2018
DOI: 10.1093/jpepsy/jsy007
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A Longitudinal Study of Depressive Symptoms, Neuropsychological Functioning, and Medical Responsibility in Youth With Spina Bifida: Examining Direct and Mediating Pathways

Abstract: One way in which neurocognitive dysfunction may hinder the development of medical autonomy in youth with SB is through an increased risk for depressive symptoms.

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Cited by 27 publications
(9 citation statements)
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“…Notably, associations were only found between teacher-and self-reported youth internalizing symptoms and pain. Similar findings involving teacherreported data have been demonstrated in other research examining youth psychological functioning in SB (e.g., Stern, Driscoll, Ohanian & Holmbeck, 2018), possibly indicating that the connection between pain and psychosocial functioning is particularly salient in the school environment. In other words, health providers who rely heavily on parent report of youth psychosocial functioning may be missing important information about youth wellbeing and critical areas for early intervention.…”
Section: Discussionsupporting
confidence: 88%
“…Notably, associations were only found between teacher-and self-reported youth internalizing symptoms and pain. Similar findings involving teacherreported data have been demonstrated in other research examining youth psychological functioning in SB (e.g., Stern, Driscoll, Ohanian & Holmbeck, 2018), possibly indicating that the connection between pain and psychosocial functioning is particularly salient in the school environment. In other words, health providers who rely heavily on parent report of youth psychosocial functioning may be missing important information about youth wellbeing and critical areas for early intervention.…”
Section: Discussionsupporting
confidence: 88%
“…In the context of the COVID-19 pandemic, AYA-SB must also confront new barriers to adherence and self-management ( Plevinsky et al, 2020 ), disrupted social relationships, increased time at home (which may be associated with increased family conflict), and greater increases in time accessing technology and social media ( Psihogios et al, 2020 ). Variable cognitive and executive functioning deficits present in SB may also make it difficult to comprehend incoming information about the virus, reasons for social distancing, and quarantining ( Stern et al, 2018 ). Parents of youth with SB (<18 years of age) already confront a range of challenges related to managing their child’s medical regimen, concern about their child’s health, and uncertainty regarding their child’s independence ( Mullins et al, 2007 ).…”
Section: Introductionmentioning
confidence: 99%
“…This examination of benefit-finding with young adults with SB, who have had their condition since birth, is therefore unique. Second, SB has a multifaceted symptom profile, and includes cognitive difficulties, such as variable and often lower IQ, executive functioning deficits, trouble with independent functioning, and language difficulties (Stern et al, 2018; Vachha and Adams, 2003). All of these symptoms may impact how an individual perceives and reports on perceived benefits of their condition compared to previous examinations of benefit-finding that have recruited typically-developing samples.…”
Section: Discussionmentioning
confidence: 99%
“…Second, individuals with SB have varied symptom profiles with overlapping features of physical disabilities, intellectual impairments, and chronic illnesses (Stiles-Shields et al, 2019). Although benefit-finding has been studied in individuals with chronic illnesses and physical disabilities, to our knowledge, there is no research to date examining benefit-finding in a population with below average IQ scores, executive functioning difficulties, delays in independent functioning (Stern et al, 2018), and language difficulties (Vachha and Adams, 2003). Given that benefit-finding is a cognitively demanding process of reappraising stress, threat, and negative implications, the cognitive challenges associated with SB may diminish an individual’s engagement in benefit-finding.…”
Section: Introductionmentioning
confidence: 99%