A pilot study on the Spanish version of the Psychosocial Adjustment to Illness Scale (PAIS‐SR) with carers of people with Parkinson's disease

Abstract

Aim To report the cross‐cultural adaptation and pilot study of the ongoing validation of the Spanish version of the Psychosocial Adjustment to Illness Scale with carers of people with Parkinson's disease. Design Cross‐cultural adaptation and pilot study with a cross‐sectional validation design of the Spanish version of the Psychosocial Adjustment to Illness Scale – Carers. Methods Twenty‐one carers of people with Parkinson's disease from a Primary Care practice in Spain were recruited and completed the PAIS‐Carers, the SF‐36 Health Survey, the Brief COPE Inventory and an assessment form. SPSS 23.0 was used to determine viability/acceptability and preliminary aspects of internal consistency of the instrument. Results Five of the seven domains presented floor effect (71.42%), and only one presented ceiling effect (14.28%). The internal consistency of the scale and domains showed acceptable values (over 0.7). The content validity of the Spanish version seemed satisfactory with positive comments in general from participants.

Illness Perception in Adolescent Patients With Anorexia: Does It Play a Role in socio-Emotional and Academic Adjustment?

“…In this study, we have assessed these areas: educational and social adjustment, family relationships and psychological distress. The Spanish version of this questionnaire has adequate psychometric properties (from α = 0.70 to α = 0.90) ( Neipp, 2005 ; Portillo et al, 2019 ). For this study, McDonald’s omega ranged from ω = 0.74 (educational adjustment) to ω = 0.91 (social adjustment).…”

Psychosocial Adjustment to Illness Scale in family caregivers of patients with Parkinson’s Disease: Spanish validation study

“…In the first phase of the study, authorisation from the original author of the PAIS‐SR (Derogatis, 1986) was obtained to translate and then validate the instrument. Four bilingual experts in neurological diseases and psychosocial research translated the instrument to obtain the Spanish version (Portillo et al., 2019). The translation was performed following the standard guidelines recommended for intercultural adaptation of psychology questionnaires (Gudmundsson, 2009; International Test Commision, 2010; Muñiz, Elosua, & Hambleton, 2013).…”

“…The translation was performed following the standard guidelines recommended for intercultural adaptation of psychology questionnaires (Gudmundsson, 2009; International Test Commision, 2010; Muñiz, Elosua, & Hambleton, 2013). The result of this process was the Spanish version of the PAIS‐SR (Portillo et al., 2019). A pilot survey was then carried out on a sample of 21 family caregivers of patients with PD.…”

“…A pilot survey was then carried out on a sample of 21 family caregivers of patients with PD. The comments and suggestions that emerged in the pilot survey were discussed, and minor changes were made to the final validated Spanish version of the PAIS‐SR for family caregivers of patients with PD as it has been published before (Portillo et al., 2019).…”

‘It’s life threatening, it’s not life limiting but it’s life threatening’ – Dyadic framework analysis of adolescent and parent adjustment to a type 1 diabetes diagnosis

“…In line with this, parental adjustment to the illness has been reported to influence the child’s quality of life when parents report less stress ( Moreira et al, 2014 ), and children who perceive their parents as providing positive emotional support and communication ( Jaser et al, 2009 ), report better health-related quality of life. Therefore, assessments/interventions are proposed to focus on the family support system, rather than the patient alone ( Portillo et al, 2019 ). Moreover, there is the subsequent balance of congruence between adolescent-parent perceptions which influence familial adjustment ( Heyduck et al, 2015 ) highlighting the importance of parental inclusion in understanding adolescent adjustment.…”