A lifestyle monitoring system to support (in)formal caregivers of people with dementia: Analysis of users need, benefits, and concerns

Zwierenberg, Erik; Nap, Henk Herman; Lukkien, Dirk; Cornelisse, Lotte; Finnema, Evelyn; Med, Ate Dijkstra; Hagedoorn, Mariët; Sanderman, Robbert

doi:10.4017/gt.2018.17.4.001.00

Cited by 19 publications

(40 citation statements)

References 13 publications

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“…The majority were female (˜66%, n = 3276 out of 4954 in 14 studies). In two studies [28,29] gender was not reported.…”

Section: Resultsmentioning

confidence: 97%

“…Only six trials [6,27,[30][31][32][33] evaluated the effects of the intervention with a follow-up; in those that did, the follow-up ranged from 6 months to 33 months. The remaining 10 studies [28,29,[34][35][36][37][38][39][40][41] did not include a follow-up period. Most studies were conducted in North America, Europe and Australia, and one in both Australia and India (see Table 1).…”

Section: Types Of Eat Interventionsmentioning

confidence: 99%

“…In the remaining eight studies [28,29,32,34,35,[39][40][41], either caregivers were the focus of the study, or little evidence was reported about the impact of using EATs on the wellbeing of older adults,…”

Section: Evidence Of Improving the Physical Mental And Social Wellbeingmentioning

confidence: 99%

“…In that study, a family caregiver indicated that "Proper consent from [the] person needs to be sought so that they feel comfortable with this method". Informal caregivers indicated that the impact of EAT on privacy should be compensated by the perceived sense of safety that it brought; however, (informal) caregivers tended to focus more on the functions and did not directly address any ethical and moral concerns [29].…”

Section: Ethical Issuesmentioning

confidence: 99%

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Electronic assistive technology for community-dwelling solo-living older adults: A systematic review

Song

Cammen

2019

Maturitas

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The proportion of older adults who live alone in single households is growing continuously. In the care of these solo-living older adults, electronic assistive technology (EAT) can play an important role. The objective of this review is to investigate the effects of EAT on the wellbeing of community-dwelling older adults living alone in single households. A systematic review of English articles was conducted based on PMC, Scopus, Web of Science and the Cochrane database. Additional studies were identified from the references. In total, 16 studies were identified, six of them with follow-up. There is evidence that EAT can improve the physical and mental wellbeing of older adults. There was little evidence that EAT can improve social wellbeing. We conclude that more personalized designs and interventions, and more user engagement could be embedded in the design of EAT for solo-living community-dwelling older adults and that more evidence is needed regarding the effects of those interventions.

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“…The majority were female (˜66%, n = 3276 out of 4954 in 14 studies). In two studies [28,29] gender was not reported.…”

Section: Resultsmentioning

confidence: 97%

Section: Types Of Eat Interventionsmentioning

confidence: 99%

Section: Evidence Of Improving the Physical Mental And Social Wellbeingmentioning

confidence: 99%

Section: Ethical Issuesmentioning

confidence: 99%

See 2 more Smart Citations

Electronic assistive technology for community-dwelling solo-living older adults: A systematic review

Song

Cammen

2019

Maturitas

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“…Although extended independent living is preferred by people with dementia [ 4 ], this places more pressure on their informal and formal support network [ 5 ]. Most care for people with dementia is provided by unpaid informal caregivers such as spouses or relatives [ 6 ] who can feel heavily burdened by their care responsibilities, often resulting in stress-related illnesses [ 5 , 7 ], putting them at risk of becoming the so-called “invisible second patient.” On the other side, formal caregivers involved in the home care of people with dementia often face an increased workload due to a rising shortage of staff [ 8 , 9 ] and the growing complexity of care [ 10 ], which require them to use their resources more effectively [ 11 ].…”

Section: Introductionmentioning

confidence: 99%

Requirements for Unobtrusive Monitoring to Support Home-Based Dementia Care: Qualitative Study Among Formal and Informal Caregivers

2021

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Background Due to a growing shortage in residential care, people with dementia will increasingly be encouraged to live at home for longer. Although people with dementia prefer extended independent living, this also puts more pressure on both their informal and formal care networks. To support (in)formal caregivers of people with dementia, there is growing interest in unobtrusive contactless in-home monitoring technologies that allow caregivers to remotely monitor the lifestyle, health, and safety of their care recipients. Despite their potential, these solutions will only be viable if they meet the expectations and needs of formal and informal caregivers of people with dementia. Objective The objective of this study was to explore the expected benefits, barriers, needs, and requirements toward unobtrusive in-home monitoring from the perspective of formal and informal caregivers of community-dwelling people with dementia. Methods A combination of semistructured interviews and focus groups was used to collect data among informal (n=19) and formal (n=16) caregivers of people with dementia. Both sets of participants were presented with examples of unobtrusive in-home monitoring followed by questions addressing expected benefits, barriers, and needs. Relevant in-home monitoring goals were identified using a previously developed topic list. Interviews and focus groups were transcribed and inductively analyzed. Requirements for unobtrusive in-home monitoring were elicited based on the procedure of van Velsen and Bergvall-Kåreborn. Results Formal and informal caregivers saw unobtrusive in-home monitoring as a support tool that should particularly be used to monitor (the risk of) falls, day and night rhythm, personal hygiene, nocturnal restlessness, and eating and drinking behavior. Generally, (in)formal caregivers reported cross-checking self-care information, extended independent living, objective communication, prevention and proactive measures, emotional reassurance, and personalized and optimized care as the key benefits of unobtrusive in-home monitoring. Main concerns centered around privacy, information overload, and ethical concerns related to dehumanizing care. Furthermore, 16 requirements for unobtrusive in-home monitoring were generated that specified desired functions, how the technology should communicate with the user, which services surrounding the technology were seen as needed, and how the technology should be integrated into the existing work context. Conclusions Despite the presence of barriers, formal and informal caregivers of people with dementia generally saw value in unobtrusive in-home monitoring, and felt that these systems could contribute to a shift from reactive to more proactive and less obtrusive care. However, the full potential of unobtrusive in-home monitoring can only unfold if relevant concerns are considered. Our requirements can inform the development of more acceptable and goal-directed in-home monitoring technologies to support home-based dementia care.

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Supportive Technologies for People with Dementia: A Closer Look into an Interdisciplinary Field

Suijkerbuijk

Nap

Minkman

2020

Human–Computer Interaction Series

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A lifestyle monitoring system to support (in)formal caregivers of people with dementia: Analysis of users need, benefits, and concerns

Cited by 19 publications

References 13 publications

Electronic assistive technology for community-dwelling solo-living older adults: A systematic review

Electronic assistive technology for community-dwelling solo-living older adults: A systematic review

Requirements for Unobtrusive Monitoring to Support Home-Based Dementia Care: Qualitative Study Among Formal and Informal Caregivers

Supportive Technologies for People with Dementia: A Closer Look into an Interdisciplinary Field

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