A person-centred approach in nursing: Validity and reliability of the Carer Support Needs Assessment Tool

Alvariza, Anette; Holm, Maja; Benkel, Inger; Norinder, Maria; Ewing, Gail; Grande, Gunn; Håkanson, Cecilia; Öhlén, Joakim; Årestedt, Kristofer

doi:10.1016/j.ejon.2018.04.005

Cited by 23 publications

(44 citation statements)

References 39 publications

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“…One suggested a specific question on information from health care professionals to the family. This is in line with studies showing that to know what to expect in the future is a major need in family carers [25][26][27].…”

Section: Discussionsupporting

confidence: 89%

Measuring quality of life in life-threatening illness – content validity and response processes of MQOL-E and QOLLTI-F in Swedish patients and family carers

et al. 2020

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Background: The McGill Quality of Life Questionnaire -Expanded (MQOL-E) and the Quality of Life in Life-Threatening Illness-Family Carer/Caregiver version (QOLLTI-F) are developed for use with patients facing the end of life and their family carers, respectively. They are also developed for possible use as companion instruments. Contemporary measurement validity theory places emphasis on response processes, i.e. what people feel and think when responding to items. Response processes may be affected when measurement instruments are translated and adapted for use in different cultures. The aim of this study was to translate and examine content validity and response processes during completion of MQOL-E and QOLLTI-F version 2 (v2) among Swedish patients with lifethreatening illness and their family carers.

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Section: Discussionsupporting

confidence: 89%

Measuring quality of life in life-threatening illness – content validity and response processes of MQOL-E and QOLLTI-F in Swedish patients and family carers

et al. 2020

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“…Although carers are often drawn from the patient's closest family members, the carer role may not be assumed "merely because they are the spouse, de facto partner, parent, child, other relative or guardian of an individual, or live with an individual who requires care" (ACSQHC 2015, 32). When the carer role is performed by a close family member, the provision of palliative care also affects the broader family unit (Alvariza et al 2018). Numerous barriers -associated with the individual carer, the health system and inadequate communication -challenge the provision of timely and effective support for carers (Ates et al 2018;Thomas et al 2018;Wiles et al 2018).…”

Section: Literature Reviewmentioning

confidence: 99%

“…In recognition of these issues, some systematic reviews have documented interventions and clinical tools that target the needs of carers (Hudson, Trauer et al 2010;Candy et al 2011;Bostanci et al 2012). Increased focus has been given to interventions supporting carers, for example, the use of evidence-based psychosocial interventions (Harding et al 2012;Applebaum and Breitbart 2013;Hudson and Aranda 2014;Aoun et al 2015) and use of targeted and validated needs assessment tools (Alvariza et al 2018;Thomas et al 2018). However, systematic implementation of relevant tools to assess carers' needs and facilitate personalised careplans and/or regular screening for carer distress remains challenging within current service delivery models (Alvariza et al 2018).…”

Section: Literature Reviewmentioning

confidence: 99%

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Identifying and assessing the needs of carers of patients with palliative care needs: an exploratory study

2018

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Background: Carers of patients with palliative care needs require careful assessment and support to undertake their role effectively. The carer component of palliative care is embedded in complex situations that necessarily focus on the patient. Aim: To explore experiences of specialist palliative care nurses (SPCNs) in identifying, assessing and planning care to support carers of patients with palliative care needs. Methods: Qualitative study with two face-to-face group interviews of SPCNs (n = 11) and descriptive content analysis. Findings: Findings articulated gaps in identifying carers and their role, and assessing the carers' needs. Conclusion: This study confirmed the complexity in assessing carers' needs within the palliative care context, existing practice gaps and positive outcomes when routine processes were adopted. Future research should explore how to systematically make improvements in supporting carers in all palliative care contexts including specialist and non-specialist settings.

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“…This is a 14-item tool that assesses: (a) support needs for the carer themselves, and; (b) support to enable the carer to provide care to the terminally ill person. The CSNAT was found to be valid and reliable for supporting family caregivers in a palliative care setting (Alvariza et al, 2018;.…”

Section: Introductionmentioning

confidence: 99%

Barriers and facilitators to implementing the Carer Support Needs Assessment Tool in a community palliative care setting

Horseman

Milton

Finucane

2019

Br J Community Nurs

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Family carers play a central role in community-based palliative care. However, caring for a terminally ill person puts the carer at increased risk of physical and mental morbidity. The Carer Support Needs Assessment Tool (CSNAT) enables comprehensive assessment of carer support needs. The present study aimed to identify barriers and facilitators to implementing the CSNAT in a community specialist palliative care service. Semi-structured interviews with 12 palliative care nurse specialists from two community nursing teams in Lothian, Scotland, June 2017. Data was audio-recorded, transcribed and analysed. Palliative care nurse specialists acknowledge the importance of carers in palliative care and encourage carer support practices. Nurses perceived the CSNAT as useful, but used it as an ‘add-on’ to current practice, rather than as a new approach to carer-led assessment. Further training is recommended to ensure community palliative care nurses are familiar with the broader CSNAT approach.

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A person-centred approach in nursing: Validity and reliability of the Carer Support Needs Assessment Tool

Abstract: This study further adds to the validity of the CSNAT and shows in addition that it is reliable and stable for use among family caregivers in palliative care.

Cited by 23 publications

References 39 publications

Measuring quality of life in life-threatening illness – content validity and response processes of MQOL-E and QOLLTI-F in Swedish patients and family carers

Measuring quality of life in life-threatening illness – content validity and response processes of MQOL-E and QOLLTI-F in Swedish patients and family carers

Identifying and assessing the needs of carers of patients with palliative care needs: an exploratory study

Barriers and facilitators to implementing the Carer Support Needs Assessment Tool in a community palliative care setting

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