A Longitudinal Study of Families of Preterm Infants: Changes in Stress and Support over the First Two Years

Beckman, Paula J.; Pokorni, Judith L.

doi:10.1177/002246698802200108

Cited by 25 publications

(15 citation statements)

References 11 publications

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“…Mothers of high-risk children endorsed higher burden than control mothers at both 2 and 3 years of age, and mothers of low-risk children reported higher levels of burden than control mothers at 2 300 TAYLOR, KLEIN, HACK years of age. These findings are consistent with previous results that suggested diminishing though persistent parent stress in families of young, preterm children (Beckman & Pokorni, 1988;Thompson, Oehler, Catlett, & Johndrow, 1993).…”

Section: Family Impactsupporting

confidence: 93%

School-Age Consequences of Birth Weight Less Than 750 g: A Review and Update

Taylor¹,

Klein²,

Hack³

2000

Developmental Neuropsychology

154

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Recent advances in perinatal care have led to the survival of increasing numbers of children born at the lower limits of viability. Children with very low birth weight (LBW; less than 1,500 g, 3 lb 5 oz) have been studied extensively. Findings document poorer outcomes relative to normal birth weight term-born controls in neurologic and health status, cognitive-neuropsychological skills, school performance, academic achievement, and behavior. This report reviews current knowledge regarding LBW children, with special emphasis on outcomes for children with birth weight less than 750 g (1 lb 10 oz). Results from an ongoing longitudinal study suggest a gradient of sequelae, with poorer outcomes in less than 750 g birth weight children compared to both 750 g to 1,499 g birth weight children and term-born controls. Children with less than 750 g birth weight fail to catch up with their peers over time and may even be at risk for age-related increases in sequelae. Outcomes are highly variable but related to neonatal medical complications of prematurity and social risk factors. Further research is needed to understand the etiology and neuropathological basis of sequelae, the long-term developmental implications of LBW, and treatment needs.

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Section: Family Impactsupporting

confidence: 93%

School-Age Consequences of Birth Weight Less Than 750 g: A Review and Update

Taylor¹,

Klein²,

Hack³

2000

Developmental Neuropsychology

154

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“…The majority of caregivers in both groups (72%-74%) also reported an ongoing relationship with the father of their baby, a factor known to have a positive effect on maternal mental health (38)(39)(40). Beckman and Pokomi (41) documented that social support does not change for families of preterm infants over the first 2 years of life. Thus, it may be reasonable to assume that the amount of support reported by caregivers of very low-birthweight infants in this study was available to caregivers since the baby's birth.…”

Section: Discussionmentioning

confidence: 97%

Quality of Life of Caregivers of Very Low–Birthweight Infants

Donohue

Maurin

Kimzey

et al. 2008

Birth

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Although very low-birthweight infants had poorer health and required significantly more health care resources than full-term infants, caregivers' quality of life did not differ between the two groups. Caregivers of both groups of infants reported substantial mental and physical health problems but perceived good quality of life. These data will aid parents, physicians, and policy makers as they struggle to make decisions concerning care of high-risk, costly, very low-birthweight infants.

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“…Raeside (1997) There were limitations to the studies on parental reactions to a preterm infant. The most common limitation is the small sample size (Blackburn and Lowen, 1986;Beckman and Pokorni, 1988;Raeside, 1997) which cannot be generalised to the population at large. Some of the questionnaires used were not evaluated for their reliabilities and validities (Blackburn and Lowen, 1986;Stewart, 1989).…”

mentioning

confidence: 99%

Stress experiences of parents with premature infants in a special care nursery

Lau

Morse

2003

Stress and Health

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This project is a controlled prospective longitudinal study of stress experiences of parents with premature infants born from 30-35 weeks gestation being cared for in a tertiary special care nursery (SCN). Sixty mothers and 59 fathers of premature infants and 60 mothers and fathers of term infants were recruited into the study. A range of repeated selfreports and biochemical markers of stress (cortisol and tribulin) were carried out on 5 measuring times through approximately a total of 24 weeks for parents of premature infants and 17 weeks for parents of term infants.Parents of premature infants reported higher stress levels than parents of term infants within the first week of infant's birth but had lower biochemical markers of stress. The stressors perceived by these parents in a SCN were appearance and behaviour of the infants and the delayed in performing the parental role. Parents used both emotion-and problemfocused coping strategies to deal with the stressful events.A follow-up telephone interview of these parents a year after the birth of their premature infant found that most parents expressed the experience as positive. A few parents were concerned over the neurodevelopmental and cognitive outcomes of their infants. Implications for clinical practice were discussed.

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A Longitudinal Study of Families of Preterm Infants: Changes in Stress and Support over the First Two Years

Cited by 25 publications

References 11 publications

School-Age Consequences of Birth Weight Less Than 750 g: A Review and Update

School-Age Consequences of Birth Weight Less Than 750 g: A Review and Update

Quality of Life of Caregivers of Very Low–Birthweight Infants

Stress experiences of parents with premature infants in a special care nursery

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