A mixed-methods exploration of faith, spirituality, and health program interest among older African Americans with HIV

Maragh-Bass, Allysha C.; Sloan, Danetta H.; Alghanim, Fahid; Knowlton, Amy R.

doi:10.1007/s11136-020-02656-6

Cited by 5 publications

(10 citation statements)

References 51 publications

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“…Additional innovations are sorely needed; faith‐based interventions may be a viable setting for future ACP to address the cumulative barriers of HIV stigma and medical mistrust in this community. Our recent research exploring faith‐based approaches to health programme interest among older African Americans qualitatively found that faith/spirituality was instrumental to coping with life challenges and that faith leaders were trusted sources of health information (Maragh‐Bass et al, 2020). We also found that satisfaction with religion/spirituality was quantitatively associated with greater interest in a future health programmes which may focus on quality of life (Maragh‐Bass et al, 2020).…”

Section: Discussionmentioning

confidence: 99%

“…Our recent research exploring faith‐based approaches to health programme interest among older African Americans qualitatively found that faith/spirituality was instrumental to coping with life challenges and that faith leaders were trusted sources of health information (Maragh‐Bass et al, 2020). We also found that satisfaction with religion/spirituality was quantitatively associated with greater interest in a future health programmes which may focus on quality of life (Maragh‐Bass et al, 2020). Future ACP interventions should consider educational components delivered by faith leaders, who are often called upon to consult older African Americans for ACP‐related decisions.…”

Section: Discussionmentioning

confidence: 99%

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‘The Woman Gives’: Exploring gender and relationship factors in HIV advance care planning among African American caregivers

Maragh-Bass

Sloan

Aimone

et al. 2021

Journal of Clinical Nursing

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Aims and objective Advance care planning (ACP) is the communication process of documenting future healthcare preferences in case patients are unable to make healthcare decisions for themselves. Research suggests ACP discussions among persons living with HIV (PLHIV) are infrequent overall and may differ by gender and/or race. Background Previous literature has displayed that African Americans are less likely than other racial groups to use advanced care planning, palliative care or hospice, but does not conclusively account for ACP among PLHIV. African American PLHIV rely on informal care that may be differ by gender and represents an important pathway to increase ACP. Design The study was mixed methods and observational. Methods Participants completed self‐report surveys (N = 311) and were interviewed (n = 11). Poisson regression (quantitative) and grounded theory analyses (qualitative) were implemented, using COREQ checklist principles to ensure study rigor. Results Less than half had discussed ACP (41.2%; N = 267). More ACP knowledge predicted 76% lower likelihood of ACP discussions among women. Men who spent more time caregiving in a given week were nearly 3 times more likely to discuss ACP than men who spent less time caregiving. Women were more likely than men to be caregivers and were also expected to serve in that role more than men, which was qualitatively described as ‘being a woman’. Conclusions The present study is one of few studies exploring ACP among caregivers in African American populations hardest hit by HIV. Results suggest that ACP skill building and education are critical for African Americans living with HIV to promote ACP discussions with their caregivers. Knowledge about ACP topics was low overall even when healthcare had recently been accessed. Support reciprocity and gender‐specific communication skill building may facilitate ACP in African American HIV informal caregiving relationships. Relevance to Clinical Practice Results underscore the need for ACP education which includes healthcare providers and caregivers, given African Americans' preference for life‐sustaining treatments at end‐of‐life. ACP is crucial now more than ever, as COVID‐19 complicates care for older adults with HIV at high risk of complications.

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Section: Discussionmentioning

confidence: 99%

Section: Discussionmentioning

confidence: 99%

‘The Woman Gives’: Exploring gender and relationship factors in HIV advance care planning among African American caregivers

Maragh-Bass

Sloan

Aimone

et al. 2021

Journal of Clinical Nursing

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Section: Renewed Focus On Those In Needmentioning

confidence: 99%

“…Our recent work with African American men and women living with HIV demonstrates the importance of looking at broader ways to promote quality of life and positive health outcomes for those living with HIV [20][21][22]. We found that stigma related to HIV diagnosis, and the challenging nature of social interactions was associated with lower likelihood of viral suppression, and subsequent reduced benefits from Treatment as Prevention (TasP) approaches [21]. Although both men and women experienced some stigma related to living with HIV, women experienced more stigma, perpetrated more stigma, and were over-represented among those who were less adherent to their medications [21].…”

Section: Renewed Focus On Those In Needmentioning

confidence: 99%

‘Ending the HIV epidemic’: where are African American women in the plan?

Maragh-Bass

Parker

Thompson

et al. 2021

Aids

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“…In general, human beings find themselves in a situation where they see themselves closer to death than before, turning to spirituality and God [8]. As they approach spirituality, they experience a sense of calm [9].…”

Section: Introductionmentioning

confidence: 99%

A Case Study on the Effect of Spirituality on Reducing Stress and Grief Caused by COVID-19

Pourhosein¹

2021

JPMHC

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Introduction: At the beginning of 2020, the Corona Virus created a major pandemic in the world that was associated with death in all countries. In addition to the many crises caused by this pandemic, a variety of mental disorders also emerged. One of the most common disorders in the acute phase of the disease was Stress and Depression in patients as well as the general population. During this time, many protocols have been proposed for managing stress and depression. In this study, the effect of Spirituality and Religious Behavior on reducing depression caused by grief and stress has been studied. Presentation Case: Our case is a 45-year-old Iranian Muslim woman who witnessed the death of her husband at the beginning of the Corona pandemic, and she herself suffered from Covid 19. She has been quarantined and under treatment for three months. During this time, she was alone and could not even attend his wife's funeral and mourning. Due to quarantine, others did not contact him and only contacted him by phone. This person is a believer, has high spirituality and performs religious behaviors carefully, and believes that deep belief in God, spirituality, and performing religious behaviors can make suffering easier. Conclusion: Through an in-depth and semi-structured interview with a phenomenological approach, it was found that she was able to overcome the stress caused by the Corona pandemic and Covid 19 and also the depression caused by mourning her husband by relying on deep religious beliefs. And keep yourself consistent in life. It was also concluded that if there were no religious beliefs and spirituality in this person, he could not overcome the stress of illness and grief of her husband divine worldview can increase spirituality and the power of compromise in the face of suffering.

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A mixed-methods exploration of faith, spirituality, and health program interest among older African Americans with HIV

Cited by 5 publications

References 51 publications

‘The Woman Gives’: Exploring gender and relationship factors in HIV advance care planning among African American caregivers

‘The Woman Gives’: Exploring gender and relationship factors in HIV advance care planning among African American caregivers

‘Ending the HIV epidemic’: where are African American women in the plan?

A Case Study on the Effect of Spirituality on Reducing Stress and Grief Caused by COVID-19

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