“…Descriptions of how PPI were carried out varied considerably across the studies. PPI at the initial stages of research was for example described as involvement in processes related to funding and study approvals ( Birken & Bryant, 2019 ), development of research ideas or aims ( Crabtree, Ohm, et al, 2016 ; Turcotte et al, 2019 ), concept or study design ( Simpson et al, 2020 ). PPI was also reported with respect to involvement in the data collection strategy ( Bryant et al, 2016 ; Makdisi et al, 2013 ): by including public collaborators in interviewer team ( Birken & Harper, 2017 ; Crabtree, Ohm, et al, 2016 ; Hancock et al, 2015 ) or in the collection of data ( Birken & Bryant, 2019 ; Turcotte et al, 2019 ).…”