A new scale for measuring quality of life in acquired brain injury

Fernández, María Dolores Arroyo; Gómez, Laura E.; Arias, Víctor; Aguayo, Virginia; Amor, Antonio M.; Anđelić, Nada; Verdugo, M.

doi:10.1007/s11136-018-2047-5

Cited by 16 publications

(8 citation statements)

References 51 publications

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“…The assessment of QoL was carried out through the administration of the CAVIDACE scale (Fernández et al, 2018, Verdugo et al, 2018), which is a disease-specific instrument aimed to assess the QoL-related personal outcomes of adults with ABI. The scale has shown excellent evidences of validity and reliability (Fernández et al, 2019), and it has a suitable internal consistency (alpha ordinal values ranged from .81 to .93) and high inter-rater reliability (ICC = .97). The analysis of construct validity supported the eight correlated factors model (TLI = .87; CFI = .89; RMSEA = .06; SRMR = .07).…”

Section: Methodsmentioning

confidence: 99%

Predictive factors of quality of life in acquired brain injury

Verdugo

Fernández

Gómez

et al. 2019

International Journal of Clinical and Health Psychology

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Background/Objective The sequelae and the disability and dependence that follow an acquired brain injury (ABI) may result in a significant reduction in the quality of life (QoL) of those affected. The objective was to assess the QoL of a sample of Spanish patients with an ABI and analyze the influence of certain sociodemographic and injury-related variables on their QoL. Method: The sample comprised 421 adults (60% male; M age = 53.12; SD = 14.87). Professionals and relatives assessed the patients’ QoL through the CAVIDACE scale, an ABI-specific tool based on the eight-domain QoL model. Results: Univariate analyses showed statistically significant differences in the QoL scores in several sociodemographic (age, civil status, education level, prior employment status, type of home, level of supports, loss of legal capacity, recognized dependence, and degree of dependence) and injury-related (time since the injury, location of the injury, and presence of post-traumatic amnesia) variables. The multiple linear regression showed that loss of legal capacity, time since the injury, prior employment status, location of the injury, and degree of dependence were significant QoL predictors. Conclusions: These findings provide knowledge for the development of programs aimed at reducing the negative impact of ABI on QoL.

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Section: Methodsmentioning

confidence: 99%

Predictive factors of quality of life in acquired brain injury

Verdugo

Fernández

Gómez

et al. 2019

International Journal of Clinical and Health Psychology

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“…There is now a focus on creating a context for wellbeing that spans beyond attempts to simply eradicate or reduce impairment. For example, developments in QoL literature for those living with ABI emphasize the need for more comprehensive assessments that include social inclusion, community integration, human rights and personal development (Fernández et al, 2019). This psychosocial approach to assessment reaches beyond disease-specific assessments (Sánchez, 2010).…”

Section: Introductionmentioning

confidence: 99%

Building Wellbeing in People With Chronic Conditions: A Qualitative Evaluation of an 8-Week Positive Psychotherapy Intervention for People Living With an Acquired Brain Injury

et al. 2020

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Research indicates that Acquired Brain Injury (ABI) is associated with significant and chronic impairment across multiple areas of functioning including physical, cognitive, emotional and behavioral domains. Whilst impairments associated with ABI can be ameliorated, cure is seldom possible. The emergence of positive psychology reflects a paradigm shift in health and wellbeing research, highlighting the role of character strengths, positive emotions, meaning, and resilience. Positive psychology interventions have been demonstrated to improve wellbeing in a variety of populations, although research investigating the impact of positive psychotherapy for people living with ABI are sparse. Here we characterize the experience of an 8-week positive psychotherapy intervention for 13 people living with ABI including four mentors and nine participants using thematic analysis of transcripts collected during mini-groups and one-to-one interviews. Six main themes were identified including empowerment, social opportunity, coping, cultivation of positive emotion, consolidation of skills and barriers. Results indicated that wellbeing can be promoted and improved in individuals with ABI. Recent theoretical developments in wellbeing science highlight scope to improve the intervention by connecting individuals to their communities and spending time in nature.

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“…The RMSEA revealed that the proposed model reached optimal values. The fit of the model was substantially better than that of its confirmatory counterpart (RMSEA = 0.08), suggesting that setting all factor loadings to zero in the confirmatory model led to an accumulation of small errors of specification with high impact on model it (Fernández et al, 2018). The construct validity was therefore deemed satisfactory.…”

Section: Resultsmentioning

confidence: 99%

Development and validation of the Professional Nursing Support Scale for Chinese patients with cancer

Song

Wang

Liu

et al. 2021

Int J of Nursing Practice

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Purpose This study aimed to develop and test the psychometric properties of a Professional Nursing Support Scale for patients with cancer in mainland China. Methods The study was conducted in two phases from January 2017 to January 2020. Phase I involved item generation and developing a preliminary version of Professional Nursing Support Scale through literature review, qualitative interviews, content validity evaluation and a pilot study. Phase II involved psychometric properties testing of the Professional Nursing Support Scale in 700 patients with cancer recruited from four public hospitals in Anhui Province, China. Results A 49‐item Professional Nursing Support Scale was finally developed. Exploratory factor analysis showed a four‐factor structure of the 49‐item Professional Nursing Support Scale, accounting for 56.95% of variance. Cronbach's α ranged from 0.91 to 0.94 for the four subscales. Confirmatory factor analysis further confirmed the best model fit of four‐factor structure of the Professional Nursing Support Scale. The Professional Nursing Support Scale also showed an acceptable concurrent validity with Supportive Care Needs Scale short form 34 (r = 0.75, p < 0.001) and Psychological Distress Thermometer (r = 0.39, p < 0.001). Conclusions The Professional Nursing Support Scale is a reliable and valid instrument to assess perceived needs of professional nursing support and support acquisition in relation to the care in Chinese patients with cancer.

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A new scale for measuring quality of life in acquired brain injury

Abstract: This is the post-print version of a paper published in Quality of Life Research.

Cited by 16 publications

References 51 publications

Predictive factors of quality of life in acquired brain injury

Predictive factors of quality of life in acquired brain injury

Building Wellbeing in People With Chronic Conditions: A Qualitative Evaluation of an 8-Week Positive Psychotherapy Intervention for People Living With an Acquired Brain Injury

Development and validation of the Professional Nursing Support Scale for Chinese patients with cancer

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