A New Approach to the Measurement of Quality of Life

Ruta, Danny; Garratt, Andrew; Leng, Mhoira; Russell, Ian; Macdonald, Lesley

doi:10.1097/00005650-199411000-00004

Cited by 453 publications

(295 citation statements)

References 17 publications

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“…Because patients generally reported satisfaction despite results in the poor range on generally accepted objective outcome instruments, the question of how to evaluate the impact of an intervention in one joint in a patient with severe multiple joint involvement is problematic. A patientspecific index [28,39] may better reflect a patient's perception of quality of life and should describe the effect of a condition on those aspects of life considered by the patient of greatest importance [16,28], thereby providing a useful additional measure of outcome in certain patient groups, such as severely disabled patients with JRA.…”

Section: Discussionmentioning

confidence: 99%

Quality of Life After TKA for Patients With Juvenile Rheumatoid Arthritis

Jolles

Bogoch

2008

Clinical Orthopaedics &Amp; Related Research

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Section: Discussionmentioning

confidence: 99%

Quality of Life After TKA for Patients With Juvenile Rheumatoid Arthritis

Jolles

Bogoch

2008

Clinical Orthopaedics &Amp; Related Research

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“…A Patient Generated Index (PGI) 94 was used to allow respondents to state and evaluate the areas of their life affected by SUI. In addition to the PGI, the questionnaire included the King's Health Questionnaire, 95 the EQ-5D, and questions relating to socioeconomic and demographic information.…”

Section: Methodsmentioning

confidence: 99%

Systematic review and economic modelling of the effectiveness and cost-effectiveness of non-surgical treatments for women with stress urinary incontinence

Imamura

Abrams²,

Bain³

et al. 2010

Health Technol Assess

168

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How to obtain copies of this and other HTA programme reports An electronic version of this title, in Adobe Acrobat format, is available for downloading free of charge for personal use from the HTA website (www.hta.ac.uk). A fully searchable DVD is also available (see below).Printed copies of HTA journal series issues cost £20 each (post and packing free in the UK) to both public and private sector purchasers from our despatch agents.Non-UK purchasers will have to pay a small fee for post and packing. For European countries the cost is £2 per issue and for the rest of the world £3 per issue. How to order:-fax (with credit card details) -post (with credit card details or cheque) -phone during office hours (credit card only).Additionally the HTA website allows you to either print out your order or download a blank order form. Contact details are as follows:Synergie UK (HTA Department) Digital House, The Loddon Centre Wade Road Basingstoke Hants RG24 8QW Email: orders@hta.ac.uk Tel: 0845 812 4000 -ask for 'HTA Payment Services' (out-of-hours answer-phone service) Fax: 0845 812 4001 -put 'HTA Order' on the fax header Payment methods Paying by chequeIf you pay by cheque, the cheque must be in pounds sterling, made payable to University of Southampton and drawn on a bank with a UK address. Paying by credit cardYou can order using your credit card by phone, fax or post. SubscriptionsNHS libraries can subscribe free of charge. Public libraries can subscribe at a reduced cost of £100 for each volume (normally comprising 40-50 titles). The commercial subscription rate is £400 per volume (addresses within the UK) and £600 per volume (addresses outside the UK). Please see our website for details. Subscriptions can be purchased only for the current or forthcoming volume. How do I get a copy of HTA on DVD?Please use the form on the HTA website (www.hta.ac.uk/htacd/index.shtml). HTA on DVD is currently free of charge worldwide.The website also provides information about the HTA programme and lists the membership of the various committees. HTA NIHR Health Technology Assessment programmeT he Health Technology Assessment (HTA) programme, part of the National Institute for Health Research (NIHR), was set up in 1993. It produces high-quality research information on the effectiveness, costs and broader impact of health technologies for those who use, manage and provide care in the NHS. 'Health technologies' are broadly defined as all interventions used to promote health, prevent and treat disease, and improve rehabilitation and long-term care. The research findings from the HTA programme directly influence decision-making bodies such as the National Institute for Health and Clinical Excellence (NICE) and the National Screening Committee (NSC). HTA findings also help to improve the quality of clinical practice in the NHS indirectly in that they form a key component of the 'National Knowledge Service'. The HTA programme is needs led in that it fills gaps in the evidence needed by the NHS. There are three routes to the start of projec...

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“…Patient Generated Index (Ruta et al 1994). This is an alternative QoL measure that allows the participant to choose which areas of their life have been most affected by their illness.…”

Section: Methodsmentioning

confidence: 99%

Neuropsychological functioning, illness perception, mood and quality of life in chronic fatigue syndrome, autoimmune thyroid disease and healthy participants

2009

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Background. This study attempted to longitudinally investigate neuropsychological function, illness representations, self-esteem, mood and quality of life (QoL) in individuals with chronic fatigue syndrome (CFS) and compared them with both healthy participants and a clinical comparison group of individuals with autoimmune thyroid disease (AITD).Method. Neuropsychological evaluation was administered at two time points, five weeks apart. Twenty-one individuals with CFS, 20 individuals with AITD and 21 healthy participants were matched for age, pre-morbid intelligence, education level and socio-economic status (SES). All groups also completed measures of illness perceptions, mood, self-esteem and QoL at both time points.Results. The CFS group showed significantly greater impairment on measures of immediate and delayed memory, attention and visuo-constructional ability, and reported significantly higher levels of anxiety and depression. After controlling for the effects of mood, the CFS group still demonstrated significant impairment in attention. The CFS group also reported significantly lower self-reported QoL than the AITD and healthy participants. In terms of illness perceptions, the AITD group believed that their condition would last longer, that they had more treatment control over their condition, and reported less concern than the CFS group.Conclusions. These results suggest that the primary cognitive impairment in CFS is attention and that this is not secondary to affective status. The lower treatment control perceptions and greater illness concerns that CFS patients report may be causally related to their affective status.

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A New Approach to the Measurement of Quality of Life

Cited by 453 publications

References 17 publications

Quality of Life After TKA for Patients With Juvenile Rheumatoid Arthritis

Quality of Life After TKA for Patients With Juvenile Rheumatoid Arthritis

Systematic review and economic modelling of the effectiveness and cost-effectiveness of non-surgical treatments for women with stress urinary incontinence

Neuropsychological functioning, illness perception, mood and quality of life in chronic fatigue syndrome, autoimmune thyroid disease and healthy participants

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