A narrative synthesis of the quality of cancer care and development of an integrated conceptual framework

Chiew, Kim-Lin; Sundaresan, Puma; Jalaludin, Bin; Vinod, Shalini

doi:10.1111/ecc.12881

Cited by 16 publications

(17 citation statements)

References 108 publications

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“…Chiew et al (2018) recently conducted a narrative synthesis of available cancer care quality assessments, with the aim of creating an integrated conceptual framework. This framework includes many of the domains assessed in the NICPES, and highlights the importance of incorporating patient experience within this, emphasising this is as crucial as disease outcomes [ 30 ]. This integrated framework also highlights the significance of including a ‘timeliness of care’ domain, which was of vital importance to the respondents in the NICPES 2018, given the impact this was perceived to have on their chances of survival.…”

Section: Discussionmentioning

confidence: 99%

Exploring patient experiences of cancer care in Northern Ireland: A thematic analysis of free-text responses to the 2018 Northern Ireland Patient Experience Survey (NICPES)

Prue

O'Connor

Brown

et al. 2021

BMC Health Serv Res

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Background Cancer diagnosis, treatment and survivorship is multifaceted, and the cancer patient experience can serve as a key indicator of healthcare performance and quality. The purpose of this paper was to analyse free-text responses from the second Northern Ireland Cancer Patient Experience Survey (NICPES) in 2018, to understand experiences of care, emerging themes and identify areas for improvement. Methods A 72-item questionnaire (relating to clinical care experience, socio-demographics and 3 free-text questions) was distributed to all Health & Social Care Northern Ireland patients that met the inclusion criteria (≥ 16 years old; confirmed primary diagnosis of cancer and discharged between 1st May and 31st October 2017) in June 2018. Participants could complete the questionnaire online or access a free telephone support line if required. Open-ended free text responses were analysed thematically to identify common themes. Free text responses were divided into positive or negative comments. Results In total, 3,748 people responded to the survey, with 2,416 leaving at least one free text comment (69 %). Women aged 55–74 years were most likely to comment. Overall, 3,644 comments were left across the three comments boxes, which were categorised as either positive (2,462 comments; 68 %) or negative / area for improvement (1,182 comments; 32 %). Analysis of free text responses identified six common themes (staff; speed [diagnosis and treatment]; safety; system; support services and specific concerns), which were all related to the overarching theme of survival. Staff was the largest single theme (1,458 responses) with overwhelmingly positive comments (1,322 responses; 91 %), whilst safety (296 negative comments; 70 %) and system (340 negative comments; 81 %) were predominantly negative. Negative comments relating to primary care, aftercare and the cancer system were reported. Conclusions The high response rate to the free text comments indicates patients were motivated to engage. Analysis indicates most comments provided were positive in nature. Most survey respondents reported a positive experience in relation to staff. However, there were a number of areas for improvement including the aftercare experience, and a perceived disconnect between primary care and cancer services. These results can help inform the effective delivery of cancer services in Northern Ireland.

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Section: Discussionmentioning

confidence: 99%

Exploring patient experiences of cancer care in Northern Ireland: A thematic analysis of free-text responses to the 2018 Northern Ireland Patient Experience Survey (NICPES)

Prue

O'Connor

Brown

et al. 2021

BMC Health Serv Res

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“…In addition, it significantly reinforced a positive work environment [ 1 ]. Additionally, APs can be experienced as an opportunity to nurture an interdisciplinary professional approach to care provision [ 30 ].…”

Section: Discussionmentioning

confidence: 99%

A focused ethnography in the context of a European cancer research hospital accreditation program

Mazzini

Soncini

Cerullo

et al. 2021

BMC Health Serv Res

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Background A quality accreditation program (AP) is designed to guarantee predefined quality standards of healthcare organizations. Evidence of the impact of quality standards remains scarce and somewhat challenging to document. This study aimed to investigate the accreditation of a cancer research hospital (Italy), promoted by the Organization of European Cancer Institutes (OECI), by focusing on the individual, group, and organizational experiences resulting from the OECI AP. Methods A focused ethnography study was carried out to analyze the relevance of participation in the accreditation process. Twenty-nine key informants were involved in four focus group meetings, and twelve semistructured interviews were conducted with professionals and managers. Inductive qualitative content analysis was applied to examine all transcripts. Results Four main categories emerged: a) OECI AP as an opportunity to foster diversity within professional roles; b) OECI AP as a possibility for change; c) perceived barriers; and d) OECI AP-solicited expectations. Conclusions The accreditation process is an opportunity for improving the quality and variety of care services for cancer patients through promoting an interdisciplinary approach to care provision. Perceiving accreditation as an opportunity is a prerequisite for overcoming the barriers that professionals involved in the process may report. Critical to a positive change is sharing the values and the framework, which are at the basis of accreditation programs. Improving the information-sharing process among managers and professionals may limit the risk of unmet expectations and prevent demotivation by future accreditation programs. Finally, we found that positive changes are more likely to happen when an accreditation process is considered an activity whose results depend on managers’ and professionals’ joint work.

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“…On a wider scale, Chiew et al (2018) integrated conceptual framework for quality in cancer care, with 12 domains including patient experience and satisfaction, appropriateness of care and guideline adherence, multidisciplinary and co-ordinated care and patient-centred outcomes is useful for the definition of quality metrics in cancer treatment and care.…”

Section: Methods To Improve the Shared Decisionmaking Processmentioning

confidence: 99%

Empowering patients in decision‐making in radiation oncology – can we do better?

et al. 2020

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The decision as to whether or not a patient should receive radiation therapy as part of their cancer treatment is based on evidence-based practice and on recommended international consensus treatment guidelines. However, the merit of involving the patients' individual preferences and values in the treatment decision is frequently overlooked. Here, we review the current literature pertaining to shared decision-making (SDM) in the field of radiation oncology, including discussion of the patient's perception of radiation therapy as a treatment option and patient involvement in clinical trials. The merit of decision aids during the SDM process in radiation oncology is considered, as are patient preferences for active or passive involvement in decisions about their treatment. Clarity of terminology, a better understanding of effective strategies and increased resources will be needed to ensure SDM in radiation oncology becomes a reality.

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A narrative synthesis of the quality of cancer care and development of an integrated conceptual framework

Cited by 16 publications

References 108 publications

Exploring patient experiences of cancer care in Northern Ireland: A thematic analysis of free-text responses to the 2018 Northern Ireland Patient Experience Survey (NICPES)

Exploring patient experiences of cancer care in Northern Ireland: A thematic analysis of free-text responses to the 2018 Northern Ireland Patient Experience Survey (NICPES)

A focused ethnography in the context of a European cancer research hospital accreditation program

Empowering patients in decision‐making in radiation oncology – can we do better?

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