A model of identity grounded in the acute season of survivorship

Thiessen, Maclean; Hack, Thomas F.; Pitz, Marshall; Anderson, Marcia

doi:10.1002/pon.4842

Cited by 9 publications

(10 citation statements)

References 27 publications

(31 reference statements)

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“…They identify that HISB serves to “increase predictability” [ 27 ] and may assist with “anticipating the sequence of events” [ 27 ] that will likely take place. These goals of HISB are consistent with the informational need identified in the study leading up to this work: that information is essential to helping individuals know what to expect in the future so that they can effectively plan how to live their lives [ 22 ].…”

Section: Introductionmentioning

confidence: 63%

“…In a previous study conducted by the lead author (MT) [ 22 ] it was identified that the diagnosis of malignancy resulted in widespread interruption to the lives of those affected by cancer. This study used grounded theory [ 23 , 24 ] to analyze data from 43 semistructured interviews conducted with 18 patients who had been recently diagnosed with cancer and 15 friends and family in Manitoba, Canada.…”

Section: Introductionmentioning

confidence: 99%

“…A theoretical framework that addresses this gap in the literature is thought to be valuable for developing interventions that address the informational needs of those living with cancer [ 1 , 4 , 11 , 12 , 14 , 15 , 35 , 38 , 48 ]. Such a framework would be capable of informing the development of interventions that support individuals in planning their lives around the short- and long-term consequences of cancer, including the receipt of treatment and altered life expectancy [ 22 , 50 ].…”

Section: Introductionmentioning

confidence: 99%

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Information Access and Use by Patients With Cancer and Their Friends and Family: Development of a Grounded Theory

Thiessen¹,

Sinclair²,

Tang³

et al. 2020

J Med Internet Res

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Background Information has been identified as a commonly unmet supportive care need for those living with cancer (ie, patients and their friends and family). The information needed to help individuals plan their lives around the consequences of cancer, such as the receipt of health care, is an example of an important informational need. A suitable theory to guide the development of interventions designed to meet this informational need has not been identified by the authors. Objective The aim of this study is to generate a grounded theory capable of guiding the development of interventions designed to assist those living with cancer in meeting their informational needs. Methods Classic grounded theory was used to analyze data collected through digitally recorded one-on-one audio interviews with 31 patients with cancer and 29 friends and family members. These interviews focused on how the participants had accessed and used information to plan their lives and what barriers they faced in obtaining and using this information. Results The theory that emerged consisted of 4 variables: personal projects, cancer as a source of disruption to personal projects, information as the process of accessing and interpreting cancer-related data (CRD) to inform action, and CRD quality as defined by accessibility, credibility, applicability, and framing. CRD quality as a moderator of personal project disruption by cancer is the core concept of this theory. Conclusions Informational resources providing accessible, credible, applicable, and positively framed CRD are likely key to meeting the information needs of those affected by cancer. Web-based informational resources delivering high-quality CRD focused on assisting individuals living with cancer in maintaining and planning their personal projects are predicted to improve quality of life. Research is needed to develop and integrate resources informed by this theoretical framework into clinical practice.

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Section: Introductionmentioning

confidence: 63%

Section: Introductionmentioning

confidence: 99%

Section: Introductionmentioning

confidence: 99%

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Information Access and Use by Patients With Cancer and Their Friends and Family: Development of a Grounded Theory

Thiessen¹,

Sinclair²,

Tang³

et al. 2020

J Med Internet Res

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“…The coding process progressed through open, selective and theoretical coding in keeping with methods well described elsewhere [22,23,25]. Data collection, analysis, and drafting of the manuscript was conducted by the first author (MT), a researcher and practicing medical oncologist who has conducted and published previous work employing classic grounded theory methods [28,29]. He has received training in conducting classic grounded theory research as well as qualitative research methods in general at the masters and doctoral level.…”

