A meta-ethnography of patients’ experience of chronic non-malignant musculoskeletal pain

Abstract

Health Services and Delivery ResearchISSN 2050-4349 (Print) ISSN 2050-4357 (Online) This journal is a member of and subscribes to the principles of the Committee on Publication Ethics (COPE) (www.publicationethics.org/).Editorial contact: nihredit@southampton.ac.ukThe full HS&DR archive is freely available to view online at www.journalslibrary.nihr.ac.uk/hsdr. Print-on-demand copies can be purchased from the report pages of the NIHR Journals Library website: www.journalslibrary.nihr.ac.uk Criteria for inclusion in the Health Services and Delivery Research journalReports are published in Health Services and Delivery Research (HS&DR) if (1) they have resulted from work for the HS&DR programme or programmes which preceded the HS&DR programme, and (2) they are of a sufficiently high scientific quality as assessed by the reviewers and editors. HS&DR programmeThe Health Services and Delivery Research (HS&DR) programme, part of the National Institute for Health Research (NIHR), was established to fund a broad range of research. It combines the strengths and contributions of two previous NIHR research programmes: the Health Services Research (HSR) programme and the Service Delivery and Organisation (SDO) programme, which were merged in January 2012.The HS&DR programme aims to produce rigorous and relevant evidence on the quality, access and organisation of health services including costs and outcomes, as well as research on implementation. The programme will enhance the strategic focus on research that matters to the NHS and is keen to support ambitious evaluative research to improve health services.For more information about the HS&DR programme please visit the website: www.netscc.ac.uk/hsdr/ This reportThe research reported in this issue of the journal was funded by the HS&DR programme or one of its proceeding programmes as project number 09/2001/09. The contractual start date was in October 2010. The final report began editorial review in November 2012 and was accepted for publication in February 2013. The authors have been wholly responsible for all data collection, analysis and interpretation, and for writing up their work. The HS&DR editors and production house have tried to ensure the accuracy of the authors' report and would like to thank the reviewers for their constructive comments on the final report document. However, they do not accept liability for damages or losses arising from material published in this report.This report presents independent research funded by the National Institute for Health Research (NIHR). The views and opinions expressed by authors in this publication are those of the authors and do not necessarily reflect those of the NHS, the NIHR, NETSCC, the HS&DR programme or the Department of Health. If there are verbatim quotations included in this publication the views and opinions expressed by the interviewees are those of the interviewees and do not necessarily reflect those of the authors, those of the NHS, the NIHR, NETSCC, the HS&DR programme or the Department of Health. Published b...

Barriers to self-management of chronic pain in primary care: a qualitative focus group study

“…Metaethnographies or meta-synthesis of such studies provide a useful comparator for the current study. The findings resonate with many of the themes discussed: the adversarial struggle to affirm self, explain pain, negotiate the healthcare system, and to be valued and believed; 25 the undermining and disempowering impact of pain, and unsatisfying relationships with healthcare providers; 26 difficulties with activities and stigma; 27 and the impact on self and relations with significant others. 28 The same studies find some evidence of moving forward with pain, accepting and adjusting, and changing outlook.…”

‘It makes you think’ – exploring the impact of qualitative films on pain clinicians

“…com/watch?v=FPpu7dXJFRI) was funded by the National Institute for Health Research Health Services and Delivery Research (NIHR HS&DR) Programme as an output from a qualitative synthesis. 2 The film has received more than 8200 hits on YouTube since November 2013. As a result of a subsequent collaboration between FT and SJ, the film was delivered as part of an evidence-based 'bio-psychosocial' module content, within an MSc Level, e-learning module, 'Foundation in Primary Care Pain Management'.…”

“…1,2 In particular, we were interested in the impact of the film on clinician's understanding of patients' experience of chronic pain and how this knowledge might be used for improved healthcare for people with pain. In this article, we focus on one exemplar of findings to illustrate the potential impact of qualitative research on the management of chronic pain.…”

The experimental analysis of the interruptive, interfering, and identity-distorting effects of chronic pain

“…The inability to complete a task or to perform it to an acceptable standard or to one's expectations of what others might require is deeply frustrating, and leads to a steady degradation in ones behavioural repertoire, loss of role with a corresponding challenge to the sense of who you are and perhaps more importantly who you might become (Harris, Morley, & Barton, 2003). A meta-synthesis of the data relevant to chronic musculoskeletal pain identified several pertinent themes including 'a struggle to affirm the self and construct the self over time' and 'being valued and believed' (Toye et al, 2013). In living successfully with pain, patients reported the need renegotiate their place in the community, 'letting go' of their previous sense of self, and redefining new elements of the self.…”