A longitudinal study of support needs after severe traumatic brain injury

Tate, Robyn; Myles, Bridget M; Cameron, Ian D.

doi:10.1080/02699052.2020.1764101

Cited by 23 publications

(10 citation statements)

References 39 publications

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“…Despite the high prevalence of mental health issues in people with acquired neurological disabilities, 73 , 74 , 75 mental health concerns were under‐treated. 44 , 56 , 62 GPs should ensure specific resources and mechanisms (e.g., access to special services, support from regional health services) are available to people with acquired neurological disabilities and complex needs.…”

Section: Discussionmentioning

confidence: 99%

The healthcare needs and general practice utilization of people with acquired neurological disability and complex needs: A scoping review

Oliver

Douglas

Winkler

et al. 2022

Health Expectations

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Background For people with acquired neurological disabilities and complex needs, general practitioners (GPs) play an important role in health management and early intervention for the prevention of comorbidities and health complications. People with disability are a vulnerable group who need and have the right to, quality general practice services. It is therefore important to understand the health needs and service use of this group. The aim of this review was to identify the healthcare needs and general practice utilization of people with acquired neurological disabilities and complex needs. Methods A scoping review methodological framework was utilized. Six databases (MEDLINE, PsycInfo, CINAHL, Scopus, Embase and the Cochrane Library) were searched. Articles were included if they reported on general practice service utilization of people with acquired neurological disabilities and complex needs aged between 18 and 65. Articles were required to be peer‐reviewed, written in English and published between 2010 and 2021. Results Thirty‐one articles were included in the review. Studies originated from Canada (9), the United States (8), Australia (4), Switzerland (4), the United Kingdom (2), England (1), Norway (1), France (1) and Denmark (1). For many people, GPs were the main healthcare provider. People with disability consult multiple healthcare providers and navigate complex healthcare systems. Commonly presented healthcare needs were bladder, bowel and skin problems, pain and chronic pain, medication needs and mental health concerns. Conclusions People with acquired neurological disabilities and complex needs were vulnerable to receiving suboptimal healthcare. The literature highlighted issues regarding the accessibility of services, the fragmentation of health services and inadequate preventative care. GPs were challenged to offer adequate disability‐related expertise and to meet the mental health needs of people with disability within time constraints. Patient and Public Involvement This manuscript was prepared in collaboration with a GP, who is one of the authors. A person with lived experience of acquired neurological disability was engaged to check the alignment of the findings with their personal experience and provide feedback.

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Section: Discussionmentioning

confidence: 99%

The healthcare needs and general practice utilization of people with acquired neurological disability and complex needs: A scoping review

Oliver

Douglas

Winkler

et al. 2022

Health Expectations

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“…Traumatic brain injury (TBI) is one of the most common, with the impact of TBI leading to various physical, cognitive, communicative and behavioural impairments (Ponsford et al, 2013; Sabaz et al, 2014; Sloan et al, 2009). An ABI can impact upon everyday functioning and participation in domains such as employment (Culler et al, 2011; Simpson et al, 2020), relationships (Norup et al, 2020; Thompson & Ryan, 2009) and everyday living (Andrew et al, 2014; Tate et al, 2020). Individuals with ABI use a range of supports to overcome their impairments and assist with community integration and participation in meaningful lifetime activities.…”

Section: Introductionmentioning

confidence: 99%

Clinician experiences with using assistive technology in brain injury rehabilitation: a survey of clinician capability, attitudes, and barriers

2023

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Background: The rise in assistive technology (AT) solutions to support people with an acquired brain injury (ABI) has warranted clinicians to build capability in assisting clients to select goal-centred AT. The study explored, amongst ABI clinicians, (a) capability, attitudes, and barriers with AT implementation, (b) age-related differences in technology self-efficacy and capability (c) strategies to support AT use in rehabilitation and (d) thematic analysis of AT-related experiences. Method: Mixed methods design. Online survey circulated to ABI clinicians across New South Wales, Australia, comprising purpose-designed items as well as the Modified Computer Self-Efficacy Scale (MCSES; range 0–100) Results: Clinicians (n = 123) were evenly distributed across decadal age groups. The majority were female (90%, n = 111) and one-third were occupational therapists. Clinicians scored strongly on the MCSES (Mdn = 76, IQR = 19), with younger age groups significantly associated with higher scores (H[3] = 9.667, p = .022). Most clinicians (92%) were knowledgeable of mainstream technology for personal use, but over half (65%) reported insufficient knowledge of suitable AT for clients. Clinicians reported positive attitudes towards AT, however, time to research and develop proficiency with a range of AT was the primary barrier (81%). Thematic analysis suggested that whilst the ideal AT experience is client-motivated requiring multidisciplinary guidance, the clinician role and experience with AT is evolving, influenced by rapid technological advancement and extrinsic opportunities to access AT. Conclusions: Whilst clinicians have positive attitudes towards AT, there is a gap in clinician implementation. There is need to support further resources to build clinician capability and access to AT.

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“…Acquired brain injury is one of the most common causes of disability in adults, often having a significant impact on a person’s physical, communication, cognitive and psychosocial functioning 9 10. Brain injury frequently results in people requiring assistance for many aspects of their daily life, including accessing the community to participate in activities of their choosing 11 12. Even with the provision of social insurance schemes for people with a lifelong disability, such as the National Disability Insurance Scheme in Australia,13 which enables individuals to have access to the support they require, community and social integration remains challenging for many individuals once they transition home following inpatient rehabilitation 14–16.…”

Section: Introductionmentioning

confidence: 99%

‘What’s next?’ The journey from hospital to community engagement from the perspectives of adults following severe acquired brain injury: a scoping review protocol

2022

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IntroductionCommunity integration and social participation remain a challenge for many individuals following acquired brain injury (ABI) and the transition from hospital to home is a complex journey. It is important to conceptualise this transition from the perspective of people with ABI, to inform future research with the overall aim of improving the experience of community re-engagement and maintaining important relationships within social networks.Methods and analysisThe methodology outlined by Arksey and O’Malley and the Preferred Reporting Items for Systematic Reviews and Meta-Analysis: extension for Scoping Reviews will be used to guide the review. A comprehensive electronic database search will be conducted in MEDLINE, CINAHL, Scopus, Embase and PsychINFO. The search will aim to locate only published, qualitative or mixed methods studies and will be limited to citations published in English, from January 2014 to the date of final search completion. Quality assessment using the Critical Appraisal Skills Programme will be completed and reported.Data extraction will include participant and study characteristics.Finally, qualitative data from each citation, including participant quotes, will be extracted and thematic analysis will be completed to support conceptualisation of community participation from those who have experienced the transition to the community following discharge from hospital. Three individuals with lived experiences of ABI will be engaged as paid consultants to review and comment on the findings of the review.Ethics and disseminationIt is intended that the findings from this review will be made available to relevant stakeholders through peer-reviewed publications and conference presentations. This scoping review does not require an ethics application.

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A longitudinal study of support needs after severe traumatic brain injury

Cited by 23 publications

References 39 publications

The healthcare needs and general practice utilization of people with acquired neurological disability and complex needs: A scoping review

The healthcare needs and general practice utilization of people with acquired neurological disability and complex needs: A scoping review

Clinician experiences with using assistive technology in brain injury rehabilitation: a survey of clinician capability, attitudes, and barriers

‘What’s next?’ The journey from hospital to community engagement from the perspectives of adults following severe acquired brain injury: a scoping review protocol

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