A model of the process of transformation in primary care for people living with chronic illnesses

Dubouloz, Claire-Jehanne; King, Judy; Paterson, Barbara; Ashe, Brenda; Chevrier, Jacques; Moldoveanu, Mirela

doi:10.1177/1742395310383340

Cited by 33 publications

(29 citation statements)

References 16 publications

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“…Our findings may indicate that patients view the outpatient clinic as providing something more than just medication titration. The feeling of being in safe hands at an outpatient clinic may help and guide patients in the process of transformation to maintain an acceptable state of health (Dubouloz et al, ; Spaling et al, ; Wingham et al, ). It is clear from our findings that HF nurses play an important role in motivating HF patients to engage in self‐care, respond effectively to treatment demands and boost their capacity.…”

Section: Discussionmentioning

confidence: 99%

A qualitative study of living with the burden from heart failure treatment: Exploring the patient capacity for self‐care

2020

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Aim To explore how patients with heart failure perceive their capacity to manage treatment and self‐care. Design A qualitative descriptive study. Methods Patients (N = 17) were recruited from a nurse‐led heart failure outpatient clinic from May–August 2017. Data were collected through individual semi‐structured interviews and analysed using systematic text condensation. Results Three main themes were identified as follows: “Personal characteristics,” “Coping strategies” and “Emotional and informative support.” The first main theme contained the subthemes “inherent strength” and “maintenance of a positive attitude.” The second main theme included the subthemes “selective denial,” “ability to adapt by setting new goals” and “careful selection of information.” The third main theme contained the subthemes “support from health professionals enhancing patient capacity,” “support from next of kin in patients' self‐care” and “practical support and hope from peers.”

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Section: Discussionmentioning

confidence: 99%

A qualitative study of living with the burden from heart failure treatment: Exploring the patient capacity for self‐care

2020

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“…Giving survivors the autonomy to set their own goals and to take risks allows them to test their abilities, which can lead to adjusted expectations and, eventually, to adaptation [28]. Previous research on understanding the process of adjustment post-stroke supports this perspective [29,69].…”

Section: Discussionmentioning

confidence: 85%

The experiences of everyday activities post-stroke

Atler

2015

Disability and Rehabilitation

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Stroke survivors' lived experiences of pleasure, productivity and restoration in the context of everyday activities yields insight into the survivors' recovery and adjustment processes and into their quality of life. Practitioners should therefore incorporate stroke survivors' experiences as they facilitate goal setting and plan interventions. Implications for Rehabilitation Understanding stroke survivors' lived experiences provides practitioners valuable information to assist with goal setting and intervention planning. A sense of accomplishment may be gained outside of work in home management and high demand leisure activities for survivors with low self-efficacy. Practitioners should consider facilitating stroke survivors' participation in their hobbies as these activities were associated with high level of pleasure, productivity and restoration. Attending to stroke survivors' self-perceptions and self-expectations is critical as these internal factors influence their lived experience.

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“…This was because of three invited women declining the offer to participate. Contexts, such as the social and health care systems, are of importance for a person’s learning process (Dubouloz et al, 2010). One has to bear in mind that all participants came from the same geographical area and were recruited from a hospital setting; this is a limitation when transferring findings from this study to other contexts.…”

Section: Discussionmentioning

confidence: 99%

Living with diabetes—Development of learning patterns over a 3-year period

Kneck

Fagerberg

Lundman

2014

International Journal of Qualitative Studies on Health and Well

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BackgroundLearning involves acquiring new knowledge and skills, and changing our ways of thinking, acting, and feeling. Learning in relation to living with diabetes is a lifelong process where there is limited knowledge of how it is experienced and established over time. It was considered important to explore how learning was developed over time for persons living with diabetes.AimThe aim of the study was to identify patterns in learning when living with diabetes, from recently being diagnosed, and over a 3-year period.Materials and methodsA longitudinal qualitative descriptive design was used. Thirteen participants, with both type I and type II diabetes, were interviewed at three different occasions during a 3-year period. Qualitative content analysis was used in different steps in order to distinguish patterns.FindingsFive main patterns of learning were identified. Two of the patterns (I and II) were characterized by gradually becoming comfortable living with diabetes, whereas for one pattern (IV) living with diabetes became gradually more difficult. For pattern V living with diabetes was making only a limited impact on life, whereas for Pattern III there was a constant management of obstacles related to illness. The different patterns in the present study showed common and different ways of learning and using different learning strategies at different timespans.ConclusionThe present study showed that duration of illness is not of importance for how far a person has come in his own learning process. A person-centered care is needed to meet the different and changing needs of persons living with diabetes in relation to learning to live with a lifelong illness.

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A model of the process of transformation in primary care for people living with chronic illnesses

Cited by 33 publications

References 16 publications

A qualitative study of living with the burden from heart failure treatment: Exploring the patient capacity for self‐care

A qualitative study of living with the burden from heart failure treatment: Exploring the patient capacity for self‐care

The experiences of everyday activities post-stroke

Living with diabetes—Development of learning patterns over a 3-year period

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