A investigation into hope, self-efficacy, distress and uncertainty in parents who have a child with a life-threatening or life-limiting illness

Spurr, Shelley; Bally, Jill; Burles, Meridith; Mcharo, Kasha

doi:10.1016/j.pedn.2022.07.002

Cited by 5 publications

(2 citation statements)

References 31 publications

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“…found that unemployment parents had higher levels of hope than employment parents. 29 Our study revealed that the employment and income status of parents did not affect their level of hope, which is thought to result from the fact that treatment expenses are covered by the health system in Turkey.…”

Section: Discussionmentioning

confidence: 64%

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Hope Experiences in Parents of Children With Cancer and Affecting Factors

Koyu

Algül

Altay

et al. 2022

Preprint

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Background: Childhood cancers cause many physical, emotional, social and spiritual problems in children and their parents. Hope is a concept that provides internal guidance that supports coping in parents of children with cancer. This study was conducted to evaluate the experience of hope and influencing factors in parents of children with cancer. Methods: In this cross- sectional and relational study, the data were collected in March-July 2022 in the pediatric oncology-haematology ward of a university hospital in the center of Anatolia. The study included 120 parents of children with cancer. Data were collected with the child and parent descriptive form, the Herth Hope Index, the Connor-Davidson Resilience Short Form, and the Spiritual Well-Being Scale. In the analysis of the data, correlation, and multiple linear regression analysis were used. Ethical approval was obtained for the study. Results: In the study, 57.5% of the parents were mothers. The mean age of the children was 9.46±5.00 years. The diagnosis of ALL in 30.8% of the children and the mean duration of treatment was 20.42±13.75 months. Herth Hope Index mean was 33.90±5.65 out of 48, Connor-Davidson Resilience mean was 24.18±5.28 out of 48, and Spiritual Well-Being Scale mean was117.80±13.38 out of 145. Multiple linear regression analysis, child's gender (β =-0.16), number of children (β =-0.16), diagnosis of cancer (β =-0.24), resilience (β =0.31), and spiritual well-being of the parents (β =0.40) were the determining factors affecting parents' hope experiences. Conclusions: The hope experience of parents of children with cancer and the affecting factors will guide the interventions to be planned for coping and empowerment of parents throughout the cancer trajectory.

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Section: Discussionmentioning

confidence: 64%

“…The descriptive features form was developed by researchers based on the literature. 11,12,29 Herth Hope Index…”

Section: Introductory Characteristics Formmentioning

confidence: 99%

Hope Experiences in Parents of Children With Cancer and Affecting Factors

Koyu

Algül

Altay

et al. 2022

Preprint

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Differences in caregiver and child factors within families of autistic youth across birth order groups

Boland,

Barry,

Lindsey

2024

Research in Autism Spectrum Disorders

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The effect of illness uncertainty and self‐efficacy on the perception of shared decision‐making among parents of infants in the neonatal intensive care unit

Choi,

Shin

2024

Nursing in Critical Care

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BackgroundShared decision‐making is essential for improving infant prognoses. Medical staff should consider the effect of illness uncertainty and self‐efficacy on parents' perceptions of shared decision‐making.AimsThis study examined the impact of illness uncertainty and self‐efficacy on the perception of shared decision‐making among parents of infants in the neonatal intensive care unit.Study DesignA descriptive‐analytical cross‐sectional study design was used. Data were collected from April to June 2023. A total of 103 parents of infants admitted to the neonatal intensive care unit participated in this study. The participants used a self‐report questionnaire that included general characteristics of their infants, uncertainty of illness, self‐efficacy and perception of shared decision‐making. Data were analysed using descriptive statistics, independent t‐test, analysis of variance, Scheffe's test, Pearson's correlation coefficient and multiple linear regression.ResultsIllness uncertainty (r = −.659, p < .001, 95% confidence interval = [−1.209, −0.765]) was negatively correlated with self‐efficacy, and self‐efficacy (r = .255, p = .009, 95% confidence interval = [0.082, 0.569]) was positively correlated with the perception of shared decision‐making. Using multiple linear regression, the number of visits to the intensive care unit (β = −1.939, p = .015, 95% confidence interval = [−3.490, −0.389]) and parents' self‐efficacy (β = .271, p = .028, 95% confidence interval = [0.030, 0.512]) had a statistically significant effect on the perception of shared decision‐making, accounting for 11.9% of the total explanatory power.ConclusionsThe results support that higher self‐efficacy is associated with a higher degree of perception of shared decision‐making among parents of infants in the intensive care unit. Therefore, clinicians might support parents in taking a more active role in shared decision‐making by discussing available options with clinicians and reaching treatment plans together.Relevance to Clinical PracticeThe study suggests creating scales to assess nurses' participation in shared decision‐making and recommends educational programmes to boost parents' self‐efficacy with infants, significantly affecting perceptions of shared decision‐making.

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A investigation into hope, self-efficacy, distress and uncertainty in parents who have a child with a life-threatening or life-limiting illness

Cited by 5 publications

References 31 publications

Hope Experiences in Parents of Children With Cancer and Affecting Factors

Hope Experiences in Parents of Children With Cancer and Affecting Factors

Differences in caregiver and child factors within families of autistic youth across birth order groups

The effect of illness uncertainty and self‐efficacy on the perception of shared decision‐making among parents of infants in the neonatal intensive care unit

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