A new short form individual quality of life measure (SEIQoL-DW): application in a cohort of individuals with HIV/AIDS

Hickey, Anne; Bury, Gerard; O'Boyle, Ciaran; Bradley, Fiona; O'Kelly, Fergus Desmond; Shannon, William

doi:10.1136/bmj.313.7048.29

Cited by 372 publications

(321 citation statements)

References 7 publications

(8 reference statements)

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“…This is a semistructured interview in three parts. 11,12 Cue elicitation. Patients are asked to nominate the five areas of their lives that they consider to be the most important.…”

Section: Assessmentsmentioning

confidence: 99%

Measuring the individual quality of life of patients with prostate cancer

Stone

Matar

et al. 2008

Prostate Cancer Prostatic Dis

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Prostate cancer can have diverse effects on patients' quality of life (QoL). Standard QoL questionnaires do not address all of the concerns expressed by such patients. The primary purpose of this study was to identify those issues with the greatest influence on the QoL of patients with prostate cancer. A secondary aim was to compare the performance of the Schedule for the Evaluation of Individual Quality of Life-Direct Weighting (SEIQoL-DW) semi-structured interview with the Functional Assessment of Cancer Therapy-Prostate questionnaire (FACT-P). A mixed population of patients with prostate cancer (including those with localized and metastatic disease) completed the SEIQoL-DW and the FACT-P. The SEIQoL-DW was satisfactorily completed by 180 patients, including 93 patients with metastatic disease. Patients identified 144 separate QoL concerns, and these were then independently grouped by three of the authors into 13 distinct themes. The most frequently identified themes were 'leisure and hobbies', 'family' and 'health'. The themes that patients considered to be the most important were 'partner/spouse', 'family' and 'health'. Patients were most satisfied with their QoL in the domains of 'family', 'partner/spouse' and 'friends'. They were least satisfied with 'sexuality', 'mobility' and 'psychological factors'. Patients with metastatic disease rated their QoL significantly (Po0.0001) lower than other patients using the FACT-P, but not using the SEIQoL-DW (P ¼ 0.07). Patients with prostate cancer identified numerous QoL concerns that are not included (or are underrepresented) in standard health-related QoL questionnaires such as the FACT-P. Health-related QoL questionnaires may underestimate the QoL of patients with metastatic disease.

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“…This is a semistructured interview in three parts. 11,12 Cue elicitation. Patients are asked to nominate the five areas of their lives that they consider to be the most important.…”

Section: Assessmentsmentioning

confidence: 99%

Measuring the individual quality of life of patients with prostate cancer

Stone

Matar

et al. 2008

Prostate Cancer Prostatic Dis

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“…12 It has subsequently been successfully used in numerous studies of QoL as part of the SEIQoL-DW interview. 10,[13][14][15][16] In this study the direct-weighting procedure was applied to the five domains of QoL included in the FACT-P interview. Subjects were asked to weight the relative importance of each of these domains using a pie chart.…”

Section: Assessmentsmentioning

confidence: 99%

“…10 Details of the administration of the SEIQoL-DW and a description of the commonly reported concerns of patients with prostate cancer have been reported in the accompanying paper. 11 Patients' Eastern Cooperative Oncology Group (ECOG) performance status and the time taken to complete each instrument were recorded.…”

Section: Assessmentsmentioning

confidence: 99%

Quality of life in patients with prostate cancer: development and application of a hybrid assessment method

Stone

Matar

et al. 2008

Prostate Cancer Prostatic Dis

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Investigator-derived quality of life (QoL) instruments such as the Functional Assessment of Cancer Therapy-Prostate (FACT-P) questionnaire do not allow participants to weight the relative importance of QoL domains. We investigated the effect of allowing patients the ability to weight the relative importance of the five areas included in the FACT-P (Physical, Social, Emotional and Functional well-being, and Additional concerns). Patients (n ¼ 150) completed the FACT-P and gauged the relative importance of each QoL domain using a direct-weighting approach. This was then used to provide an adjusted Hybrid QoL score. Patients also completed a Visual Analogue Scale. Patients considered Social well-being to be the most important domain and Additional concerns to be the least important. When patient weightings were taken into account overall QoL scores increased. The validity of the Hybrid score was supported by its ability to distinguish between patients with metastatic and locoregional disease and its ability to detect expected decreases in global QoL over time. Application of the direct-weighting approach to the FACT-P allows assessments to more accurately reflect individual QoL. Unadjusted QoL scores may lead researchers to incorrectly estimate the true QoL of respondents.

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“…18,19 The SEIQOL is a semi-structured interview that assesses an individual's QOL in three steps. In this study, the questions were administered written.…”

Section: Qol Measurementioning

confidence: 99%

The patient's view on quality of life and eating disorders

Rie¹,

Noordenbos

Donker

et al. 2006

Intl J Eating Disorders

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Objective: This study investigated the personal views of eating disorder (ED) patients on their quality of life (QOL). Method:The views of 146 current ED patients and 146 former ED patients on their QOL were studied using a self-report questionnaire. Patients were requested to name the most important aspects of their life and they subsequently rated themselves on these aspects. Qualitative analysis clustered items into meaningful categories.Results: A sense of belonging was mentioned most often (93.0%) by the participants. Work or education, health and wellbeing were also mentioned frequently. Furthermore, participants stated a sense of self, disease-specific psychopathology, life skills, leisure activities, a sense of purpose, financial situation, living condition, and pets. Current ED patients more frequently mentioned disease-specific psychopathology than former ED patients. Current ED patients reported poor QOL on most domains, particularly on self-image and wellbeing. Former ED patients reported better QOL than current ED patients, but ratings were just above average. Conclusion:The views on QOL of ED patients broadens the scope of relevant domains of QOL. The assessment of these views may be a useful adjunct to the use of standardized QOL measures. V V C 2006 by Wiley Periodicals, Inc.

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A new short form individual quality of life measure (SEIQoL-DW): application in a cohort of individuals with HIV/AIDS

Cited by 372 publications

References 7 publications

Measuring the individual quality of life of patients with prostate cancer

Measuring the individual quality of life of patients with prostate cancer

Quality of life in patients with prostate cancer: development and application of a hybrid assessment method

The patient's view on quality of life and eating disorders

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