A matter of time: The necessity of temporal language in research on health conditions that present with autism spectrum disorder

Rubenstein, Eric; Bishop-Fitzpatrick, Lauren

doi:10.1002/aur.2010

Cited by 18 publications

(16 citation statements)

References 29 publications

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“…These challenges point to the urgent need for new development and novel use of available mental health assessment schedules for people with autism and/or other neurodevelopmental disabilities. Such assessments should also incorporate a temporally focused terminology to disentangle the temporal development of CMHCs in autism, 51 to better inform causal pathways and, most importantly, clinical formulation for personalised treatment.…”

Section: Discussionmentioning

confidence: 99%

Prevalence of co-occurring mental health diagnoses in the autism population: a systematic review and meta-analysis

Lai

Kassee

Besney

et al. 2019

The Lancet Psychiatry

1,127

838

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Background: Co-occurring mental health/psychiatric conditions (CMHCs) are common in autism, impeding quality of life. Reported prevalence rates range widely. Better prevalence estimates and identification of moderators are needed to enhance recognition and care, and to guide future research. Methods: We conducted a systematic review and meta-analysis according to PRISMA and MOOSE standards (pre-registered protocol:

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Section: Discussionmentioning

confidence: 99%

Prevalence of co-occurring mental health diagnoses in the autism population: a systematic review and meta-analysis

Lai

Kassee

Besney

et al. 2019

The Lancet Psychiatry

1,127

838

View full text Add to dashboard Cite

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“…Why is autism so often accompanied by mental health, difficulties? A number of possibilities exist, which are by no means mutually exclusive (and which might be marked with more nuanced terminology; see, Rubenstein & Bishop‐Fitzpatrick, ). First, apparent ‘comorbidity’ can be due to selection bias, and additional problems may raise the likelihood of an individual requiring clinical services.…”

Section: The Changing Concept Of Autism: 6 From Pure To Complexmentioning

confidence: 99%

Annual Research Review: Looking back to look forward – changes in the concept of autism and implications for future research

Happé

Frith

2020

Child Psychology Psychiatry

239

158

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The concept of autism is a significant contribution from child psychiatry that has entered wider culture and public consciousness, and has evolved significantly over the last four decades. Taking a rather personal retrospective, reflecting on our own time in autism research, this review explores changes in the concept of autism and the implications of these for future research. We focus on seven major changes in how autism is thought of, operationalised, and recognised: (1) from a narrow definition to wide diagnostic criteria; (2) from a rare to a relatively common condition, although probably still under‐recognised in women; (3) from something affecting children, to a lifelong condition; (4) from something discreet and distinct, to a dimensional view; (5) from one thing to many ‘autisms’, and a compound or ‘fractionable’ condition; (6) from a focus on ‘pure’ autism, to recognition that complexity and comorbidity is the norm; and finally, (7) from conceptualising autism purely as a ‘developmental disorder’, to recognising a neurodiversity perspective, operationalised in participatory research models. We conclude with some challenges for the field and suggestions for areas currently neglected in autism research.

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“…In terms of mental health conditions, findings are mixed: Nylander and colleagues (2018) identified high prevalence of affective disorders, anxiety, and psychotic disorders in older adults on the autism spectrum without co-occurring ID while Lever and Geurts (2016) found that older adults on the autism spectrum had fewer psychiatric diagnoses than young or middle aged adults on the autism spectrum. However, research in this area is still nascent and we have argued for the necessity and importance of continuing to evaluate these health conditions, incorporating a temporal and life-course perspective (Rubenstein & Bishop-Fitzpatrick, 2018).…”

Section: Introductionmentioning

confidence: 99%

“…For instance, we see increased occurrence of epilepsy among children with autism and ID compared to children with autism alone (van Eeghen et al, 2013), which may suggest different neurological mechanisms in this subset. However, we do not know if there are health conditions intrinsically tied to autism with ID that develop later in adulthood (Rubenstein & Bishop-Fitzpatrick, 2018). Thus, assessing whether health conditions in the cohort of middle aged and older adults with autism differ between those with and without ID may help us anticipate whether future cohorts will experience similar outcomes despite different prevalence of co-occurring ID .…”

Section: Introductionmentioning

confidence: 99%

The physical and mental health of middle aged and older adults on the autism spectrum and the impact of intellectual disability

Bishop-Fitzpatrick

Rubenstein

2019

Research in Autism Spectrum Disorders

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Background: People on the autism spectrum may have more physical and mental health conditions in midlife and old age compared to the general population. This study describes the physical and mental health of a unique sample of all middle aged and older Wisconsin Medicaid beneficiaries with an autism spectrum disorder diagnosis and tests differences between those with and without co-occurring intellectual disability. Method: Using de-identified Medicaid claims data for 143 adults with a recorded autism spectrum disorder diagnosis aged 40-88 years with any Wisconsin Medicaid claims in 2012 through 2015, we extracted diagnoses for physical and mental health conditions from fee-forservice claims. Logistic regression analyses-controlling for sex, race, and age-compared the adjusted odds of physical and mental health conditions for those with and without intellectual disability. Results: Many physical and mental health conditions, including immune conditions (70.6%), cardiovascular disease (49.0%) and its risk factors (46.2%), sleep disorders (85.3%), gastrointestinal disorders (49.7%), neurologic conditions (55.9%), and psychiatric disorders (72.0%) were highly prevalent in our full sample. Although there were many similarities between those individuals with and without co-occurring intellectual disability, middle aged and older adults on the autism spectrum had higher prevalence of epilepsy and lower prevalence of depression and anxiety compared to those without co-occurring intellectual disability. Conclusions: Findings suggest that people on the autism spectrum have a high prevalence of physical and mental health conditions in midlife and old age, regardless of intellectual disability status.

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A matter of time: The necessity of temporal language in research on health conditions that present with autism spectrum disorder

Cited by 18 publications

References 29 publications

Prevalence of co-occurring mental health diagnoses in the autism population: a systematic review and meta-analysis

Prevalence of co-occurring mental health diagnoses in the autism population: a systematic review and meta-analysis

Annual Research Review: Looking back to look forward – changes in the concept of autism and implications for future research

The physical and mental health of middle aged and older adults on the autism spectrum and the impact of intellectual disability

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