Section: Methodsmentioning

confidence: 99%

Fit theory: A cancer experience grounded theory emerging from semi-structured interviews with cancer patients and informal caregivers in Manitoba Canada during the COVID-19 pandemic

et al. 2022

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Background It is not clear how changes to healthcare delivery related to the COVID-19 pandemic, including virtual care and social distancing restrictions, have impacted the experience of living with cancer. This study aimed to discover a theory capable of describing the cancer experience, how the pandemic impacted it, and for guiding predictions about how to improve it. Methods Between October 2020 and July 2021 digitally recorded semi-structured one-on-one interviews were conducted virtually with adult cancer patients and informal caregivers in Manitoba, Canada. Transcriptions and field notes from the interviews were analyzed using classic grounded theory. Results Interviews with 33 patients and 6 informal caregivers were conducted. Fit emerged as the core concept of the theory and describes the relationship between the healthcare system and the unique combination of characteristics each patient has. Good fit results in a positive experience and poor fit in a negative experience. Virtual care improves fit in clinical situations where non-verbal communication and physical examination are not important. Support from informal caregivers improves fit. Social distancing restrictions reduce the ability of informal caregivers to provide support. Conclusions The impact of fit on the cancer experience suggests that care delivery should be tailored to both the individual needs of the patient and the intention of the clinical interaction. Developing evidence-based strategies to inform the integration of virtual care into oncology practice, with aim of promoting good fit between patients and healthcare services, is an important future direction.

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“…In a previous study conducted by the lead author (MT) [22] it was identified that the diagnosis of malignancy resulted in widespread interruption to the lives of those affected by cancer. This study used grounded theory [23,24] to analyze data from 43 semistructured interviews conducted with 18 patients who had been recently diagnosed with cancer and 15 friends and family in Manitoba, Canada.…”

Section: Introductionmentioning

confidence: 99%

Information Access and Use by Patients With Cancer and Their Friends and Family: Development of a Grounded Theory (Preprint)

Thiessen¹,

Sinclair²,

Tang³

et al. 2020

Preprint

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BACKGROUND Information has been identified as one of the most commonly unmet supportive care need for those living with cancer (i.e. patients and their friends and family). The information needed to help individuals plan their lives around the consequences of cancer, such as the receipt of healthcare, has been identified as a unique area of need. A theory to guide the development of interventions designed to meet this informational need has not been identified by the authors. OBJECTIVE The purpose of this study was to generate a grounded theory capable of guiding the development of informational interventions to assist those living with cancer in planning their lives. METHODS Classical Grounded Theory was used to analyze data collected through digitally recorded one-on-one audio interviews with 31 cancer patients and 29 friends/family members. These interviews focused on how the participants had accessed and used cancer information to plan their lives, and what barriers existed to obtaining and using this information. RESULTS The theory that emerged consisted of four variables: 1) personal projects, 2) cancer as a source of disruption to personal projects, 3) information as the process of accessing cancer related data (CRD) and interpreting it to inform action, and 4) CRD quality as defined by accessibility, credibility, applicability, and framing. The central category that emerged was CRD quality as a moderator of personal project disruption by cancer. CONCLUSIONS Informational resources that contain CRD that is accessible, credible, applicable and positively framed are essential to meeting the information needs of those affected by cancer. Web-based informational resources delivering high quality CRD focused on assisting individuals living with cancer in maintaining and planning their personal projects will improve quality of life. Research is needed to develop and integrate resources informed by this theoretical framework into clinical practice.

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A model of identity grounded in the acute season of survivorship

Cited by 9 publications

References 27 publications

Information Access and Use by Patients With Cancer and Their Friends and Family: Development of a Grounded Theory

Information Access and Use by Patients With Cancer and Their Friends and Family: Development of a Grounded Theory

Fit theory: A cancer experience grounded theory emerging from semi-structured interviews with cancer patients and informal caregivers in Manitoba Canada during the COVID-19 pandemic

Information Access and Use by Patients With Cancer and Their Friends and Family: Development of a Grounded Theory (Preprint)

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