A model for incorporating patient and stakeholder voices in a learning health care network: Washington State's Comparative Effectiveness Research Translation Network

Devine, Emily Beth; Alfonso-Cristancho, Rafael; Devlin, Allison; Edwards, Todd C.; Farrokhi, Ellen; Kessler, Larry G.; Lavallee, Danielle C.; Patrick, Donald L.; Sullivan, Sean D.; Tarczy‐Hornoch, Peter; Yanez, N. David; Flum, David R.

doi:10.1016/j.jclinepi.2013.04.007

Cited by 41 publications

(34 citation statements)

References 30 publications

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“…During the study design process, we surveyed 10 individuals with chronic stroke who participated in a study-specific patient advisory group 31 and recorded their common frustrations with their upper extremity function. We then selected outcome measures that captured each of these aspects of performance.…”

Section: Discussionmentioning

confidence: 99%

In-Home Delivery of Constraint-Induced Movement Therapy via Virtual Reality Gaming

Borstad

Crawfis

Phillips

et al. 2018

Journal of Patient-Centered Research and Reviews

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Section: Discussionmentioning

confidence: 99%

In-Home Delivery of Constraint-Induced Movement Therapy via Virtual Reality Gaming

Borstad

Crawfis

Phillips

et al. 2018

Journal of Patient-Centered Research and Reviews

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“…18 The SCOAP is a coordinated quality improvement program of the Foundation for Health Care Quality. The CERTAIN is a program of the University of Washington, the academic research and development partner of the SCOAP.…”

Section: Methodsmentioning

confidence: 99%

Thromboembolic Complications and Prophylaxis Patterns in Colorectal Surgery

et al. 2015

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IMPORTANCE Venous thromboembolism (VTE) is an important complication of colorectal surgery, but its incidence is unclear in the era of VTE prophylaxis. OBJECTIVE To describe the incidence of and risk factors associated with thromboembolic complications and contemporary VTE prophylaxis patterns following colorectal surgery. DESIGN, SETTING, AND PARTICIPANTS Prospective data from the Washington State Surgical Care and Outcomes Assessment Program (SCOAP) linked to a statewide hospital discharge database. At 52 Washington State SCOAP hospitals, participants included consecutive patients undergoing colorectal surgery between January 1, 2006, and December 31, 2011. MAIN OUTCOMES AND MEASURES Venous thromboembolism complications in-hospital and up to 90 days after surgery. RESULTS Among 16 120 patients (mean age, 61.4 years; 54.5% female), the use of perioperative and in-hospital VTE chemoprophylaxis increased significantly from 31.6% to 86.4% and from 59.6% to 91.4%, respectively, by 2011 (P < .001 for trend for both). Overall, 10.6% (1399 of 13 230) were discharged on a chemoprophylaxis regimen. The incidence of VTE was 2.2% (360 of 16 120). Patients undergoing abdominal operations had higher rates of 90-day VTE compared with patients having pelvic operations (2.5% [246 of 9702] vs 1.8% [114 of 6413], P = .001). Those having an operation for cancer had a similar incidence of 90-day VTE compared with those having an operation for nonmalignant processes (2.1% [128 of 6213] vs 2.3% [232 of 9902], P = .24). On adjusted analysis, older age, nonelective surgery, history of VTE, and operations for inflammatory disease were associated with increased risk of 90-day VTE (P < .05 for all). There was no significant decrease in VTE over time. CONCLUSIONS AND RELEVANCE Venous thromboembolism rates are low and largely unchanged despite increases in perioperative and postoperative prophylaxis. These data should be considered in developing future guidelines.

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“…The Comparative Effectiveness Research Translation Network (CERTAIN) provided research and analytic support to SCOAP. 21 Patients undergoing emergent colectomy for diverticulitis were included both for descriptive statistical comparison and for measuring trends over the time course of the study alone.…”

Section: Methodsmentioning

confidence: 99%

Addressing the Appropriateness of Elective Colon Resection for Diverticulitis

et al. 2014

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Objective To assess the reported indications for elective colon resection for diverticulitis and concordance with professional guidelines. Background Despite modern professional guidelines recommending delay in elective colon resection beyond 2 episodes of uncomplicated diverticulitis, the incidence of elective colectomy has increased dramatically in the last 2 decades. Whether surgeons have changed their threshold for recommending a surgical intervention is unknown. In 2010, Washington State’s Surgical Care and Outcomes Assessment Program initiated a benchmarking and education initiative related to the indications for colon resection. Methods Prospective cohort study evaluating indications from chronic complications (fistula, stricture, bleeding) or the number of previously treated diverticulitis episodes for patients undergoing elective colectomy at 1 of 49 participating hospitals (2010–2013). Results Among 2724 patients (58.7 ± 13 years; 46% men), 29.4% had a chronic complication indication (15.6% fistula, 7.4% stricture, 3.0% bleeding, 5.8% other). For the 70.5% with an episode-based indication, 39.4% had 2 or fewer episodes, 56.5% had 3 to 10 episodes, and 4.1% had more than 10 episodes. Thirty-one percent of patients failed to meet indications for either a chronic complication or 3 or more episodes. Over the 4 years, the proportion of patients with an indication of 3 or more episodes increased from 36.6% to 52.7% (P < 0.001) whereas the proportion of those who failed to meet either clinical or episode-based indications decreased from 38.4% to 26.4% (P < 0.001). The annual rate of emergency resections did not increase significantly, varying from 5.6 to 5.9 per year (P = 0.81). Conclusions Adherence to a guideline based on 3 or more episodes for elective colectomy increased concurrently with a benchmarking and peer-to-peer messaging initiative. Improving adherence to professional guidelines related to appropriate care is critical and can be facilitated by quality improvement collaboratives.

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A model for incorporating patient and stakeholder voices in a learning health care network: Washington State's Comparative Effectiveness Research Translation Network

Cited by 41 publications

References 30 publications

In-Home Delivery of Constraint-Induced Movement Therapy via Virtual Reality Gaming

In-Home Delivery of Constraint-Induced Movement Therapy via Virtual Reality Gaming

Thromboembolic Complications and Prophylaxis Patterns in Colorectal Surgery

Addressing the Appropriateness of Elective Colon Resection for Diverticulitis

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