A model for transition from pediatric to adult care in cystic fibrosis

Madge, Susan; Bryon, Mandy

doi:10.1053/jpdn.2002.126711

Cited by 56 publications

(58 citation statements)

References 9 publications

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“…4,7,12 Coordinated Transfer Process A coordinated transfer process is the final component of a successful transfer process. 11,12,195 A carefully prepared health summary allows seamless transfer of care and provides a blueprint for the new healthcare team. It should comprise a complete medical history that includes diagnoses and previous interventions, a medication list, laboratory values, and other diagnostic studies, as well as information about the patient's functional status, the tempo of disease progression, and the impact of other comorbidities.…”

Section: Adult Provider Servicesmentioning

confidence: 99%

“…In addition, to address the inevitable uncertainty felt by young people and their families about impending transfer, many programs have created a transfer "package" with information about the adult programs. 195 Finally, patients who have already transferred can play a part in welcoming young people who are transferring their care.…”

Section: Adult Provider Servicesmentioning

confidence: 99%

See 1 more Smart Citation

Best Practices in Managing Transition to Adulthood for Adolescents With Congenital Heart Disease: The Transition Process and Medical and Psychosocial Issues

Sable¹,

Foster²,

Uzark³

et al. 2011

Circulation

392

280

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Section: Adult Provider Servicesmentioning

confidence: 99%

Section: Adult Provider Servicesmentioning

confidence: 99%

Best Practices in Managing Transition to Adulthood for Adolescents With Congenital Heart Disease: The Transition Process and Medical and Psychosocial Issues

Sable¹,

Foster²,

Uzark³

et al. 2011

Circulation

392

280

View full text Add to dashboard Cite

“…A coordinated transfer process is the fi nal component of a successful transfer [7,8,37]. A carefully prepared health summary allows seamless transfer of care and provides a blueprint for the new health care team.…”

Section: Coordinated Transfer Processmentioning

confidence: 99%

“…For example, a central provider (eg, an advanced practice nurse or physician assistant) who can assume responsibility for the entire process is helpful [7,37]. The coordinator can share membership on both the pediatric and adult teams and serve as a liaison between them and as a reassuring presence and advocate for patients and families.…”

Section: Coordinated Transfer Processmentioning

confidence: 99%

Transition and transfer from pediatric to adult care of young adults with complex congenital heart disease

Meadows

Bosco²,

Tong³

et al. 2009

Curr Cardiol Rep

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Many children with complex congenital heart disease are now surviving childhood with the potential to live meaningful and productive adult lives. The process of transitioning or preparing patients and families for transfer from pediatric to adult care is challenging and rarely implemented properly. An inadequate transition process results in delayed and inappropriate care, improper timing of transfer, and undue emotional and financial stress on the patients, their families, and the health care system. At worst, patients are lost to appropriate follow-up. This article discusses the general principles of transition and transfer for young adults with chronic illness, highlights the needs of young adults with congenital heart disease, discusses the barriers to transition, and proposes goals and key elements of a formal transition program.

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“…Currently, however, this is not universally practised due to historical and operational reasons, including the absence of an appropriately trained adult teams. There are excellent examples where paediatric teams deliver whole of life care for people with CF [49][50][51]. However, this is not the norm in chronic diseases in most countries and is not a sustainable arrangement.…”

Section: End Of Life Carementioning

confidence: 99%

Report of the European Respiratory Society/European Cystic Fibrosis Society task force on the care of adults with cystic fibrosis

et al. 2015

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The improved survival in people with cystic fibrosis has led to an increasing number of patients reaching adulthood. This trend is likely to be maintained over the next decades, suggesting a need to increase the number of centres with expertise in the management of adult patients with cystic fibrosis. These centres should be capable of delivering multidisciplinary care addressing the complexity of the disease, in addition to addressing the psychological burden on patients and their families. Further issues that require attention are organ transplantation and end of life management.Lung disease in adults with cystic fibrosis drives most of the clinical care requirements, and major lifethreatening complications, such as respiratory infection, respiratory failure, pneumothorax and haemoptysis, and the management of lung transplantation require expertise from trained respiratory physicians. The taskforce therefore strongly reccommends that medical leadership in multidisciplinary adult teams should be attributed to a respiratory physician adequately trained in cystic fibrosis management.The task force suggests the implementation of a core curriculum for trainees in adult respiratory medicine and the selection and accreditation of training centres that deliver postgraduate training to the standards of the HERMES programme. @ERSpublications Respiratory physicians, trained in adult CF management, should lead multidisciplinary teams taking care of patients http://ow.ly/SgRgj

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A model for transition from pediatric to adult care in cystic fibrosis

Cited by 56 publications

References 9 publications

Best Practices in Managing Transition to Adulthood for Adolescents With Congenital Heart Disease: The Transition Process and Medical and Psychosocial Issues

Best Practices in Managing Transition to Adulthood for Adolescents With Congenital Heart Disease: The Transition Process and Medical and Psychosocial Issues

Transition and transfer from pediatric to adult care of young adults with complex congenital heart disease

Report of the European Respiratory Society/European Cystic Fibrosis Society task force on the care of adults with cystic fibrosis

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