Background
Prior work has shown that symptoms leading to restrictions in daily
activities are common at the end of life. Hospice is a Medicare benefit
designed to alleviate distressing symptoms in the last 6 months of life. The
effect of hospice on the burden of such symptoms is uncertain.
Methods
From an ongoing cohort study of 754 community-dwelling older persons,
aged 70 years or older, we evaluated 241 participants who were admitted to
hospice from March 1998 to December 2013. A set of 15 physical and
psychological symptoms leading to restricted activity (i.e. cut down on
usual activities or spend at least ½ day in bed) were ascertained
during monthly telephone interviews in the year before and three months
after hospice admission.
Results
The prevalence and mean number of restricting symptoms increased
progressively until about 2 months prior to hospice admission, before
increasing precipitously to a peak around the time of hospice admission.
After the start of hospice, both the prevalence and the mean number of
restricting symptoms dropped markedly. For several symptoms deemed most
amenable to hospice treatment, including depression and anxiety, the
prevalence dropped to levels comparable to or lower than those observed 12
months before the start of hospice. The trends observed in symptom
prevalence and mean number of symptoms before and after hospice did not
differ appreciably according to hospice admission diagnosis or sex. The
median duration of hospice (before death) was only 15 days.
Conclusion
The burden of restricting symptoms increases progressively several
months before the start of hospice, peaks around the time of hospice
admission, and decreases substantially after the start of hospice. These
results, coupled with the short duration of hospice, suggest that earlier
referral to hospice may help to alleviate the burden of distressing symptoms
at the end-of-life.