A New Zealand Perspective on Palliative Care for MĀOri

Muircroft, Wendy; McKimm, Judy; William, Leeroy; MacLeod, Rod

doi:10.1177/082585971002600111

Cited by 16 publications

(21 citation statements)

References 8 publications

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“…The underutilization of palliative care by Māori (Muircroft et al . ) was not observed in this study. The SPMI cohort for the present study experienced a higher level of deprivation compared to the general population in the CCDHB region.…”

Section: Discussioncontrasting

confidence: 66%

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Access to specialist palliative care services by people with severe and persistent mental illness: A retrospective cohort study

Butler

O’Brien

2017

Int J Mental Health Nurs

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Compared to the general population, people with pre-existing serious and persistent mental illness (SPMI) have higher rates of physical illness and die at an earlier age, raising questions about their palliative and end-of-life care needs when they are diagnosed with an incurable physical illness. In the present study, we explored access to specialist palliative care services within one New Zealand health district. Routinely-collected, de-identified patient information on a cohort of people diagnosed with SPMI, and receiving specialist palliative care services from the Capital and Coast District Health Board (CCDHB), was compared to the general population from the same health district. People with SPMI are 3.5 times less likely to receive specialist palliative services compared to the general population from the Capital and Coast District Health Board. The proportion of people identifying as Māori is 1.2 times higher in the SPMI cohort than the general CCDHB population. The SPMI cohort experiences a higher level of deprivation compared to the general population in the CCDHB. The present study confirms that those diagnosed with an SPMI are less likely to use specialist palliative care services at the end of life. Research using a national dataset is needed to determine whether the study findings are applicable to the national population.

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Section: Discussioncontrasting

confidence: 66%

“…There is awareness that the palliative care need for Māori is high (Muircroft et al . ). The underutilization of palliative care by Māori (Muircroft et al .…”

Section: Discussionmentioning

confidence: 97%

Access to specialist palliative care services by people with severe and persistent mental illness: A retrospective cohort study

Butler

O’Brien

2017

Int J Mental Health Nurs

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“…There is evidence that Indigenous and other ethnic groups PEOLC needs are shaped by their specific cultural needs. Service providers and design should take these issues into account to ensure that needs are met …”

Section: Introductionmentioning

confidence: 99%

“…Service providers and design should take these issues into account to ensure that needs are met. [14][15][16][17][18] Methods for identifying needs include the analysis of routinely collected data, such as health surveys, inpatient data and service data from nursing homes or general practice. Other methods include interview or survey data collected directly from patients, caregivers or clinicians focussing on their experience of EOL and bereavement need.…”

Section: Introductionmentioning

confidence: 99%

Are rural and remote patients, families and caregivers needs in life‐limiting illness different from those of urban dwellers? A narrative synthesis of the evidence

Kirby

Barlow

Saurman

et al. 2016

Australian J Rural Health

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This review aimed to assess the evidence to answer the question whether palliative end-of-life care needs of patients and caregivers in rural and remote communities differs from those of urban dwellers. Peer-reviewed studies from 1996 to the present dealing with the experience of rural and remote patients and caregivers at the end-of-life compared with that of urban people were extracted for narrative synthesis. The eight studies included showed that palliative needs of rural and remote residents are related to context. Diagnosis and treatment are less well managed in rural areas. Rural differences include: people are more accepting of death and less likely to intervene to delay death; caregivers tend to be younger and include friends as well as family and local support networks are important. Rural and remote end-of-life needs are shaped by reduced access and availability of services which has a negative influence on outcomes. This is counterbalanced by an acceptance of death and local support networks. Well-designed longitudinal studies with samples comprised of rural and urban residents for comparison are required to monitor how end-of-life need might change with the approach of death. Clinicians, health services and policy makers need a better understanding of rural attitudes and of how rural community networks mobilise to support end-of-life care in their rural and remote communities.

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“…Given the relatively limited body of research regarding minority culture's experience of palliative and end of life care (Kelly & Minty, 2007;Muircroft, McKimm, William, & MacLeod, 2010;Somerville, 2001;Steinberg, 2011;Tong et al, 2003), it is unsurprising that little previous research has explored the experience of indigenous peoples' as distinct from other non-European groups. Indeed, of the research that is available, most of it is conducted by majority group interviewers, in institutional care settings, and focuses on non-indigenous researcher's observations of indigenous peoples' care needs (Kelly & Minty, 2007).…”

Section: Introductionmentioning

confidence: 96%

Working bi-culturally within a palliative care research context: the development of the Te Ārai Palliative Care and End of Life Research Group

et al. 2016

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It is increasingly recognised that palliative care research needs to pay more attention to culture if the diverse needs of service users are to be appropriately met. However, in most countries research, practice and policy in palliative care remains predicated upon a specific cultural understanding of the 'good death' , firmly rooted in a Western world view. In this paper we present the formation of a new multi-disciplinary palliative care research group, explicitly set up along bi-cultural lines -The Te Ārai Palliative Care and End of Life Research Group to face challenges of traditional paradigms of palliative care in the specific context of Aotearoa New Zealand (NZ). We outline the rationale for establishing a research group which meets both Māori (indigenous people of NZ) and conventional Western standards for conducting academic research, describe our bi-cultural framework, and provide examples of how it shaped the design of three recently completed projects. We also situate our experience within the wider international literature, identifying transferable lessons for researchers wanting to do palliative care research with indigenous and minority ethnic and cultural groups.

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A New Zealand Perspective on Palliative Care for MĀOri

Cited by 16 publications

References 8 publications

Access to specialist palliative care services by people with severe and persistent mental illness: A retrospective cohort study

Access to specialist palliative care services by people with severe and persistent mental illness: A retrospective cohort study

Are rural and remote patients, families and caregivers needs in life‐limiting illness different from those of urban dwellers? A narrative synthesis of the evidence

Working bi-culturally within a palliative care research context: the development of the Te Ārai Palliative Care and End of Life Research Group

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