A Pain Reporting Platform for Adolescents with Sickle-Cell Disease

Abstract

This paper presents the latest version of the Pain Reporting and Management mHealth Platform for adolescent Sickle Cell Disease, developed in collaboration by Arizona State University and the Children's National Health System. This platform supports a cross-platform mHealth app, reporting and task management API, and portal dashboard for care provider monitoring. Extending our prior work, the latest version adds enhanced app features (games, power-ups, badges, notifications) to promote sustained adherence to the reporting protocol, and enhanced reporting features for providers that track high fidelity compliance measures and aggregate outcome scores. This paper summarizes the architecture and principle features of the platform, and presents data supporting improved compliance.

Improving the Patient-Physician Dialogue through Health Information Systems (HIS): Misconceptions and Miscommunication

“…Due to their unique characteristics, like mobility and accessibility, they can be used for, e.g., monitoring vital signs and tracking physiological well-being [15]. Furthermore, because these technologies communicate over the Internet, they can give patients a sense of privacy, because patients avoid the stigma of being seen entering medical clinics [6]. PRO data collected through digital instruments may also be considered more accurate, because human errors in the collection or translation process are eliminated [6].…”

“…Furthermore, because these technologies communicate over the Internet, they can give patients a sense of privacy, because patients avoid the stigma of being seen entering medical clinics [6]. PRO data collected through digital instruments may also be considered more accurate, because human errors in the collection or translation process are eliminated [6]. Thus, digital technologies like mobile applications have the ability to more reliably collect and transmit various types of PRO data [6].…”

“…PRO data collected through digital instruments may also be considered more accurate, because human errors in the collection or translation process are eliminated [6]. Thus, digital technologies like mobile applications have the ability to more reliably collect and transmit various types of PRO data [6].…”

mHealth for pediatric chronic pain: state of the art and future directions

“…medication tracking apps), this review will focus on behavioral health interventions for pediatric chronic pain. To date, there have been several promising apps developed to address disease-specific chronic pain conditions, such as Pain Squad [31] and Pain Buddy [32] for cancer-related pain, and SCD-PROMIS [33] and iManage for sickle cell disease [34]. While these apps show promise in supporting coping to improve chronic pain, they also contain elements specific to the medical condition that may limit the interchangeability of these applications across other pain conditions.…”