients

The Effects of a Self-Care Program on Promoting Self-Care Behaviors in Patients with Psoriasis

Treatment Satisfaction in Psoriasis: Development and Use of the PsoSat Patient Questionnaire in a Cross-Sectional Study

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